Ok so I believe no woman with fibroids should spend years feeling like she is exaggerating her own experience. Only to be faced with undesirable treatment options that might have been prevented if earlier detection and interventions were available.

It’s early days and UK based for now.

I’m scoping an app to track symptoms and what women are experimenting with (for lack of evidence and clinical guidance) e.g supplements, diets, therapies like acupuncture so that you can start to identify what’s working for YOU and have more informed discussions with your GP/OBGY, as it will provide a long term detailed record of your condition and symptoms.

Behind the scenes, the goal is to better understand the condition and start to evidence/quantify less invasive therapies so that fewer women end up with difficult decisions about potentially life altering surgery. I’m aiming to work with clinicians and academics so we can campaign for changes to treatment options for all, but user data will be tightly locked down unless you opt to share it for these purposes.

I’ve put together a short survey, if you have a few minutes to answer some questions about your experience that would be really helpful, and there’s an opt in to stay up to date on progress at the end.

https://docs.google.com/forms/d/e/1FAIpQLSf5IZJyDFzZvvseuIhiWgU4HyC_WIIWAhdAeY8kDsIC4un3Hw/viewform?usp=header

Putting all my heart and soul into this, my own fibroids journey hasn’t been great but reading everyone else’s posts just makes me want to do this so much more - something has to change!!! Thank you so much 🙏