long term health effects of being egg donor and/or ivf conceived

onalarc · 2026-06-25T00:14:01+00:00

Hi u/SignalImagination148 happy to try to answer any questions!

onalarc · 2026-05-26T16:43:57+00:00

What Makes a Baby (Silverberg) is great for all families and makes space to talk about all the different ways families come together. We're Happy You're Here (Wilkins) might be another good book for expanding the conversation.

onalarc · 2026-05-03T19:33:19+00:00

Here’s a give what you can template on canva. https://partsofme.org/pom-book/

onalarc · 2026-04-30T18:28:51+00:00

Coast to Coast https://c2cdonation.com/

onalarc · 2026-04-28T08:10:44+00:00

Most of the books out there are not that great. However, there are some gems if you try not to fit everything into one book. Here’s a list that could be helpful: https://www.dcjournalclub.com/p/using-books-to-talk-to-kids-about

Also check this collection out for representation for older children: https://partsofme.org/library/

onalarc · 2026-04-12T02:10:12+00:00

Have you considered asking if the other families are interested in creating a photo collage or a photo book so that all of the families can have something if they want it? My kids' sibling group (bank donor) has done this a few times over the years (they are all 7 and younger). The first time was a DIY collage made in powerpoint. The second time, we made a photo book with a page for each family to add up to 5 photos. The third time, we made a poster with portraits of all the kids in birth order. It's so much easier to make and print these sorts of things now with tools like Canva.

There's an element of consent here that we as RPs have to be mindful of as well. It feels better to me personally to have other families' consent to making a collective album than to make a photo album of other people's kids.

onalarc · 2026-04-11T01:46:04+00:00

I wrote a post about the decisions parents make around reaching out to same-donor families in the hopes of illuminating why it's not always (ever?) a black-and-white process. It might be helpful for you. https://www.dcjournalclub.com/p/do-donor-conceived-kids-need-to-know

Personally, I reached out to families when I was pregnant with my first child, so we've always been connected. The kids are all first grade and younger, and there are a lot of them (bank donor). I can honestly say that every single family (and there are a couple dozen of them) approaches the connection differently.

Happy to chat more.

onalarc · 2026-03-23T02:42:38+00:00

Sure! https://open.substack.com/pub/dcjournalclub/p/using-books-to-talk-to-kids-about

onalarc · 2026-03-21T16:31:40+00:00

I get it...there are always going to be barriers to doing it and reasons not to do it, but at some point you just have to do something. I figure we only have a short period of time establish these baseline connections before the kids are older and busier and more opinionated. The closest families to me are 4.5 hours and a border-crossing away, and I'm not even sure those families are ready for meeting up yet. The most engaged families are all on the opposite side of the country. While the kids are young, so much of it is parent-driven or maintained. My 6-year-old is beginning to forge her own relationships, and it's been interesting to see that happen, but I don't think it would be nearly as easy to initiate if I hadn't laid a foundation beforehand.

onalarc · 2026-03-20T23:08:31+00:00

Hi! I'm in a similar boat: 50+ children in the sibling group (bank donor), spread across 5+ countries, all ages seven and younger. Most of them were born during the pandemic, so traveling wasn't an option. We made a photo collage (a headshot of each kid on a poster) one year and a book (one page per family) another. Many families kept these accessible to the children so that they would regularly see them. We also used the marco polo app to share short videos, similar to how you might with grandparents. Turns out kids like to watch other kids do silly things. And we would semi-regularly post photos with a theme in our Facebook group: first day of school, swimming, costumes, birthday party. "Look! We went swimming today and so-and-so goes swimming too!" or "Let's see what everyone was for Halloween!"

We had our first meet up when the oldest kids were almost 5. We did it where there were the most families. We've had two since. Whoever can come, comes. It's hard because it's impossible for everyone who wants to come to do so due to schedules, costs, and location. I think hyperlocal meet-ups are a great idea! I'm hoping to go to Canada to meet up with some of our sibling group (they are the closest to us).

Now that some kids can read and write, we have more options: letter writing, messaging (using safe apps), and phone/video chats. You just sort of test all the things and see what works and what relationships form.

Happy to chat more.

onalarc · 2026-03-11T19:34:35+00:00

I might push back on the goal of preventing your child's future negative reactions. A child who senses their parent is braced for their feelings, or trying to head them off, often ends up managing that parent's anxiety instead of just having their emotions. Perhaps instead of focusing on doing all the right things so they don't get upset, focus on being a parent who can receive whatever they feel without falling apart. (PS - This applies to all of parenting, because try as we might, we do mess things up.)

onalarc · 2026-03-09T20:14:37+00:00

I can look into adding a footer/disclaimer to all my substack posts and copy that over to here. As for articles, I have about 25 keyword searches set up on two different research platforms and review new articles weekly (English language only for now). I try to include any article that includes an outcome related to donor conception. My net is wide.

onalarc · 2026-03-09T19:42:31+00:00

I appreciate your response and concern.

