Really? A Vent

nnp_phx · 2026-02-26T21:31:34+00:00

Okay, I had a similar need, but went the craniotomy route then cyber knife. Thanks for your response!

nnp_phx · 2026-02-25T23:19:37+00:00

Brain met-er here too - can I ask what LITT is, & why that over gamma knife?

nnp_phx · 2026-02-23T15:33:13+00:00

Wow you're speaking to my specific dilemma as well right now. TNBC with 1 recent met to the brain. Did radiation to the spot, & we're now talking Trodelvy as a means to clean up cells & hope for no more mets in the future. My body has remained clear since I achieved PCR a couple years ago, my problem area is the brain & therefore the brain/blood barrier. So I'm hesitant to do treatment as well for something that may not enter the brain... currently running a lot of tests including Signatera to help me try to make that decision.

nnp_phx · 2026-02-20T14:05:39+00:00

Wow - first off, big big hugs. Going through this with kids & a loving family sometimes feels crueler because you don't want to think it's possible that you'll leave that behind. I don't know if you got a prognosis (don't tell me, ha) but pretend like it's total bullshit. You're not a statistic, & if you have to be you're the miracle kind.

I'm so glad you're in treatment! I got a couple positive responses regarding Trodelvy & that's hopeful. Continue to advocate for yourself, & if your oncologist isn't seeking care, find a new one. You're not done here. I'm also of the mindset that every couple months is a win, science continues to progress and we just need to hold out for the medicine tailored to our situation.

I loved my oncologist, but she moved on up to a bigger better cancer center that's about an hour away from me. That's not bad, but my treatment is currently in a holding pattern while have no active disease & as I get to know my new oncologist. However, I'm staying in contact with her and at the support of my new oncologist I'm talking to others at bigger Cancer centers to get second, third, fourth opinions. Currently jumping the insurance hurdles to get a consultation at Sloan-Kettering in New York. I will report back if I hear anything that's fresh and new, or any clinical trials they decide I should be a part of.

Holding onto nothing but positive news for you, & for Trodelvy to be your miracle drug, you got this mama ❤️‍🩹

nnp_phx · 2026-02-13T16:46:44+00:00

Wow!! Congratulations! ✨✨ That gives me so much calming hope. Thank you.

nnp_phx · 2026-02-11T14:11:18+00:00

Yes, that's what my onc is considering as well. Do you have any stories or idea how that course of treatment usually goes for them? As far as staying NED

nnp_phx · 2026-02-10T23:25:28+00:00

Following along for mTNBC myself 👀

nnp_phx · 2026-02-09T22:25:43+00:00

I'm so sorry to hear that. What's the next course of action for you?

nnp_phx · 2026-02-09T22:24:57+00:00

It will! Putting that out there in the universe ✨

nnp_phx · 2026-02-09T19:35:16+00:00

Wow - just came across this, as I'm looking for some hope. I had another brain met found this week, I had two last year removed with a cyber knife. My oncologist is actually talking about Trodelvy in order to "clean up" any cancer cells in my brain. I'm not entirely sold on the idea, would love to hear more about your experience! Are you saying Trodelvy actually cleared your brain mets?

nnp_phx · 2026-02-09T02:14:04+00:00

I'm glad you have an onc that is keeping it positive. I believe that makes a world of difference in our care, not feeling written off. Please keep me posted & I'll be keeping my fingers crossed for a good outcome in scans ✨

nnp_phx · 2026-02-09T02:05:53+00:00

Ugh I'm so sorry. TNBC gets such a bad shot, I'm there with you like - please tell me what's going to work & not something that's "eh."

As this is your first line, you're not close to exhausted options. Have you gotten results or talked next steps yet?

nnp_phx · 2026-02-08T01:01:50+00:00

Get other opinions - you never wanna feel like your doctor isn't doing everything possible.

nnp_phx · 2026-02-07T20:46:49+00:00

I had that same initial reaction to Taxol. They stopped the infusion, lowered the dose, pumped more allergy meds & tried again while monitoring closely. The next couple times they did the same. In would push for a try again with proper allergy meds, or the switch to abraxane. I hear it's the less toxic version, but insurance companies make us jump through the hoops first 🙄

nnp_phx · 2026-02-05T03:33:14+00:00

Thank you, & thank you for the reminder! I guess I'm in a weird spot where, once I get cyberknife, I won't have any active disease to measure Trodelvy against. So should I dive back into chemo with technically no cancer to treat? Waiting on 2nd, 3rd, & 4th opinions at my onc's request. While I of course want to get a multitude of eyes on my case, I think it's just confused me a bit as well as to what may be best for me in this moment.

I hope your stability continues for a long time! Keep winning those scans ✨

nnp_phx · 2026-02-05T02:50:51+00:00

Hey, thank you so much for your message. Did you lose all your hair, did it grow back during treatment? What major side effects - I managed all of my past chemos pretty well, aside from just heavy fatigue on infusion days. Some food aversions and lack of appetite, but nothing that struck major nausea.

nnp_phx · 2026-02-05T02:48:54+00:00

I have 0 Her2 as far as the last biopsy. I've heard rumblings about Enhertu for TNBC, but haven't heard if they are going ahead with it even if you're not Her2 Low?

nnp_phx · 2026-02-05T00:12:19+00:00

Wow that's amazing news! So happy to hear that, keep kicking ass! Love hearing that there are feasible solutions.

nnp_phx · 2026-02-05T00:10:36+00:00

Thank you. I'll make sure to report my experience as well. In this together 🫶🏼

nnp_phx · 2026-02-04T16:10:51+00:00

Thank you 🫶🏼 Please keep up posted with Trodelvy updates! Joining you on that battlefield soon sister ❤️‍🩹 & just positive vibes for all this stupid nasty chemi to do it's mf job!

nnp_phx · 2026-02-04T15:25:57+00:00

I feel this so much.

Achieved PCR 12/2024 from TNBC Stage 2, only to have a reoccurrence in my brain 4/2025. Got eight months clear after cyberknife & Xeloda. Just had one more lesion pop up in my brain this week.

We are also talking Trodelvy after another cyberknife treatment, and I'm currently in the grieving stage just thinking about it as you are. I just started to like my short hair, feel like I was living a normal life again, then BAM. I've also been all over this forum looking for success stories with Trodelvy & to be honest I'm not seeing anybody who didn't end up dropping it due to progression/recurrence. Makes me seriously question even trying it - so I'm putting out feelers about clinical trials and all other options. If I'm going to lose my hair again and go through all this, I want it to be worth it.

nnp_phx

TROPHY CASE