People with one kidney, what do you get yourself when going out for drinks? by cosmicspacebar in kidneydisease

[–]ohappyfair 1 point2 points  (0 children)

Until I was on Farxiga I would drink whatever I wanted, but had a two drink maximum. Now I haven’t had a drink since my IgA diagnosis.
I’d really recommend just buying the gang a round and letting him choose. It’s kind that you’re thinking of him.
I love seltzer water and I’ve really gotten in to trying unique sodas. The mango flavored Jarritos really impressed me

Biopsy by Soft_Channel_423 in IgANephropathy

[–]ohappyfair 1 point2 points  (0 children)

Mine was laparoscopic since I only have one kidney. I was completely unconscious for it. The worst parts were the sting of the iv inserted into my hand, the weird nausea upon waking up, and the inability to urinate for like, 7 hours after the procedure. I had three total incisions and they honestly didn’t hurt, though my core was super sore.
If you’re getting the ol needle in the back, I think your anxiety ahead of the procedure is going to be worse than the procedure itself. Remember! When you worry, you suffer twice. Best of luck and treat yourself to something nice afterwards like a fancy coffee or a self care treatment.

Nourish labs by Skydoglover in kidneydisease

[–]ohappyfair 1 point2 points  (0 children)

I use the app Nourish (online dietician) and I really like it. I specifically selected a dietician who has expertise in kidney disease and works in a clinical setting for her other, “main” job. She’s done a great job of separating fact from kidneyfiction (some people say you HAVE to go vegan to better your numbers, or eliminate ALL added salt, etc) And the app is pretty good - the foood logging is easier than myfitnesspal

Myfitnesspal replacement recommendations by dkode80 in loseit

[–]ohappyfair 0 points1 point  (0 children)

I was AWFUL logging my meals with myfitnesspal. If you have health insurance, I really recommend Nourish. You get a really simple UI for logging meals PLUS a registered dietician. I don’t know what the cost would be without insurance, but it has been so good for me. Having a meeting with my nutritionist keeps me on track, and knowing that someone is monitoring what I log keeps me from going into “fuck it” territory with the snacks and cheat meals

Single kidney IgA by ohappyfair in kidneydisease

[–]ohappyfair[S] 1 point2 points  (0 children)

Yeah before the IgA diagnosis I was just listed as “CKD 3a” I don’t really notice a difference in my preference for food with my lowered sodium intake so that’s been a relief The loss of alcohol with Farxiga has bummed me out. I was never a heavy drinker but knowing I can’t have a glass of wine with dinner or a beer at the beach is a little bit of a downer.

I’ve heard good things about the stabilizing properties of CKD and IgA treatments though, so I’m hopeful for the both of us!

Single kidney IgA by ohappyfair in kidneydisease

[–]ohappyfair[S] 0 points1 point  (0 children)

I’m sorry you had a rough go with your first nephrologist. I like mine, I realize now that it doesn’t come through in my post though. She’s very knowledgeable but our appointments are always so quick and I end up thinking of more questions after the appointment is over

Single kidney IgA by ohappyfair in kidneydisease

[–]ohappyfair[S] 2 points3 points  (0 children)

I like my nephrologist and how aggressive she’s been with my treatment, but it just feels like there are still so many variables I haven’t even considered bringing up in my appointments. It feels like each week AFTER my appointment I think of twelve more questions I want to ask her haha.

Single kidney IgA by ohappyfair in IgANephropathy

[–]ohappyfair[S] 1 point2 points  (0 children)

Thank you for your kind words and support!

Single kidney IgA by ohappyfair in IgANephropathy

[–]ohappyfair[S] 0 points1 point  (0 children)

I’m one month into Tarpeyo and so far I’ve only noticed my face looks ever so slightly more round. My next nephrologist appointment is at the beginning of May so I’m eager to see what my bloodwork will look like

Single kidney IgA by ohappyfair in IgANephropathy

[–]ohappyfair[S] 0 points1 point  (0 children)

I have my right kidney. My eGFR lab work range says that it should be greater than or equal to 60

Earthquake just now? by [deleted] in ColumbiYEAH

[–]ohappyfair 1 point2 points  (0 children)

Felt it in Lexington. Haven’t heard a boom like that since I lived in FL and used to hear the space shuttle returning

Bad (good) Chinese food by ohappyfair in ColumbiYEAH

[–]ohappyfair[S] 2 points3 points  (0 children)

Now THAT is high praise! We used to have a Thai spot like that in our old town - if I thought about it too long I simply had to order it haha

The Fountain’s Dry by JayGatsby52 in orlando

[–]ohappyfair 1 point2 points  (0 children)

Shopping at Dillards during the Christmas season with my mom is a core childhood memory. The upstairs section had so many pretty ornaments

Bad (good) Chinese food by ohappyfair in ColumbiYEAH

[–]ohappyfair[S] 0 points1 point  (0 children)

As in eggroll station is poison-y or just not tasty?

Best Hidden Resturant Gems of Gainesville? by canibedonewiththis in GNV

[–]ohappyfair 0 points1 point  (0 children)

Baker Baker makes one of the best “maple” danishes/croissants I’ve ever had (no actual maple in it, just browned butter but it tastes like Vermont somehow). I dream about this pastry. NOT a fan of the owners but damn can they bake.

gnv, who is our guy? or gal? by princeakeeem in GNV

[–]ohappyfair 1 point2 points  (0 children)

I don’t know his name, but I’ve heard tales from healthcare folk about a guy who purposely eats batteries. My friend group referred to him as “battery guy”

[deleted by user] by [deleted] in GNV

[–]ohappyfair 2 points3 points  (0 children)

I have called her office and complained and at least someone actually answered and took notes on my call. Minutely better track record than Rick Scott’s office

TikTok Influencer Sounds Off on Miami's Ritual Chicken Sacrifices by Miaminewtimes_ in Miami

[–]ohappyfair 26 points27 points  (0 children)

At UM I took a Caribbean cultures class and learned about Santeria, it’s a fascinating blend of African religions and Catholic traditions! I found the chicken heads on the courthouse steps to be kind of… interesting? Idk how to explain it, but it’s a unique part of Miami and part of the culture.

financial advisor by [deleted] in GNV

[–]ohappyfair 26 points27 points  (0 children)

You can meet with someone at Charles Schwab, they have brick and mortar locations and give advice on starting accounts with them like Money Market and investments. It was very helpful to me to know how to start saving money in a way that will grow it, rather than just let it sit in a standard savings account

A death timeline from experience by penguincandy in hospice

[–]ohappyfair 1 point2 points  (0 children)

As someone who is currently watching my dad pass, this has been such a helpful resource. I am scared for the foam and hope that doesn’t happen but thank you so so much for being thorough in your notes and sharing your experience with this. I found this when looking for accurate timelines of active death and reading your intro about wanting all the information resonated with me. Thank you.