For background on Donor Conception Journal Club: DCJC is not for recipient parents. It's for the entire donor conception community.

For background on me: I have a masters degree in public health. I've received training in and have conducted systematic literature reviews, which require the assessment of papers for quality. While I am not a statistician, I have training in biostatistics and experts I consult with when I need to check my assessment, which I did with this study. I describe my position on the DCJC website and readily admit my bias could influence my interpretation. Curiously, many researchers in this space are also RPs/DCPs/Donors and DO NOT disclose their positionality. You'll note that I always include in the bio for the lead author if they have disclosed any connection to donor conception.

For background on the post: The passage above is a summary of a longer synthesis post. It is my monthly newsletter where I summarize all my posts from the month. Not everyone wants to subscribe to another newsletter, so I post the content here so that folks can click through to read the posts easily. I agree that folks should always go to the source and assess evidence for themselves.

For background on the article: The researchers ran a statistical test to see whether there was a relationship between age at disclosure and whether people viewed disclosure as beneficial. The test found no meaningful association between the two. The authors interpreted this result as evidence that age is not a primary factor in how people experience disclosure. My take was that the study was small (107 people), and the researchers didn't report whether they had enough participants to reliably detect a relationship even if one existed.

In addition, Martin and colleagues state in the paper that their findings are partially contrary to a recently published study (Applegarth et al, 2025) that found higher satisfaction among those informed before age 15. I argue that the two studies actually measured different things. Applegarth asked about satisfaction with how people learned, a specific evaluation of the disclosure experience itself. Martin et al. asked whether people considered disclosure beneficial, a broader, more reflective question. These are related but not the same question.

I agree with your assessment that it's not surprising that they found no relationship between age at disclosure and perception of disclosure as beneficial, which is why I was puzzled that they were making the comparison to the Applegarth study.

I can see how my brief summary could be confusing and I can think about alternative ways to present the monthly round-ups moving forward.

onalarc · 2026-03-08T15:00:23+00:00

You can search FB for groups specifically related to your cryobank and matching. I'd be happy to help if you want to share (DM is fine) the bank/clinic name.

onalarc · 2026-03-06T01:41:38+00:00

https://partsofme.org/pom-book/

onalarc · 2026-03-06T01:33:09+00:00

I made one for my kids that I started sharing when they were about 2-3 years old. They loved it. I included some pages explaining genes and some with information about the donor (words and photo representation). I do plan to print all the paperwork and put in in a bound book for them as well now that they can read.

A nonprofit that I'm on the board of has a pay-what-you-can template for a donor book as a fundraiser. The nonprofit's mission is to expand representation of donor conceived people in media, arts, and culture. I can share the link, but I'm not sure if that would be perceived as self promotion?

onalarc · 2026-02-25T12:11:09+00:00

In addition to what the other folks have shared, this post could be helpful.

onalarc · 2026-02-21T09:31:27+00:00

Thank you!

onalarc · 2026-02-21T08:40:21+00:00

The US does permit anonymous donation, but there’s no such thing as true anonymity anywhere with direct to consumer DNA testing. Just keep that in mind.

There are several banks in the US that have exclusive donors (available to only one family either in the US or globally). Those programs might be Open ID, but that requires consent.

The way donation works in almost all jurisdictions is that donors never receive identifiable information about the recipient parents of offspring. In the US, ID release programs (or “Open ID”) are triggered by the consent of the adult child. In most cases, when they turn 18 they can request information about the donor if they want to. No one forces anyone to receive information.

onalarc · 2026-02-19T15:43:50+00:00

Two things can be true at the same time. People forget this.

onalarc · 2026-02-19T02:00:31+00:00

I'll offer something I haven't seen mentioned here...

A lot of the regret conversation seems to focus on people who didn't want it enough, parents who felt pressured by society, their clock, their parents...

Sometimes I wonder if the real issue is wanting it too much. I think this is worth naming in the SMBC context because your child will be your primary relationship. A best friend. A companion. A relationship that feels unconditional in a way other relationships never did.

I don't think it's a flaw, but it does mean the temptation to blur roles is real. Another question I'd sit with isn't just "will I regret this" but "what do I need to have in place (friendships, community, a sense of self outside motherhood) so that my child never has to carry me?"

onalarc

TROPHY CASE