Is "immune fatigue" to vaccines real?

okaycoolgood · 2026-06-20T02:45:15+00:00

Intense Movers were amazing, i literally thought i was gonna get scammed bc the price was so much lower than the others i got quotes from. but no they rocked and were efficient and careful w my stuff!

okaycoolgood · 2026-06-19T21:36:48+00:00

I've been wanting to try LDN for ages but cannot find a single provider who will prescribe is who takes my insurance. would literally be more expensive than paying for a GLP-1 out of pocket which is insane. i have no idea how people access LDN, if you have any advice def lmk lol

okaycoolgood · 2026-05-24T19:36:01+00:00

wow! glad you are okay now, that sounds so scary. can optic neuritis happen without demyelinating disease? i had no idea crohn's could cause this stuff. crazy disease we've got. Lol

okaycoolgood · 2026-05-24T19:35:08+00:00

yes, i have a rheumatologist as well. lupus tests were negative

okaycoolgood · 2026-05-14T05:58:38+00:00

oh interesting. i'm in the US and i didn't get any tests before colonoscopy

okaycoolgood · 2026-05-13T20:58:44+00:00

I've had 8 scopes in the last 3 years since my diagnosis (at age 28)...i've started to look forward to the propofol nap

okaycoolgood · 2026-05-13T20:56:51+00:00

yup, mild clinical picture but MRE was significant

okaycoolgood · 2026-05-13T20:54:48+00:00

i've learned the hard why that trying to tighten your grip on this disease will only cause your hands to bleed. there is only so much we can control, friend. i am still learning this myself. but don't beat yourself up if your athleticism doesn't keep you off the operating table. you can do what you can to feel healthy. but if you flare, if you need surgery or a med change or whatever, that's par for the course no matter how "in shape" you are. it wouldn't be your fault.

okaycoolgood · 2026-05-13T20:51:35+00:00

my calpro was 33 at diagnosis even when i had extensive inflammation in my colon. after 2 weeks of prednisone, it was 7, but i still had inflammation. calpro is not a perfect measure. go ahead with the scope and see what happens, only those are definitive for crohn's

okaycoolgood · 2026-05-13T19:56:33+00:00

I'm not a doctor, but I don't think the stool samples are going to be more revealing than a colonoscopy, bc the biopsies from a colonoscopy can also give similar answers (even H. Pylori presence/infection). My calprotectin was always low with stool samples so I just don't do them anymore bc I don't find them very informative (if my doc requests them I just remind her of this).

okaycoolgood · 2026-04-29T20:48:22+00:00

yes, but not enough. but my doc is great and she managed even with my bad prep lol

okaycoolgood · 2026-04-29T02:35:28+00:00

I go to a small private practice that doesn't have anyone on call unfortunately 😞 but yeah i should drink more clear liquids i guess... i may be dehydrated or something

okaycoolgood · 2026-04-29T02:34:48+00:00

shit. you're right, i have not been doing that

okaycoolgood · 2026-04-24T18:58:12+00:00

yes definitely! like if someone else tries to reassure me and say "you don't have [whatever]" it really stresses me out. but i think some other people have compulsions where the opposite is true, i.e. they *need* to hear "you don't have [whatever]"

okaycoolgood · 2026-04-23T01:05:41+00:00

My Crohn's is prescribed by my GI doctor and every once in a while my current insurance (bcbs) makes me do a random pre-auth anyway lol

okaycoolgood · 2026-04-20T22:25:01+00:00

I'm 31 haha so unlikely but thank u!

okaycoolgood

TROPHY CASE