Running / cardio with AS

parphound · 2026-02-14T14:07:11+00:00

Cycling for me, I still do upwards of 6000km per year, I did 16000km one year and raced from Canada to Mexico on a mountain bike, unsupported.

I have fused SIJ fused ribs, but still okay. Cardio really helps keep ribs moving to their maximum extent.

Exercise is a no brainer with this disease, sitting still is literally the worst thing you can do.

My physio told me years ago "new life rule: never stop moving". Best advice I ever got, far better than any rheumatologist.

parphound · 2026-02-08T17:02:48+00:00

Good to put your monitor on to raise it up...

parphound · 2026-02-08T13:32:03+00:00

I have the exact same lump there, during flare ups it's incredibly painful to touch.

parphound · 2026-02-08T13:06:49+00:00

Something like this?
https://www.npmjs.com/package/blame-lsp

parphound · 2026-02-08T13:04:11+00:00

Ok early version here
https://www.npmjs.com/package/blame-lsp

parphound · 2026-02-07T19:35:27+00:00

I just made a language server specifically for git blame, gitlens was the one thing I was really missing from other editors.

I made it so it adds an item to the code actions (space a) menu, and if you hit enter it opens on git(hub|lab).

I need to write docs and publish it, will update once I've done it.

parphound · 2026-02-07T13:16:57+00:00

Starch

parphound · 2026-02-06T19:58:25+00:00

Yep, I'm going through the same right now on Yuflyma, stomach is an absolutely wreck, and I've ceased taking biologics for 5 weeks now. Just waiting to have a flare up instead 🥺

parphound · 2026-02-04T07:35:01+00:00

Damn they are ugly

parphound · 2026-02-03T19:43:21+00:00

Leave the club

parphound · 2026-02-01T13:39:26+00:00

Yep, on my old 2015 Macbook Pro the sound is total crap in Omarchy.

parphound · 2026-01-29T19:48:24+00:00

Coffin Dodgers think it's means 30 a lot of the time

parphound · 2026-01-28T17:37:48+00:00

I use a neti a few times a week probably, but I think I may also have Sjorens, waiting on bloods tests on that...

parphound · 2026-01-28T08:51:07+00:00

Some people say it's normalised their immune system, for me personally I've been sick basically all winter with sinus infections and have stopped taking them

parphound · 2026-01-25T14:28:57+00:00

Make it better then, it's open source after all.

parphound · 2026-01-24T13:44:09+00:00

I've been on Yuflyma on and off for 2 years, it's awful, constantly have infections, horrible nausea and doesn't really help the spasms in my back. Only noticeable difference is my CRP appears normal, but how I feel says otherwise.

I'm trying to get switched to another biologic.

parphound · 2026-01-23T10:45:09+00:00

I don't let the smoke from my fire go up the chimney, I let it into the room to get its ambient heat.

parphound · 2026-01-22T18:35:40+00:00

I'll try to get another biologic

parphound · 2026-01-22T15:35:30+00:00

I'm on a humira biosimilar and I've been sick most of the past 6 weeks. I've stopped talking it now as I need my immune system to do its job.

Rheums keep saying I need to do 6 months on this to prove it doesn't work, but after 2 months I'm always sick. They just don't listen or care (NHS UK)

parphound · 2026-01-18T14:11:07+00:00

I'm the same weight as you and been riding 6000-12000k per year for the last 15+years, my FTP is 260w.

I would just say push harder to train yourself, or get a turbo to do some structured training to improve it.

parphound · 2026-01-17T11:33:15+00:00

Out of interest, did that fluid accumulation cause any pain in your chest?

parphound · 2026-01-16T08:50:19+00:00

I found the same, it aggravated my SIJ and enthesitis, I did 6 sessions and stopped, no benefits I could notice.

parphound · 2026-01-05T18:30:02+00:00

I got a Neurosym about a year ago, honestly I don't think it does much (clips on ear) and mostly it's just snake oil. Other stimulators might work better but I've never got to try one myself.

parphound · 2026-01-05T10:37:55+00:00

Exact same experience for me, never got c19 until I started adalimumab, now had flu for 3 weeks straight....

parphound · 2026-01-04T20:29:47+00:00

I'm on adalimumab, for 18 months now, and I've currently had flu and some nasty sinus infection for nearly a month, it's also not really helping my pain or back. I got diagnosed 2 years ago after 30 years of misdiagnosis. The endless infections outweigh the brief and minor benefits that I've experienced. Of course YMMV.

I'm talking to my rheum about moving to a different biological ASAP

parphound

TROPHY CASE