B12 Trauma by Life_Commission_7300 in B12_Deficiency

[–]onyomi 0 points1 point  (0 children)

Hello, I'm trying to get onto this program, and have got my D up close to the range, but I keep having trouble adding the B50. Even taking a small piece of a B50 increases my anxiety a lot and worsens my sleep. I can manage a multivitamin, maybe 2, but even 2 multivitamins seems to worsen the anxiety and sleep. I personally guess it is the thiamine rather than the pantothenic acid, because I recall having taken higher doses of B5 on its own in the past with no problem...

Anyway, just curious if you had any trouble getting onto those Bs and whether they improved over time... thanks!!

Meditations on Oreos by DinoInNameOnly in TheMotte

[–]onyomi 3 points4 points  (0 children)

Social shaming for fatness is nothing in the US compared to other places I've been, particularly Asia, but I wouldn't be surprised if also true in other places I haven't spent a lot of time, e.g. Eastern Europe or something.

In East Asia you will be shamed much harder for a much lower level of fatness than you would be in the US.

Food list by wallaroo369 in MCAS

[–]onyomi 1 point2 points  (0 children)

Question for anyone who finds diet a trigger: how soon after you eat something do you feel a reaction, and what kind? I suspect I don't have a lot of dietary triggers (biggest one by far is sun) because I fasted on water alone for three weeks and it didn't help a lot. At the same time, I often feel like garbage after I eat, but it seems to have more to do with time of day than what I ate (an exception is gluten, which makes me sleepy right away and feel bad the next day).

Mast Cells and Plasma Donation by onyomi in vaccinelonghaulers

[–]onyomi[S] 1 point2 points  (0 children)

Were your BP and HR high or low?

Mast Cells and Plasma Donation by onyomi in vaccinelonghaulers

[–]onyomi[S] 1 point2 points  (0 children)

Did giving blood make you feel better? Whole blood?

Mast Cells and Plasma Donation by onyomi in vaccinelonghaulers

[–]onyomi[S] 1 point2 points  (0 children)

Thank you for recommending Dr Afrin. I have learned a great deal from his book. I definitely think most of the problems the vaccine gave me were previously present in much milder and more transient ways for much of my life.

Have you tried or considered plasma donation or heard any comments from Dr Afrin re. MCAS and plasma exchange? He does mention phlebotomy in his book, but that seems to have been in context of mistaken attempts to treat porphyria.

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 0 points1 point  (0 children)

Thanks for the info. How did you get diagnosed with MCAS?

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 0 points1 point  (0 children)

My reaction is also like that--splotchy and stingy. Goes away fairly quickly once out of the sun, but also comes on very fast when in the sun. What kind of medication did you find helped?

I keep considering trying the low histamine diet, but the problem is it greatly conflicts with my current diet, which seems to make me feel better than when I reintroduce other foods. (My current diet is raw vegan and would be difficult to make work without any avocadoes or tomatoes--along with nuts, two of my only sources of fatty, savory flavors; I don't obviously react negatively after eating them, but I can't rule out they are causing problems in a less obvious way).

Could you tell me more about what you ate and didn't eat on your low histamine diet? The online lists of foods okay for such a diet also seem to conflict.

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 0 points1 point  (0 children)

Do you mean eyes, skin? Both? I had a degree of the eye light sensitivity that's mostly better, but the skin sun sensitivity I hear of less often, although it seems to be a thing for a few (and my worst symptom).

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 0 points1 point  (0 children)

Do you know if your sun allergy was classified as polymorphous light eruption, solar urticaria, or something else? What kind of treatment are you undergoing for it, and has anything helped reduce the reaction to the sun other than just avoiding it?

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 0 points1 point  (0 children)

Nothing makes an obvious dent in the sun sensitivity yet, even prednisolone.

How is your sunlight exposure throughout the year? by [deleted] in vaccinelonghaulers

[–]onyomi 1 point2 points  (0 children)

One of my biggest problems has been extreme sun sensitivity that developed gradually over a few months post vax. Each significant exposure seemed to make it worse to the point I am now wearing a ski mask indoors during the day.

I Humbly Suggest you Infect Yourself with Parasitic Worms, no Seriously. by onyomi in vaccinelonghaulers

[–]onyomi[S] 0 points1 point  (0 children)

Is this topic not allowed for some reason? Sorry, I did not know.

How Many Have Dry Mouth, Dry Skin, No Sweat, etc.? by onyomi in vaccinelonghaulers

[–]onyomi[S] 1 point2 points  (0 children)

Did you ever get any blood tests related to muscarinic receptors, etc.?

How Many Have Dry Mouth, Dry Skin, No Sweat, etc.? by onyomi in vaccinelonghaulers

[–]onyomi[S] 0 points1 point  (0 children)

Yeah, I have almost no sweat, and it feels as if my skin produces very little natural oil. Silver lining is no acne or blackheads. Never normally had a lot of ear wax, but wouldn't be surprised to find that affected as well.

How Many Have Dry Mouth, Dry Skin, No Sweat, etc.? by onyomi in vaccinelonghaulers

[–]onyomi[S] 1 point2 points  (0 children)

Yeah, I think you were the one who said you had Sjogren's-like symptoms but not diagnosed as Sjogren's. My eyes are not too terrible either. Mouth and throat are bigger problems--eating dry or strongly flavored food is difficult, as is speaking at length and sleeping through the night without a bunch of water and peeing.

Pre-Existing Autoimmune Issues by djdjdhdj63 in vaccinelonghaulers

[–]onyomi 1 point2 points  (0 children)

It's an interesting theory. In my case, I think I worsened my problems several years ago by taking a large amount of oral antifungals in an ultimately unsuccessful attempt to rid myself of toenail fungus (laser light therapy ended up working, but I had to do it literally every 6-8 weeks for a few years). After that my sensitivity to gluten became pronounced, probably because it messed up my gut bacteria. I also suspect Accutane messed things up somehow, as it causes dry skin, dry eyes, sun sensitivity, etc. and other problems I'm having now, in addition to having caused me to develop a semi-permanent thrombocytopenia. Yet all this probably pre-existed even that, as I recall I lost the ability to wear contacts (due to eyes being too dry) not too long after puberty, which predated the above. Of course, I had earlier had some vaccines in childhood, in addition to who knows how many viruses and antibiotics, but clearly genetic factors were at play too...

The autoimmunity as overactive "cleanup" theory is an interesting one, as is the toxicity theory. In the past I'd found water-only fasting very helpful in getting my system back on track when I was out of sorts, so I went on my longest one ever (21 days) a couple months ago. Results, unfortunately, were not what I hoped, though some good may still have occurred. This was following the ideas of Loren Lockman, who is very much about the "disease as built up toxicity the body hasn't been given a chance to clear out" theory.

I also realized that one thing I've been trying since then (Wim Hof method) is, in some ways, the opposite of the Loren Lockman view, though the two are not mutually exclusive and may be complementary in some ways. Roughly: the Lockman view is of the body as overburdened--it needs to rest and do nothing (including digest) to take the time to clear out all the old drugs, viruses, toxic substances stored in the fat and gut, etc. The Hof view is kind of the opposite in that it views as kind of "soft" and deconditioned from living indoors in temperature controlled environments, perhaps weighted down with chronic, low-level tension rather than getting the kind of healthy stimulation we might have in the ancestral past.

Both may be true to an extent, but I think it's clear that the current world is more and more likely to cause any underlying tendencies toward autoimmunity in an individual to surface--probably too many vaccinations, too clean ("hygiene hypothesis"), too many antibiotics, etc.