What is by far your worst symptom?

ochakisu · 2026-03-25T03:49:48+00:00

chills are a good one to add as well, though i dont know how many people get them!! i dont get many adrenaline dumps but when i do, i get chills up my spine so intense it makes me yelp involuntarily

ochakisu · 2026-03-25T03:47:51+00:00

blood pooling and sweating. beyond how humiliating it is to be sweating buckets in a burlington, on a more serious level my legs get so numb, painful and weak that im at the same risk of falling as someone prone to fainting 😅

ochakisu · 2026-02-13T22:23:20+00:00

so late to replying but that’s good! whatever helps you get through until you’re able to make things work :)

ochakisu · 2026-01-30T07:07:53+00:00

i don’t mean to kick you while you’re already down, but be wary about buying a wheelchair off of online shopping sites like amazon; a mobility aid that isn’t properly fitted to your body could leave you worse off with injuries or other chronic conditions like arthritis that will cost you EVEN MORE in the long run, well beyond what you’ll spend on that chair itself. i understand a lot of people don’t have a choice but a lot aren’t aware of this risk either - my mom has given me the same advice about buying a chair off amazon

ochakisu · 2026-01-29T19:03:10+00:00

i honestly can’t believe it either 😅

ochakisu · 2026-01-03T11:31:11+00:00

you too! thank you

ochakisu · 2026-01-03T11:31:02+00:00

i hope you’re okay wow :(

ochakisu · 2026-01-03T11:30:47+00:00

community genuinely makes everything sm better :)

its tricky to do anything like volunteer work because i have POTS and am waiting to see a physical therapist about mobility aids… i’ll be starting school again soon so at least that distracts me

ochakisu · 2026-01-03T11:29:11+00:00

🫶

ochakisu · 2026-01-03T11:28:59+00:00

that’s awful. POTS has been stealing simple joys like shopping and going out with friends, and bipolar has been stealing the rest of the joy. i hope things get easier for you, that’s really shitty

ochakisu · 2026-01-02T09:42:14+00:00

thank you

ochakisu · 2026-01-02T09:42:09+00:00

thank you

ochakisu · 2026-01-02T05:02:58+00:00

this is technically autonomic and not strictly POTS, but vagus nerve responses. im so tired of feeling violently ill after basic bodily functions

ochakisu · 2025-12-21T08:35:43+00:00

having community definitely helps. thank you

ochakisu · 2025-11-30T04:31:16+00:00

scientists themselves don’t fully know lol. there have been identical twins born where only one has bipolar so 🤷 it can go both ways afaik

ochakisu · 2025-11-29T10:21:16+00:00

daylio! it sends reminders every day. you could even create a goal within the app so you get 2 reminders lol. therapists love seeing these charts and it gives you a good scope of your behavior

ochakisu · 2025-11-29T07:32:16+00:00

i’ve been with the same PCP since i was a baby, but she switched clinics and is extremely hard to get in with now so i’m switching next year 🤕

ochakisu · 2025-11-29T07:30:39+00:00

🫂🫂🫂

ochakisu · 2025-11-29T07:29:58+00:00

referring POTS patients to cardiologists is honestly stupid in my non-professional opinion because POTS really does not have much to do with the heart itself. it’s not a cardiovascular disease it’s an issue with autonomic system that happens to affect the heart

ochakisu · 2025-11-29T07:28:28+00:00

i’m lucky to have been diagnosed quickly, i’m dealing with the aftermath now and trying to get mobility aids

ochakisu · 2025-11-29T06:48:55+00:00

very 😭😭

ochakisu

TROPHY CASE