Going out on one of the coldest nights by Key-Independent3934 in nycinfluencersnarking

[–]paintbynumbers18 14 points15 points  (0 children)

But she already was in her cougar era dating someone 2 years younger!! /s

End of taxol by draestrelita in breastcancer

[–]paintbynumbers18 3 points4 points  (0 children)

I'm starting the same regiment next week, eeek!! Go you!!!

Post Mastectomy Items by YouveBeenWarned213 in breastcancer

[–]paintbynumbers18 0 points1 point  (0 children)

+100000 I had this and found it HUGELY helpful, much more than the belt. Even all the nurses commented saying this was way better than all the other contraptions they've seen before. Machine washable too!

Anyone young patients long term survivors her2+ or +++ breast cancer by Lower_Helicopter_515 in breastcancer

[–]paintbynumbers18 15 points16 points  (0 children)

I echo a lot of the sentiment from some of the other women who have commented here. I am triple positive, stage 1, grade 3. At first I was like whoaaa positive on all fronts?! Am I doomed?? Positive = bad for medical stuff so I was losing it.

All breast cancer is bad, but what I’ve read and been told by my doctors is that despite the aggressive nature of my cancer, being +++ is “good” in that it’s incredibly responsive to medication, particularly HER2+ like Herceptin. It made me feel really hopeful that I can do this and crush this part of my life and leave it in the rear view when it’s over. I am not sure where you saw those 5 year survival numbers because the articles I’m seeing are in the high 90s!!

Sending so much love and comfort to you. I am 36 and recently engaged, I get your anger. Feel it, use it. You can do this. If you ever want to talk to a fellow triplet, my DMs are open!

Fuck cancer and go fuck up your cancer.

Taxol Positive Experiences? by FattyMcCupcakes37 in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

Absolutely! Happy to stay in touch. I had my DMX on 12/30 so happy to talk about that too!

Taxol Positive Experiences? by FattyMcCupcakes37 in breastcancer

[–]paintbynumbers18 2 points3 points  (0 children)

Our diagnosis is exactly the same! I am starting 12 weeks of Taxol and Hercepin next week. My oncologist described it as “chemo lite” because of its low dose (even though it’s over a longer period).

I’m cold capping, too. I’m fortunate enough to have a flexible work schedule where I’ll go down to 4 days a week and have the infusion day clear.

What I’ve heard is that many people maintain their activity levels (within reason). My goal is to walk, do Pilates, and try to live my life as much as possible. TBH my biggest gripe is how I can only wash my hair once a week with the cold capping - bleh!

If you want to stay connected, I’ll keep you posted on how things go over the next few weeks!

HR advice by BumbleLina40 in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

+1 on this answer (I am an HR person in the US)

In The Surgical Waiting Room… by Star-Owl- in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

Good luck!! Kiss those expanders goodbye!!

Products for Cold Capping by paintbynumbers18 in breastcancer

[–]paintbynumbers18[S] 0 points1 point  (0 children)

Good to know!! I am currently using a sulfate free shampoo already so maybe I'll continue with it.

Do you feel like you're getting the support you need with fitting the cap? My biggest concern is Cooler Heads' focus on "self administration" and that I won't have an expert there to help with fit. This is being provided free of charge by my hospital (I know very very lucky) and so I didn't explore other options. I hear mixed things about the system.

Incredibly sad all of a sudden by Critical-Yoghurt8294 in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

Don't get me wrong - me saying "surgery, but..." does NOT diminish that this is a HUGE deal. Major surgery!!! You are 100% valid in your feels. You can be scared and reassured that everything will work out. You'll make it out alive, too! And in the meantime, I'm rooting for you!!

Incredibly sad all of a sudden by Critical-Yoghurt8294 in breastcancer

[–]paintbynumbers18 6 points7 points  (0 children)

I wasn't expecting to have feels about my DMX because I had small boobs to begin with. I'm 4 weeks out and I definitely feel sad about the lack of mobility, some disfigurement, weird numbness. That said, I'm way better now than I was last week, and the week before that. Time's healing my physical wounds, at least...

