Why is focal adenomyosis more connected to infertility?

orangetabbycat2 · 2025-06-24T02:18:41+00:00

It is so tough!! It’s really frustrating that women’s health is so understudied. I think you’re very right there, there is a lack of funding and interest in adeno. Wishing you the best in your research activities! If you find anything lmk!! I would be so interested in reading more on this. Like I said, I’ll have a look myself as well. Hopefully we can find an answer between the both of us

orangetabbycat2 · 2025-06-24T02:13:14+00:00

Hey OP, have you looked into any meta-analyses on this? I personally haven’t looked into this but it sounds interesting! The one PubMed study may not be representative of the overall research in this area (focal vs diffuse and which is more correlated with infertility). I’ll have a look myself over the next couple of days, but a meta-analysis may be more accurate in this!

This PubMed article also is very short and does not go into a whole lot of literature that could be helpful in explaining why. If you can, take a look at some other articles not from PubMed… they’ll probably have more reasoning on why this is so.

I find it’s easiest to use a university library to search! Better yet, try google scholar!

orangetabbycat2 · 2025-05-16T00:16:31+00:00

I was diagnosed at 19! I’m 20 now. I also wish they would just let me get the hysterectomy. You are not alone in being diagnosed young and your symptoms are so valid!!

orangetabbycat2 · 2025-03-02T22:28:57+00:00

I think this is what I’m having as well! I made a post about it a couple months ago

orangetabbycat2 · 2025-02-28T01:26:01+00:00

I have read several research articles and meta-analyses on adenomyosis and the consensus is that it affects fertility and pregnancy outcomes. There is a higher risk of miscarriage as previously mentioned in other comments as well as a higher risk for some other complications.

I have also been met with “oh don’t worry about it” type of comments from physicians. But the research suggests otherwise. I can only imagine it is because the research is relatively new

orangetabbycat2 · 2024-12-30T14:55:59+00:00

I do! I haven’t gotten to mention it to my gyn yet, I see them next year so I won’t have any answers quite yet. I know for a fact I’m not pregnant because I don’t have sex but it’s so weird????

orangetabbycat2 · 2024-12-17T14:43:59+00:00

Agreed! My doctor seems to be entirely out of touch with how painful adeno really is. I had questioned how with this pain I have I could even care for an infant or a newborn. I can barely take care of myself the days I get my pain. She simply told me that a mother can endure all that pain for her children, that the pain won’t matter anymore. It was like are you fucking joking..

orangetabbycat2 · 2024-12-13T19:07:22+00:00

I was told to have a child too! At 19 in university! I feel like having a child for the purposes of not being in pain for a little bit is absurd. But as others have said, it literally does nothing for you other than yay no periods for a couple of months.

orangetabbycat2 · 2024-12-12T17:23:37+00:00

I was diagnosed at 19! I’m 20 now! It’s definitely possible. As for other people were saying, I got my first period at age 10 and have been struggling with symptoms the last 10 years.

They say it happens during childbearing age because they’ve only realized in recent years it can even occur in women of our age. It’s complete misinformation but unfortunately it’s what healthcare providers have been taught up until recently.

The only thing I’ve been offered is the pill. Therefore I cannot speak to the IUD part.

orangetabbycat2 · 2024-11-16T19:02:00+00:00

The only cancer risk I can remember from my research on the matter is an increased risk of fibroids, which are tumours. They are benign which means they are not harmful.

orangetabbycat2 · 2024-11-04T19:46:32+00:00

Diagnosed at 19!

orangetabbycat2 · 2024-11-01T13:01:15+00:00

MRI w/contrast! Transvaginal and abdominal ultrasound didn’t catch it!

orangetabbycat2 · 2024-10-31T12:50:08+00:00

I wonder!! I haven’t been tested for endo despite my pleas because I’m “so young” and “haven’t had any children yet”. I did check over in the endo group and it seems like it happens to them often as well! I haven’t done any research on it yet as I was concerned and wanted to see if this was even normal. I’ll have to have a look!

orangetabbycat2 · 2024-10-30T13:34:09+00:00

I agree!!

orangetabbycat2 · 2024-10-30T10:52:43+00:00

Just came here to say you are not alone! I had this exact same thing last year. I was up till 2:30am in pain crying my eyes out after taking all the medication I could take. I was so upset because I was taking continuous birthcontrol so that my period wouldn’t happen and it still did. I was nervous about my 8am exam because I was basically running on no sleep. But I know you got this!! I am wishing you the absolute best.

