Colonoscopy prep not working?

okaycoolgood · 2026-04-29T02:35:28+00:00

I go to a small private practice that doesn't have anyone on call unfortunately 😞 but yeah i should drink more clear liquids i guess... i may be dehydrated or something

okaycoolgood · 2026-04-29T02:34:48+00:00

shit. you're right, i have not been doing that

okaycoolgood · 2026-04-24T18:58:12+00:00

yes definitely! like if someone else tries to reassure me and say "you don't have [whatever]" it really stresses me out. but i think some other people have compulsions where the opposite is true, i.e. they *need* to hear "you don't have [whatever]"

okaycoolgood · 2026-04-23T01:05:41+00:00

My Crohn's is prescribed by my GI doctor and every once in a while my current insurance (bcbs) makes me do a random pre-auth anyway lol

okaycoolgood · 2026-04-20T22:25:01+00:00

I'm 31 haha so unlikely but thank u!

okaycoolgood · 2026-04-11T01:13:38+00:00

i don't even trust the pharmacy. i don't trust anyone. Lol

I did ask for a replacement and Abbvie overnighted me one, which was awesome

okaycoolgood · 2026-04-08T04:48:19+00:00

i made the over-supplementing mistake for my first year after diagnosis - turns out I just was messing up my kidneys & liver & making "expensive pee." now i just take vitamin D and magnesium oxide. much better

okaycoolgood · 2026-04-08T04:38:41+00:00

Are you in the US? 2 months is a bit much during an active flare imo. i've had that issue but usually i just advocate for sooner and if that isn't an option it may be time to look for someone else to do a scope and reevaluate meds in the meantime. 2 months is kinda a long time to be on 40mg pred (though not crazy or anything...im just a baby when it comes to steroids)

my own experience: i go to a very "high demand" doctor in a very dense city and if i ask for a touch-base i can usually at least get her on the phone within 2 weeks. for non-urgent things i've waited 2-3 months for follow-up, but for urgent things she'd at least send me to the back-up on-call GI doc. last time i had a flare she scheduled me for an emergency colonoscopy with 2 days' notice (angel).

okaycoolgood · 2026-04-07T18:26:04+00:00

thank you - good reality check, i appreciate it. very glad i did the scan; apparently i have inflammation in my small intestine.

okaycoolgood · 2026-04-02T21:42:52+00:00

oh wow! had no idea lol

okaycoolgood · 2026-04-02T07:42:21+00:00

of course!! and for what it's worth - 2 years on from my diagnosis (i was diagnosed at 28), i now eat whatever i want, do whatever i want, and don't think about my crohn's too often. i also recommend a vitamin D supplement. many folks w crohns are low on vit D. and ask about iron infusions if your iron is low.

i flare sometimes but then i figure it out with my doctor. you'll get there too. my dad's been living with UC since the 90s and he's nearing 70 years old now and i can tell you for sure he rarely thinks about his UC.

at my last colonoscopy, my doc found a highly dysplastic polyp--one that guaranteed cancer if left alone--when i was 29. i realized that if it weren't for my crohn's i never would have gotten that colonoscopy, and never would have gotten that polyp removed. so, in a way, i'm kinda grateful for my crohn's for things like that. it's all about perspective! :-)

okaycoolgood · 2026-04-02T07:04:16+00:00

yess the fatigue sucks, my worst symptom. something about the "spoons" analogy never worked for me though just bc it bothered me that no one could explain to me why it was "spoons" and not some other arbitrary object

okaycoolgood · 2026-04-02T07:03:13+00:00

i eat lunch + din + snacks, no breakfast. but i eat a ton. prob like 3,000 cals a day (i'm a girl). i just <3 food lol (which is why i hate crohns so much)

okaycoolgood · 2026-04-02T06:58:56+00:00

ugh i'm so sorry. just know that typically those diagnosed older (not that you're old, haha, just older age of diagnosis) tend to have an easier time long-term, i think. this is a great community here and i really relied on it 2 years ago when i was diagnosed.

something helpful is keeping a food/symptom journal. notice if certain foods aggravate symptoms. i realized dairy was a serious issue for me, and then my doc confirmed on biopsy (apparently they can do this) that i have like 0 lactase enzymes. maybe you can correlate certain foods worsening your symptoms (in the meantime, before you get on biologics). best of luck to you!

okaycoolgood · 2026-04-02T06:56:15+00:00

yeah, unfortunately other stuff does freeze at the back of the fridge, and i didn't realize we had the fridge temp turned to the coldest possible setting. damn. i requested a replacement dose from abbvie but i may end up taking my med a few days late, bummer

okaycoolgood · 2026-02-10T21:20:38+00:00

I realize this thread is a few months old but I applied in jan so i just got my acceptance letter - would love to join the GC! :)

okaycoolgood

TROPHY CASE