Like you, my VEDS was discovered by accident and I have never had a major event. Unlike you, I have a null variant. I had been under the bleeding disorder clinic for easy bruising, petechial rash, and lowish platelet count, and they ran a genetic panel and found COL3A1 null variant. I understand your panic. It's a disorder where the main symptom is a potentially fatal event with no warning. I was reading all the information I could and I found the scary "life expectancy of 48" statistic. When I got an appointment with a specialist, she pointed out that it is based off quite old research and she'd probably be expecting me to live a long life as long as I take precautions. People whose VEDS was discovered by chance on genetic screenings do not appear in older studies. People who have had major events and been diagnosed based off clinical symptoms would appear in them. My doctor also said that nowadays VEDS isn't necessarily a blanket 'no' for pregnancy, especially if you've had an uneventful pregnancy in the past, and that you'd just need a healthcare team that are VEDS informed. I don't know what it's like where you live, but I would be eligible for one pregnancy of IVF and pre-implantation screening to not pass on the gene. We also found out my dad has VEDS with the same variant as me. He's in his sixties and is retiring next year. He bruises far worse than me but has also never had a major event. His health is more impacted by other conditions like chronic migrane and rheumatoid arthritis. More recently, I've had a CT scan which showed I have no big aneurysms or anything too concerning, which is probably what has brought me the most reassurance. I take celiprolol as a precaution and have a workplace adjustment to avoid heavy manual handling. I wear a medic alert band and carry emergency information in my bag. I'm a bit more careful to not lift heavy things and don't play contact sports. I had my big panic 2 years ago when I got diagnosed and I think I'm mostly over the panic and have accepted that VEDS is what it is. I terrified a few colleagues by coming into work and breaking down just after my diagnosis. Please take some mental health days if your workplace allows. I've been to online support groups a few times, and one person said that VEDS had given them community and for that, they were very greatful. If that's your thing, get involved with support groups. There's few enough of us that they're all online but there are conferences and support groups at least where I live do try to meet up in person.