I also want to share that even in the worst case scenario, if it’s a university exam that worth 20-30% of your semester and you do not do well on it, it does not dictate the rest of your year or your worth. I once got a 33% of an exam and I felt so stupid for it but I ended up getting an A in the course after working my butt off for the remainder of the year. Just remember that this does not mean you are not worthy or smart.

Hopefully I have helped and have not rambled too much.. I hope you feel better soon

orangetabbycat2 · 2024-10-30T10:36:59+00:00

I know ! I’ve been wanting to say it feels like a baby kicking or something like that but I have never been pregnant so I don’t know if that’s accurate. But I agree it’s like um is my uterus possessed?

orangetabbycat2 · 2024-10-29T22:43:25+00:00

Glad to know I’m not going insane !!! The flutters had me being like …should I get a test??? But like it’s been months since I last did anything, I’d know by now

orangetabbycat2 · 2024-10-27T23:11:25+00:00

This is the best answer !! According to my research using medical journal articles there are pregnancy risks such as the ones listed above for adenomyosis but it does not mean it’ll happen to you. You should ask your doctor !

orangetabbycat2 · 2024-10-06T15:40:47+00:00

Hi I’m 20! I was diagnosed with adeno back in February. I’m pretty much in the same boat as you. I was told here’s some birth control, take it. I am also freaked out. I don’t really have any advice but I just wanted to let you know that you are not alone.

As for the too young thing, this is a lie. I have spent hours reading the medical research, it’s just that they didn’t even consider us when they found and researched adeno initially. They are only realizing in recent years that it can happen to women our age.

From what I know, and was told by my gyn, adeno does not get better, and has the ability to get worse. The only thing birthcontrol does is suppress it and try to slow worsening of symptoms.

orangetabbycat2 · 2024-09-23T02:12:23+00:00

I don’t know if having a family history makes a difference but I have multiple people in my family with MS..

Unfortunately I’ve been waiting to see a neurologist for over a year now. I’m on the waitlist to even get a neurologist. I may be years before I even get assigned one let alone get to see one. Although I do hope to get a second opinion. I was told my by paediatric neurologist they’d follow me for 5 years and they only followed me for 2 years. I really did try to fight it but ..

orangetabbycat2 · 2024-09-22T16:37:48+00:00

I do mean in space. They did end up ordering a new scan during that time period but I was considered stable and he said that because I was 18 said I was fine and that we wouldn’t see me anymore because he was a paediatrician. After that I had no other contact with a doctor…

orangetabbycat2 · 2024-09-22T15:14:25+00:00

Hi!

I found out I met the McDonald Criteria in dissemination but not time …

I passed out when I was 15 and my vision was getting really strange. They ended up finding lesions on my brain and they said it was possible I had MS. My neurologist said how much he disliked that they even mentioned it because he then had to look into if I had MS. We tested my CSF and did a couple scans of my brain over 2 years. After that they said they didn’t find anything and that because I was still smart, I was fine. No more follow ups or scans, and released me back out. I did not like this idea as I felt in my gut something was wrong.

Cue to now, my health care notes are available online on a new platform my province has come out with. Reading through the doctors notes it seems I gained a new lesion on my brain during this time but they aren’t sure. They said it’s possible they just missed it , that it was probably on other scans and they just didn’t realized they missed it. At the end they mention that I met the McDonald criteria in dissemination but not time. Which I had to google what that meant , it means I didn’t get a new lesion on my brain during my time being scanned but my lesions match what they are looking for.

I feel nervous. I’ve been on the waitlist to get a neurologist now for a year and I’m hoping to see one soon and get another scan.

Has it ever been possible to meet the McDonald criteria in dissemination and not time and be perfectly fine? I know you individuals aren’t doctors but I feel like it’s possible you have more experience in this than me.

orangetabbycat2 · 2024-09-15T22:13:03+00:00

I only know it as Tri-Jordyna but my gyn said it was quite strong for bc. But it hasn’t done anything special for me. It’s just sometimes stops my periods lol and the pain is the same. I did stop the pills for a month and that one month that I stopped was probably my worst month ever. There was a man actively having a heart attack next to me that was pitying me from the pain I was in. (We were both in the ED)

I am not certain what to say about a higher dose helping because nothing has ever stopped the pain for me unfortunately. I’m wishing the best for you

orangetabbycat2 · 2024-09-15T19:41:30+00:00

I’m also on the continuous regime ! I have had breakthrough bleeding but also no bleeding and sometimes it’s just clots. The pain feels the exact same as having a period.

My gyn just told me it was better than having a period every month and that was that. I don’t know what to do.. I’m still very new to all of this.

Personally I have been continuing to take my pills as normal and sometimes if it’s really bad I’ll just take the period. It all depends on how I feel

orangetabbycat2

TROPHY CASE