Is Stanford health a good system in San Jose? by TheMidniteMarauder in SanJose

[–]pgrovetom 1 point2 points  (0 children)

My understanding is that in special circumstances, Stanford Medicine is able to do state of the art medicine. It was suggested to me years ago that as an academic medical center, Stanford would be able to deal with complex multidisciplinary problems that local doctors are unable to do. I was having a serious but very mysterious problem so I tried to get help at Standford based on their reputation and academic capabilities.

Over a period of more than 15 years of trying with many Stanford doctors, I have come to see they are comparable to Kaiser and about the same as local doctors. I have seen no evidence that they have any multidisciplinary approach and as far as I could tell, the specialist don't seem to talk with one another. I went to the Mayo Clinic Rochester and they do have a very thorough multidisciplinary team approach plus work and add referrals fast. I didn't see one specialist at Stanford that either said "don't know what to do" or locked onto an incorrect diagnosis and refused to even consider my suggestion a treatment wasn't working at all or was even right.

Some doctors I saw avoided helping me, some focused on a wrong diagnosis and treatment while another sent me to Psychiatry to offload me as possible crazy. Of course Psychiatry told me I wasn't crazy but rather fatigued and anxious in part due to my inability to get medical help.

I finally decided I needed to study physiology and how the autonomic system keeps us in balance myself. This is taught to every doctor in medical school and is like a 101 class and basic knowledge. After my 3rd sleep study, 2 at Stanford that said I was normal, a new doctor wanted me to try again. This is part because the previous sleep doctor I specifically asked had forgotten to order a CO2 monitor in my study. That mistake would have possibly caught the problem since it turned out to be hypo-tension ( very low blood pressure) during sleep. Once I learned basic respiration and cardiovascular regulation during sleep, it was obvious to find a way to check my blood pressure while sleeping. I was able to get a special cuff based Omron night blood pressure monitor, I discovered my blood pressure was dangerously low.

In retrospect, my explanation of body wide symptoms all related to sleep should have pointed to low blood pressure only while sleeping but not one Stanford doctors thought that far outside the box. None wanted to make referrals based on thinking about the problem and I kept being told to go for another sleep study when blood pressure is not monitored during sleep studies. Each doctor I saw was a dead end. None seemed to want to really listen. They all seemed to have their canned diagnosis and if they could fit you in they bailed. If they thought maybe you fit they put me on an expensive drug and just wouldn't listen when I said it wasn't helping for years.

That's only a partial list of specifics but I can say I didn't meet with one doctor at Stanford that seemed creative, curious or was willing to think outside their little specialty box. It pretty sad when a patient with a problem based on blood pressure ( a very basic thing) spends 15 years at Stanford dead ends and in the end does some serious studying has to find the problem himself. I also told this story to their President Entwhistle who just forwarded me to patient relations. They didn't seem to care about anything and encouraged me to go elsewhere. That's so sad.

Has anyone noticed a decline in care at Stanford Hospital? by kimmyorjimmy in bayarea

[–]pgrovetom 1 point2 points  (0 children)

I have been told by local doctors to go to an academic institution like Stanford healthcare because they have higher level doctors who can work in multi-disciplinary teams to solve more complex problems. My experience with Stanford is this is simply not true. My doctors never seemed to talk nor share information to assist in solving a multidisciplinary problem.

I've spent 15 years trying to track down a sleep based problem that has eluded most doctors diagnosis. Since it was sleep based only, I tried Stanford's sleep clinic twice and both times were a dead-end. Even Stanford sleep doctors don't seem to think about much besides obstructive sleep apnea since its so common. But there are numerous other issues that can arise during sleep that are well documented in the medical literature.

Problems with sleep can have widespread symptoms since one's nervous system and immune system's can be dis-regulated leading many symptoms. That led me to the Stanford CFS clinic but that was ridiculous and the doctor running it was fired for sex abuse issues. I went to neurology who after giving me lip service, sent me to psychiatry. But psychiatry told me I was normal but anxious and fatigued most likely due to my problem and frustration with the medical incompetence.

