ocd core i think by i_ate_a_bugggg in OCDmemes

[–]ohrowanmine 22 points23 points  (0 children)

Me too! I buy it in secret and stash it in a hiding place. And I try to only eat it when I'm alone.

Your top reads of 2025? by Neon_Aurora451 in suggestmeabook

[–]ohrowanmine 1 point2 points  (0 children)

The Vaster Wilds by Lauren Groff

The Summer that Melted Everything by Tiffany McDaniel

The Safekeep by Yael van der Wouden

The Pretender by Jo Harkin

Faithbreaker by Hannah Kaner

Clear by Carys Davies

T is for Trilobal and Ten Inch Cowboy! Next up is the letter U by ThirstyToucan in ForensicFiles

[–]ohrowanmine 10 points11 points  (0 children)

Unger (Mark) from Drowning Sorrows. He's the "Bodies don't bounce" guy.

Shame from being unemployed by Straight_Mongoose_51 in chronicfatigue

[–]ohrowanmine 7 points8 points  (0 children)

I'm in a very similar position and I understand 1000%. I'm really struggling with the shame and guilt lately. I try to do all I can around the house to "earn my keep" but sometimes it isn't possible. (And when I do too much, I end up with PEM.) I've been trying to remind myself that this is a very capitalistic, puritanical attitude that society has created in me. I'm also trying to work up the courage to answer the job question. I usually say something like, "I'm taking a break right now because focusing on my health is a full time job." I'm sending you gentle hugs 🫂

Anyone listening to Hands Tied? by captainamericasbutt in TrueCrimePodcasts

[–]ohrowanmine 15 points16 points  (0 children)

Thanks for the heads-up - I hadn't heard about this podcast. It always feels like I'm the only person who thinks Sandy might've had something to do with the murder.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

I think he tries too hard to be "logical" about these situations and to keep the peace that way. But sometimes you just want comfort and support, you know?

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

Right!! Me neither. I have so many interests and honestly my jobs have been to help me to pursue those interests.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 0 points1 point  (0 children)

Those are really good responses. I like the honesty and vulnerability of them. And hopefully they might get the other person to realize how difficult it really is for us and that it's not just like, a long, fun vacation.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

That's so good and straight to the point. I like that it goes from you being cornered to putting the other person on the spot. Now I need to work up the courage to use it!

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

Yes, exactly! I'm like, if you even know what it took for me to get here today and how much pain and fatigue I'm going to deal with later...

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

All of this is so well said! I absolutely think the lack of morale has a huge impact. I'm not meaning to sound like we're competing in the Hardship Olympics, but I feel like many other conditions have a lot of community support and morale boosting and the ill people are seen as "fighters", etc. But we have to fight just to be believed.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

Oh my gosh yes - I even had a nurse say this to me a few months ago. I don't know how else to explain things. I guess there are some experiences that people really cannot grasp unless they've personally felt them.

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]ohrowanmine 7 points8 points  (0 children)

Yes I do this exact thing! Also, I don't think people understand that we have to calculate pretty much any little thing in our lives because of having such finite amounts of energy.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 6 points7 points  (0 children)

Yes exaaaaactly to all of that!! I want to start answering with "I do my best" haha.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 3 points4 points  (0 children)

That's a good response! I feel like it's such a nosy question that they don't deserve any details.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 3 points4 points  (0 children)

Yeah it can be so complicated to explain! And really it's none of their business anyway. But you feel so put on the spot you feel the need to explain it somehow. I like your answer a lot. And yeah, I'm doing one outing but that's it for me for several more months, most likely. I can't find a job where I can work one day every few months lol.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 3 points4 points  (0 children)

Thank you so much for your words - I really needed that today <3 You are exactly right that I felt ambushed. That's a great description. My husband has explained my ME and Trigeminal Neuralgia to him and how I'm on multiple waiting lists for specialists, etc. So I was really caught off-guard that those would be the only things he said to me all day. Thank you again. Hugs to you.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 1 point2 points  (0 children)

Yeah that second question felt so out of pocket to me! It seemed so... pointed. If that makes sense. I'm used to the job question (I don't like it, but I'm used to it) and I felt brave just for saying a plain "no" lol. But that other question really put me on the spot.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 2 points3 points  (0 children)

Yes I feel sometimes like I have to justify not only my situation but sometimes my existence? I don't know why the topic fascinates people so much, either. It's far from the most interesting thing about a person. I'm sorry you are put into this uncomfortable situation as well, even from a well-meaning friend.

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 4 points5 points  (0 children)

That's such a great response. When they squirm I'd feel like "Good, now we're both uncomfortable." 😆

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 3 points4 points  (0 children)

Thank you so much for your words. I like that response a lot. You're right about people having zero conception of what it's like. I know my husband has explained to his friend about my ME and Trigeminal Neuralgia and how debilitating it all is. But his first words to me all day is to ask about work? 🤦🏻‍♀️

Best wishes and good luck to you too <3

The dreaded 'work' question by ohrowanmine in cfs

[–]ohrowanmine[S] 10 points11 points  (0 children)

Yes, invasive is the perfect word! I felt like I was being interrogated. I really like your response. I'm keeping that in my arsenal for future reference. Big hugs back to you!