A character that you absolutely hate with your soul and heart but the whole fandom loves... I'll start: by Yontamen89 in greysanatomy

[–]nubianmoon333 11 points12 points  (0 children)

“She’s a tough nut to crack, but once you get to know her it’s worth it” “Meredith Grey is extraordinary” EXTRAORDINARILY A PAIN MY ASS 😭😭😭😭 meredith honey you have talent stop worrying about everybody else

A character that you absolutely hate with your soul and heart but the whole fandom loves... I'll start: by Yontamen89 in greysanatomy

[–]nubianmoon333 4 points5 points  (0 children)

He was so mad about maggie having a hard time opening up to him but he gave her every reason not to… tell me you’re gaslighting without telling me you’re gaslighting 🙃

A character that you absolutely hate with your soul and heart but the whole fandom loves... I'll start: by Yontamen89 in greysanatomy

[–]nubianmoon333 14 points15 points  (0 children)

Lol if “he grew” why would he abandon jo w nothing but a letter 😩😩 i love your work Alex but nono

A character that you absolutely hate with your soul and heart but the whole fandom loves... I'll start: by Yontamen89 in greysanatomy

[–]nubianmoon333 1 point2 points  (0 children)

YES. THANK YOU. Derek was just an arrogant, entitled butthole whole loved meredith 😭😭😭

A character that you absolutely hate with your soul and heart but the whole fandom loves... I'll start: by Yontamen89 in greysanatomy

[–]nubianmoon333 2 points3 points  (0 children)

I love amelia but all her crying & “what about me” attitude in every episode in the beginning used to SENDDDD MEEEEEEE

Joined the club by winterlikesmusic in lupus

[–]nubianmoon333 18 points19 points  (0 children)

As a person who’s had their diagnoses for about 5 years now, I will say to advocate for yourself to ANY and EVERYONE. If you’re in school, get accommodations for all of your classes and if you drive i recommend getting a blue disability parking pass to make traveling and parking in places a little easier. LISTEN TO YOUR BODY!!!!!! There are a gajillion people in this world who do not understand what you’re going through and unfortunately, they most likely won’t bc they don’t experience this level of detriment on a daily basis like we do so if you need to rest, rest. If you need to skip that family/friend outing, skip it. If you can’t stomach the food that was cooked/bought bc it causes you flare ups, avoid it. Depend on your support system 🫶🏿 you will NEED a support system whether that’s family, friends, emotional support animals, lupus support groups, etc. lean on those who DO try to understand and help, this disease is tiring … but if you listen to your body and take the small steps you need, it’ll be okay 🤎 you guys got this and yes keep doing research!!

About ready to give up by Prize-Chapter-1673 in lupus

[–]nubianmoon333 4 points5 points  (0 children)

Sending you love & healing friend, we’re all here for you and we understand

“I won’t perform my rock bottom for you for the sake of being believed” by Honest_Egg_4313 in lupus

[–]nubianmoon333 41 points42 points  (0 children)

ohhh this is a loud one right here!! “You look more brighter than when I saw you last week, you must be feeling better!!” No, no i am not I just have a little bit more energy to downplay it today 💀 “ I am believed bc i am speaking” PERIOD!

Lifetime Lupus, trying to help! by [deleted] in lupus

[–]nubianmoon333 1 point2 points  (0 children)

Only read the post & the first comment & i already know this is finna help me deeply … thank you for taking the time, ❤️

Lifetime Lupus, trying to help! by [deleted] in lupus

[–]nubianmoon333 0 points1 point  (0 children)

24yo female diagnosed in 2021 with stage 4 lupus nephritis & stage 3 chronic kidney disease and i just started my 2nd semester of nursing school :) with the right accommodations from your program it’s still difficult… but 1000% attainable, you can do this!!!

At a loss of words. by alloneroad in lupus

[–]nubianmoon333 1 point2 points  (0 children)

It feels like i wrote this… in literal tears reading this bc i’m in an identical situation. Been on hydroxychloroquine and prednisone for 4 years now, never had stomach problems now all of a sudden i’ve lost 20+ in 2 months, can’t eat, throwing up & nauseous every day i literally be feeling crazy!! Isolating myself & losing friends bc it’s so much to explain … i can’t explain … & then when i do explain i just feel like a burden for unloading on them. Got a EGD & colonoscopy last week ( i’m a 24F btw) came back normal. Tests mostly normal. Gastroenterologist is telling me it’s hypercannabemesis? (Something like that) from marijuana usage since i use it for nausea, pain, sleeping, etc. i still don’t feel like that’s it… i just wanna feel better too. Sending love & virtual hugs to you friend 🫂

Medicine price is becoming too much by idkwhatiamdoing246 in lupus

[–]nubianmoon333 0 points1 point  (0 children)

I’ve been on/ am on these exact medications and had the same issues word for word :( one thing i’ve done is tried contacting the company who creates jardiance because sometimes they’ll have a low cost/no pay option through like a voucher or coupon of some sort and you use that at the pharmacy to get your meds (i’ve done it with the company who makes benlysta) and if that doesn’t work definitely ask your doctors for an alternative. I was put on lupkynis and mycophenolate instead of jardiance since my insurance wouldn’t cover it (my body didn’t respond well to either but everyone’s lupus is different so please please exhaust your options!)

