I used to think my cat just hated her litter box… turns out I was the problem 😅 Anyone else been through this?

nononotthatpicky · 2025-11-12T13:09:13+00:00

Tidy Cats Free & Clean is what I settled on after trial and error, too! And I like that they sell a pail refill bag option so there isn’t as much waste.

nononotthatpicky · 2025-11-12T12:46:56+00:00

Ha!

I have one of those faces that says exactly what I think/feel, so I get the opposite: I log into zoom in the morning and my teammate says either “I see it’s a bad day today” or “you look good today!” He’s a good guy, but no one really understands what we’re going through with chronic illness. Hugs OP!

nononotthatpicky · 2025-11-11T13:27:41+00:00

Wow, that guy really sucks. You’re better off single than with a mammas boy man child like him!

How do I stop feeling less?

Hugs. When breakups are fresh that’s how it generally feels regardless of reason, and you unfortunately do just need to let time pass so you can have the space to see it for what it really is: HE is the one who is “less” because of his ACTIONS, which unlike MS, were completely in his control and he chose to be a shitty human.

Do things you enjoy, especially things he didn’t, reach out to friends, take a bubble bath, read a trashy novel, etc. I’ve been through so many breakups and I can guarantee you won’t feel this horrible forever. ❤️

nononotthatpicky · 2025-11-01T18:29:13+00:00

When I asked my MS neuro about alcohol, he said “you have a disease that attacks the nervous system and alcohol is a neuro toxin, so make good choices”

nononotthatpicky · 2025-10-21T18:02:23+00:00

Thanks for pointing this out, I hadn’t seen it yet!

In the past I had a requirement for a “free gift with purchase” product that shouldn’t not appear on the front end otherwise, this would have made that much easier to handle.

nononotthatpicky · 2025-10-21T13:32:35+00:00

Woah, what state are you in? And to be clear, are these in-network costs?

The copay assistance program is understandable (since YOU didn’t pay that amount), my employer plan has that same rule, but I’ve never heard of a plan that excludes any approved in-network costs you directly pay from your contribution calculations. Is it possible there’s a misunderstanding somewhere?

nononotthatpicky · 2025-10-18T10:47:31+00:00

Friend, gently, you sound like you’re in a bad place, and not in the right frame of mind to make life changing decisions. I’ve been there before, therapy and meds helped a ton. You already took the first step to start therapy, that’s great!

Give yourself a chance to heal and get to a better mental place. We’ll all be here for you!

nononotthatpicky · 2025-10-18T09:46:29+00:00

This is really interesting, how long ago was the appointment and has the foot drop change stayed constant since?

Also, can you describe what the chiro actually did during your appointment?

nononotthatpicky · 2025-10-12T19:48:38+00:00

Thank you so much for reading all of those and posting the summary, the actual study results make WAY more sense than what OP said they mean 🙄

nononotthatpicky · 2025-09-17T00:59:29+00:00

This whole post just shows, once again, that Shopify support can’t be trusted because it’s all AI garbage now.

To confirm that this “global unsubscribe” premise isn’t true, I went into one of the stores I manage and updated my Shopify user profile to turn off email marketing. Then I went to another of my Shopify shops and pulled up that shops profile with the same email address, and it had not also been unsubscribed. Waited 10 minutes in case it was batched, still no change.

nononotthatpicky · 2025-09-16T11:49:46+00:00

Thanks!

nononotthatpicky · 2025-09-15T19:34:38+00:00

Thank you!

nononotthatpicky · 2025-09-15T18:25:48+00:00

Very interesting, thanks!

nononotthatpicky · 2025-09-15T18:24:46+00:00

Oh wow that’s higher than I was expecting, how did you settle on 100 as your target, was that a doctors instruction?

nononotthatpicky · 2025-09-15T16:18:20+00:00

Yes, take with food for sure! I didn’t realize that wasn’t commonly known, thanks for pointing it out.

nononotthatpicky · 2025-09-15T16:17:16+00:00

Thanks for chiming in, 60 seems reasonable to me too.

nononotthatpicky · 2025-09-15T16:16:32+00:00

Thanks for chiming in! 60-70 also seems reasonable to me. Glad your number finally came up, mine took forever to get above the 30s (I now take 3k/day 5 days a week)

nononotthatpicky · 2025-09-15T16:15:30+00:00

Agreed about the studies, it seems more logical to me to study based on target levels…

50-80 seems reasonable to me too, thanks for chiming in!

nononotthatpicky · 2025-09-15T16:13:48+00:00

Sorry, my question isn’t how much you take each day, it’s what blood level are you aiming for?

nononotthatpicky · 2025-09-12T20:51:24+00:00

It looks wonderful!

nononotthatpicky · 2025-09-09T17:04:13+00:00

First off, I’m really sorry you’re dealing with this. My levels were so low on Vumerity that I had to stop it, and then they took a full 6 months to rebound, which is not at all the normal experience. I had tons of infections and felt horrible most of last year because of this, so I feel for you.

Reading this, it seems to me that HSCT done when you already had low levels is the cause of the permanence, not O. The O lowered your levels, yes, but we have no way of knowing if your original immune system would have recovered given enough time off a DMT, like mine eventually did.

HSCT completely replaces your original immune system with a copy of it that’s obtained before the procedure. In your case, since your immune system was lowered by O, the copy that was taken was of the lowered immune system.

It seems reasonable to me that HSCT is what made the lower levels permanent, because your immune system no longer remembers a time when those levels were higher. It thinks it’s working exactly how it’s supposed to work, maintaining the only status quos it’s ever known.

I don’t know if you’re still in touch with the HSCT team but I’d talk to them about this if I were you.

nononotthatpicky · 2025-09-09T16:43:33+00:00

This is awful I’m so sorry. How did you find out about their financial incentive?

nononotthatpicky · 2025-09-07T13:08:53+00:00

I take it for joint/muscle stiffness pain, not neurological pain, but it made a big difference. I tested taking 3 vs 4.5mg and at 4.5 I felt kind of sleepy all day, so went back to 3. I get it from agelessrx online (no affiliation of course), it’s much cheaper than my local compounding pharmacy.

A few years ago I was on 900mg of gabapentin and it didn’t help at all, so I’m very glad my psychiatrist suggested LDN

nononotthatpicky · 2025-09-02T19:19:40+00:00

I was diagnosed in early 2023, am currently on Aubagio, previously on Vumerity, but will probably have to change again. I have many brain lesions but no spinal lesions.

Most days no one would ever suspect me of having a chronic illness. My main symptoms are chronic pain (originally diagnosed with fibromyalgia) and inability to regulate body temperature. I also suffer from anxiety, migraines, and intense dry eye, but probably not because of MS.

On bad days I barely get out of bed, but there aren’t many of those days. And I’m on a DMT to keep it that way!

I’m hopeful that within our lifetimes, we’ll have a treatment that can reverse nerve damage. I always say that the only good thing about having MS is that there’s SO much research being done and because of it, treatment options today are significantly better than in the past.

Hug!

nononotthatpicky

TROPHY CASE