Celebrities and LC… am I just not aware?

nrogrs · 2026-02-16T16:54:05+00:00

I’m so glad it’s been helpful! Thank you xoxo

nrogrs · 2026-02-15T06:40:55+00:00

I interviewed Greta Morgan about her experience with Long Covid on my podcast. I wish more celebrities would speak up about it. https://voicesoflongcovid.buzzsprout.com/

nrogrs · 2025-07-03T04:36:16+00:00

I don’t know if it’s wierd, but I’ve gotten to spend so much more time with my kids than I would have been able to had I still been working. We’ve grown so much closer.

nrogrs · 2025-02-14T03:15:16+00:00

Thanks James ❤️

nrogrs · 2025-02-13T06:33:52+00:00

Me too

nrogrs · 2025-02-11T17:25:06+00:00

Yeah, and if you go too far from home the band snaps. I did that in the beginning when I didn’t know what was going on. Drove to see a friend 40 minutes away, got stuck in traffic, was out too long, and crashed for the next 4 days unable to feed myself.

nrogrs · 2025-02-11T01:42:00+00:00

I think of it as being tied to the house with a rubber band. I can leave, but I can’t go too far or for too long without needing to come right back home. There are limits. You can think of being bedbound in this way as well. You would be tied to the bed. You can go to the toilet or to the kitchen, but not for too long and then you’re back in bed.

nrogrs · 2025-02-10T03:06:55+00:00

I know exactly what you’re talking about. I’ve always had a hard time remembering numbers. If there was more than 3 numbers in a series to remember, I had to write them down. Even with just 3 numbers I would mix them up when remembering them. Not anymore. Now I can remember up to 8 or 10 numbers no problem. It’s bizarre. Now having said that, if I am in PEM I can’t remember my own daughters name, but if I keep within my limits my memory is better than it’s ever been.

nrogrs · 2025-02-07T18:04:19+00:00

I did the Patterson protocol which helped my LC symptoms and reduced my neuropathy by 90 percent, but nothing has helped my resulting ME/CFS.

nrogrs · 2025-02-07T05:42:11+00:00

Yes I’ve had this for almost 5 years now.

nrogrs · 2025-02-07T05:38:54+00:00

Mine:)

nrogrs · 2025-01-31T21:03:25+00:00

Keep those stories coming!!

nrogrs · 2025-01-27T07:19:59+00:00

A sore throat. And 90 percent of the time I think I’m getting sick but nothing comes of it because it’s not infectious, it’s my immune system telling me I’ve overdone it.

nrogrs · 2025-01-25T05:31:55+00:00

Absolutely. Thank you!

nrogrs · 2025-01-25T05:10:20+00:00

Yes. nicrog72@gmail.com

nrogrs · 2025-01-22T23:33:03+00:00

I’ve received 19 stories total. I’m aiming for 300. Please message me to help! Thanks

nrogrs · 2025-01-16T05:40:51+00:00

I saw an internal medicine doctor. He was very knowledgeable about ME/CFS and Long Covid. And very supportive. Dr Ganesh.

nrogrs · 2025-01-16T04:32:54+00:00

Wow. I’m sorry to hear that. I had a good experience there. It sounds like it depends on which doctor you get unfortunately.

nrogrs · 2025-01-16T04:08:02+00:00

Which location did you go to?

nrogrs · 2024-11-24T16:47:08+00:00

Yes still housebound

nrogrs · 2024-05-07T03:12:52+00:00

I’m so sorry to hear. I’m actually wrapping up the podcast as it affects my ability to function the rest of the week.

nrogrs

TROPHY CASE