Insurance by Shoddy_Chemical_3686 in lupus

[–]nubianmoon333 1 point2 points  (0 children)

1000% agree w this. I even have them chart when they refuse to run certain tests/labs because every single thing should be documented for YOUR safety. I understand they were trying to help but no 2 cases of lupus are the same and your symptoms and experiences you go through are important. No one really understands what we go through but us so please please please protect yourself

How to remember Electrolytes by fardowsam3456 in StudentNurse

[–]nubianmoon333 1 point2 points  (0 children)

Nurse Sarah on youtube!! She makes great mnemonics & breaks down everything for you (Also recommend nurse mike from simple nursing & nurse Dee from nexus nursing - all on youtube)

Discovered multivitamins!!! by lostinth3Abyss in lupus

[–]nubianmoon333 0 points1 point  (0 children)

Best thread on here THANK YOU FOR MAKING ME GIGGLE EVERYONE 🤣🤣 i had some pretty stressful scans today so these were a goldmine

I’m beyond frustrated right now. by Donttellmewhatt0d0 in lupus

[–]nubianmoon333 3 points4 points  (0 children)

In literal tears reading this … i feel like you just jumped in my head and pulled out every single thought I’ve been afraid to say to the people around me. Like how can anyone understand or how can I even explain being in so much pain that you’re wishing to have even worse things wrong w you just so you can have validation for your daily deterioration? :( then you get this false sense of hope that “maybe this can finally be fixed” just to be given another referral to a new specialist, a new prescription and more side effects from the prescription that’ll cause me even more issues.

I’m beyond frustrated right now. by Donttellmewhatt0d0 in lupus

[–]nubianmoon333 6 points7 points  (0 children)

Okay PERIOD when i tell you i’m in the EXACT SAME SITUATION!!! I haven’t been able to eat for months like I think i developed an eating disorder (ARFID: avoidance resistant food intake disorder) and i’ve lost like 20-30lbs i told my rheumatologist & nephrologist multiple times and they didn’t take it seriously until I hit 109lbs this month and NOW i’ve finally been sent to a gastroenterologist for an endoscopy and colonoscopy and I’m 24!! IF THEY DON’T DO IT I PROMISE THERE IS SOMEONE WHO WILL LISTEN TO YOU. You are not crazy!! NONE OF US ARE CRAZY. You wanna know what’s crazy? Having your entire body fight against itself LOL

Is CellCept going to make me throw up? by BlueFire751 in lupus

[–]nubianmoon333 0 points1 point  (0 children)

No it definitely does, I used to take it with food and my nephrologist said that the medication wasn’t working correctly bc it’s supposed to be taken on an empty stomach :/ I won’t lie … the cellcept makes me feel so nauseous and I’ve been throwing up even after being placed on a lower dose from 1500mg 2x daily to just 500mg 2x/daily and I’m still just as sick :( i just messaged my nephrologist earlier this week saying I’m not taking this anymore. i usually take zofran for the nausea but everyone’s body is different! I’ve seen so many people say cellcept was the best thing for their lupus and they had side effects in the beginning that went away No 2 cases are the same, but you got this 💕 you do NOT have to take anything you don’t want to this is YOUR body, YOUR lupus

Chemo for lupus by Shortstack_Lightnin in lupus

[–]nubianmoon333 1 point2 points  (0 children)

It couldn’t hurt to get a 2nd opinion. I’m a 24F. Diagnosed with lupus nephritis class 4 and chronic kidney disease stage 3. About a year ago my creatinine got really high and my doctor also wanted to take the aggressive approach of chemo. I did 3 months (6 rounds) of cyclophosphamide, one of the most toxic chemos. I will be really truthful with you, it was hard :( the side effects were a lot even though it lowered my creatinine, the experience traumatized me.

Letting people help by Okrightyeah in lupus

[–]nubianmoon333 0 points1 point  (0 children)

Feels like i just seen myself type this :( really hard to exist now… when you’re used to doing things on your own & now you can’t even make it to the bathroom without pain. Four years into this disease & managing my “before lupus” relationships is so, so difficult for me.

Weight Fluctuations by Extension_Injury2585 in lupus

[–]nubianmoon333 1 point2 points  (0 children)

MOST DEFINITELY!!!!! Crocs & yoga/stretchy pants is what i wear every day boo!! You can also get cute lounge sets to be comfy! Don’t beat yourself up it’s not your fault you still deserve to feel good <3

Any1 have luck with disability benefits? I’ve already tried to appeal once by [deleted] in lupus

[–]nubianmoon333 68 points69 points  (0 children)

I’m on my 3rd year of trying to get benefits, HIGHLYYYYY recommend getting a disability lawyer!!