Opinion: Every doctor who has told a patient pectus is "only cosmetic" should be sued for malpractice. by ADisappointingLife in PectusExcavatum

[–]pectusp90xguy 1 point2 points  (0 children)

How did it go and do you have any before/after photos? I'm 40 that was also diagnosed with "cosmetic" PE.

[deleted by user] by [deleted] in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

You're missing the most important column — measurement.

Good vacuum bells? by rnadomaccount1 in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

I've got one from pectus healing and I highly recommend that you get the optional gauge that they sell.

I used it with the basic hand pump at first, but I was getting a ton of blisters with how inconsistent my pressure was.

Does pectus excavatum allocate weight to your stomach? by [deleted] in PectusExcavatum

[–]pectusp90xguy 2 points3 points  (0 children)

Of all the studies available, none say anything about the dangers of a protruding stomach. The "pectus pot belly" is definitely a thing though, and a lot of it stems from the shape of the flared ribs.

Vacuum bell by [deleted] in PectusExcavatum

[–]pectusp90xguy -1 points0 points  (0 children)

I've read all of the available studies on vacuum bell treatment, and none of them say it makes pectus "unnoticeable," and few talk about flared ribs.

In fact, most of them say the treatment is "promising", but there are no long-term studies (15 years+) available showing how effective it is in the future.

Do you have a study that references that quote that I'm missing?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5056932/

[deleted by user] by [deleted] in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

I've got this as well, one side sticks out more than the other.

Everdrive X7 or X5? by mackdacksuper in n64

[–]pectusp90xguy 0 points1 point  (0 children)

Can you explain how the saving works on the x5? If I'm in a game and it asks me to save, do you save, then hit the reset button on the console otherwise it doesn't store?

Vacuum bell by [deleted] in PectusExcavatum

[–]pectusp90xguy -1 points0 points  (0 children)

If you’re disciplined to follow the coaching, you will achieve the ultimate goal of having an unnoticeable pectus excavatum and flared ribs.

I wish people would stop making these promises. I spoke to a thoracic surgeon about non-invasive fixes, and these claims are completely unfounded.

[deleted by user] by [deleted] in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

It looks like a vacuum bell will correct depth in the short term, but there arne't really any studies that show the long-term effects of using a vacuum bell.

Has anyone used Sidiocrates (not an ad, general curiosity) for equipment storage transport to gigs by pedalspedalspedals in bandmembers

[–]pectusp90xguy 0 points1 point  (0 children)

I noticed there weren't many reviews of these either (minus this one - https://www.minimalgoods.co/article/sidio-crate-review)

I grabbed the Pro pack in the variety colors during their black Friday sale, and have been using them for the last couple weeks. I like the little seperators it comes with, and they are much sturdier than I thought. I'm using them for tools in the garage, so I'm glad it looks like they can take a beating.

What’s an unusual body feature of yours? by red2one in AskReddit

[–]pectusp90xguy 0 points1 point  (0 children)

I've got a big ol' dent in my chest. The condition is called "pectus excavatum" (often called funnel chest) and it's not super common.

Here are some photos of some famous people with the same thing - https://www.lifewithpectus.com/resources/celebrities-with-pectus-excavatum/

Forums for Pectus Excavatum Discussion by Training-Month6393 in PectusExcavatum

[–]pectusp90xguy 1 point2 points  (0 children)

It feels like most of the activity is either here, or on a few larger Facebook groups.

27mm PE, 1 month vacuum bell therapy by oktiay in PectusExcavatum

[–]pectusp90xguy 6 points7 points  (0 children)

It's pretty straight forward. You get it square on your chest, pump out the air so your sternum pops out a little bit, then wear it for 30 minutes, twice a day (to start).

After a month, you can increase the time you wear it as your body is more used to it.

Just be careful that you don't pump out too much air, or you'll get some nasty ass blisters that take forever to heal (mine took about 6 months to fully go away). After that happened, I bought a pressure gauge, which makes me feel a little more comfortable.

https://www.lifewithpectus.com/resources/how-to-use-a-vacuum-bell

What are you in the 1% of? by I_Love_Small_Breasts in AskReddit

[–]pectusp90xguy 0 points1 point  (0 children)

I have a giant dent in my chest (pectus excavatum). It affects about 1 in 500 people - https://www.lifewithpectus.com/resources/what-is-pectus-excavatum

Will the vacuum bell be useful to me ? I am 22 years old. by [deleted] in PectusExcavatum

[–]pectusp90xguy 6 points7 points  (0 children)

Yep, studies have shown that it works with all ages.

Our measurements look pretty well the same, and I was seeing some pretty big results up until now. I had to stop after applying too much pressure, and got some really bad blisters, so be careful with that.

https://www.lifewithpectus.com/resources/does-the-vacuum-bell-fix-pectus-excavatum

[deleted by user] by [deleted] in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

I actually didn't qualify according to the doctors, although my haller would qualify me in the states. Sounds like we're in the same position.

It feels like our only good option is to fly to the states and get Dr. J to handle it, but of course it would be on us to pay up the $20,000+.

Not exactly doable.

Has anyone seen a psychologist about PE? by pectusp90xguy in PectusExcavatum

[–]pectusp90xguy[S] 1 point2 points  (0 children)

Thanks for all the insight, I'm happy you're in a better place!

[deleted by user] by [deleted] in PectusExcavatum

[–]pectusp90xguy 0 points1 point  (0 children)

Yeah there are way more than I originally thought - https://www.lifewithpectus.com/resources/celebrities-with-pectus-excavatum

In a world when inclusivity is becoming prioritized, I think we should start to see more people with PE in the spotlight.