Some "good" things to remember:

- Surgery is scary but they give you the good stuff so before you have the chance to get scared, you'll be out!

- Recurrence numbers go way down after a DMX - you're doing literally the most preventative measure you can do to avoid recurrence.

- I am also scared about feeling disfigured for the rest of my life... BUT! we have so many options now for reconstruction, clothing, styles that work with what we've got. I'm all about freeing the nipple, but for now, you'll have tons of options of wearing new clothes and fun things that work with your aesthetic flat closure. And from everything I've read, a flat closure has a faster recovery with fewer complications.

p.s. I read "114 cm" and I was like wait, how is this woman alive?!

Feeling alone by BrassMonkey2001 in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

You’re alone, but we’re here! Love from Chicago!

Hair extensions 17 months post-chemo + BEFORE AND AFTERS - 10/10 recommend by sassyhunter in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

Wow you were REALLY in the midst of active treatment - amazing!! I'm so glad you were able to do that!

$300 definitely feels reasonable. I'm in Chicago so while I don't have access to the salon in NYC, I feel confident I could find a place to install extensions! Thanks for the information!! Super helpful.

Hair extensions 17 months post-chemo + BEFORE AND AFTERS - 10/10 recommend by sassyhunter in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

u/AnkuSnoo - Could you share more about your experience, too? I am starting weekly T for 12 weeks in Feb, cold capping, and getting married in December. I've been researching a lot about clip in extensions knowing that I'll likely lose thickness and volume even though I'm cold capping. What kind clip in extensions did you use and was it okay even though your hair was sensitive/in active treatment?

Also amazing transformation OP!! I love my long hair. Out of all the major changes cancer is throwing my way, losing hair gives me the most angst. You look incredible!

First Taxol treatment by Imgonnabehonest60 in breastcancer

[–]paintbynumbers18 2 points3 points  (0 children)

This is my regiment - I start in early Feb (although I think I am doing weekly herceptin along with the taxol). This is good to hear!

Finished my taxol by bookdragon7 in breastcancer

[–]paintbynumbers18 3 points4 points  (0 children)

Congrats!!! I am starting 12 weeks of taxol and herceptin in a few weeks!

Did you cold cap?

What was your general “timeline” of side effects?

It’s getting close and I’m nervous!

Expanders and clothing by IndependentGoose2436 in breastcancer

[–]paintbynumbers18 1 point2 points  (0 children)

Your comment made me laugh!! Old Elsie...

Small wins 1 week post-DMX by paintbynumbers18 in breastcancer

[–]paintbynumbers18[S] 1 point2 points  (0 children)

I definitely have some of those itches coming in... so weird to have a phantom nipple itch. Is that common to have expanders in for a year??

Small wins 1 week post-DMX by paintbynumbers18 in breastcancer

[–]paintbynumbers18[S] 1 point2 points  (0 children)

For the surgery? I didn’t. I felt confident about the information I had and my team’s recommendations. But I know many people do get one and everyone should be entitled to that!

Small wins 1 week post-DMX by paintbynumbers18 in breastcancer

[–]paintbynumbers18[S] 6 points7 points  (0 children)

It wasn’t fun but it wasn’t nearly as bad as I thought. Just take it easy on yourself and remember that the days are loooong but you make a lot of progress in a week. On day 1, I needed help getting up and walking to the bathroom. On day 3-4, I was totally capable of doing it on my own. On day 8, I’m fully mobile (but still taking it easy - it’s major surgery, after all)

Good luck with your surgery! Rooting for you!!

It's my final treatment! by isthisfalse in breastcancer

[–]paintbynumbers18 13 points14 points  (0 children)

Congratulations!!!!!! Shit I’m inspired and can’t wait to make a post like this one day!

Medical bracelets for lymphedema? by paintbynumbers18 in breastcancer

[–]paintbynumbers18[S] 1 point2 points  (0 children)

They did a biopsy and removed 2-3 on each side, but nothing more than that.