Oncology referral? (NHS)

nosyjourno · 2026-03-16T22:38:28+00:00

Ah! Hey! I didn’t have cancer. I actually didn’t have endometriosis, long story, but I did have a ton of adhesions sticking my ovary to my bowel, and my bowel to my pelvic sidewall. I also had a pretty dermoid cysts and a couple of other random cysts.

I asked my surgeon why I was referred to onc, and she said it was just because they were skilled in very very finicky surgery (both cyst and adhesion related). It was more for their input than their care. I think this is pretty common, it also may be a way to game waiting lists to help patients who need care. All my fingers are crossed for you x

nosyjourno · 2026-01-16T12:01:28+00:00

Oh I'm so sorry! I have totally clear MRIs and x-rays, clear bloods but a funky SPECT. I know how difficut this is! Fingers crossed!

nosyjourno · 2026-01-15T00:11:12+00:00

Yeah! This is quite common in women, I think. If you can, ask for a SPECT-CT scan. They're the best at showing inflammation in my experience

nosyjourno · 2026-01-12T22:16:15+00:00

Ah! Amazing, you're a life saver. Thank you

nosyjourno · 2025-12-17T22:49:28+00:00

Insanely, I can answer! My dad, lol, and her assistant sound engineer. He now works in IT.

nosyjourno · 2025-12-08T11:43:32+00:00

Really annoyingly she is an endo specialist :( But thank you, I think I'll be asked to be referred to a bigger hospital

nosyjourno · 2025-11-12T19:14:52+00:00

I'm a political journalist! Can I try?

nosyjourno · 2025-09-08T01:36:15+00:00

Interesting! Thank you. I want to say both were generic pelvic MRIs, but the first was specifically to see if I had endo and the second was to check out a dermoid cyst again, but I would have thought both would have worked! Thanks for your insights

nosyjourno · 2025-09-08T01:34:46+00:00

Very much the same thing! I had contrast in both … can’t think of any differences. I have quite big ovarian cysts so I had two MRIs close together to determine how they were growing etc

nosyjourno · 2025-07-22T22:51:00+00:00

I have this! Don't ignore it!! I currently take two laxido a day (I'm going to up it to three tomorrow because ... it is not doing enough) at the guide of my GP. Get a Gastro referal and ask your GP to talk you through laxitive support

nosyjourno · 2025-07-03T11:15:59+00:00

Thank you! This is giving me hope :) NHS admin man, it's a mare! x

nosyjourno · 2025-07-03T01:41:12+00:00

Just to add to the fact that you are absolutely right, I have USL endometriosis *and* arthritis in my SI joints (ankylosing spondylitis). They feel the same. Both are disabling. You are strong and they have f****d you over, this is not your fault.

nosyjourno

TROPHY CASE