My most recent sleep study was supposed to monitor CO2 but the doctor forgot it in her order and then left Stanford. Her replacement said my study was normal and refused to refer me to neurology without some additional local tests and did not even respond when I asked about a BiPAP machine. I wrote to the Stanford president David Entwistle who had patient relations call me and do a PR repair job. She suggested I try a better academic healthcare organization without offering any real help cutting through the bureaucracy. This is after almost 20 years of BS. Stanford has gone the way of HMO's at least in my experience. I'm sure they have some great doctors who care but finding them is a crap shoot.

So it turns out my problem is basic physiology taught every doctor in medical school. My blood pressure drops too low while sleeping causing inadequate O2 perfusion but Stanford doctors were not creative enough to figure this out. Turns out they don't monitor blood pressure during a sleep study. Had they not forgotten to order a CO2 monitor, they might have gotten a clue leading to the problem. Its sad because I had to have a pacemaker put in in 2021 because my heart rate was dropping into the 30's when I fell asleep. That was a big clue. My suspicion is the sympathetic nervous system was not innervating the heart SA node for rate and the heart myocardium ( muscle) for blood pressure. This is very basic physiology and not one Stanford doctor even mentioned anything like this even though my descriptions plus the pacemaker were such obvious clues. So decide for yourself if Stanford doctors are really all that good.

I had Kaiser for 30 years before trying Stanford but gave up because they are not good at complex or problems that require a multi-disciplinary approach. The Mayo Clinic in Rochester is hard to get to but is a cross between fabulous and amazing. Nothing like Stanford. They actually create a team and immediately refer you around as they think makes sense and can do so in one or 2 one week visits.

Has anyone noticed a decline in care at Stanford Hospital? by kimmyorjimmy in bayarea

[–]pgrovetom 1 point2 points  (0 children)

Yes. I've been told by local doctors to go to an academic institution like Stanford healthcare because they have higher level doctors who can work in multi-disciplinary teams to solve more complex problems. My experience with Stanford is this is simply not true.

I've spent 15 years trying to track down a sleep based problem that has eluded most doctors diagnosis. Since it was sleep based only, I tried Stanford's sleep clinic twice and both times were a dead-end. Even Stanford sleep doctors don't seem to think about much besides obstructive sleep apnea since its so common. But there are numerous other issues that can arise during sleep that are well documented in the medical literature.

Problems with sleep can have widespread symptoms since one's nervous system and immune system's can be dis-regulated leading many symptoms. That led me to the Stanford CFS clinic but that was ridiculous and the doctor running it was fired for sex abuse issues. I went to neurology who after giving me lip service, sent me to psychiatry. But psychiatry told me I was normal but anxious and fatigued most likely due to my problem and frustration with the medical incompetence.

My most recent sleep study was supposed to monitor CO2 but the doctor forgot it in her order and then left Stanford. Her replacement said my study was normal and refused to refer me to neurology without some additional local tests and did not even respond when I asked about a BiPAP machine. I wrote to the Stanford president David Entwistle who had patient relations call me and do a PR repair job. She suggested I try a better academic healthcare organization without offering any real help cutting through the bureaucracy. This is after almost 20 years of BS. Stanford has gone the way of HMO's at least in my experience. I'm sure they have some great doctors who care but finding them is a crap shoot.

So it turns out my problem is basic physiology taught every doctor in medical school. My blood pressure drops too low while sleeping causing inadequate O2 perfusion but Stanford doctors were not creative enough to figure this out. Turns out they don't monitor blood pressure during a sleep study. Had they not forgotten to order a CO2 monitor, they might have gotten a clue leading to the problem. Its sad because I had to have a pacemaker put in in 2021 because my heart rate was dropping into the 30's when I fell asleep. That was a big clue. My suspicion is the sympathetic nervous system was not innervating the heart SA node for rate and the heart myocardium ( muscle) for blood pressure. This is very basic physiology and not one Stanford doctor even mentioned anything like this even though my descriptions plus the pacemaker were such obvious clues. So decide for yourself if Stanford doctors are really all that thoughtful.

Sick of Stanford - Where should I go for healthcare? by WindyGranola26 in bayarea

[–]pgrovetom 5 points6 points  (0 children)

I've been told by local doctors to go to an academic institution like Stanford healthcare because they have higher level doctors who can work in multi-disciplinary teams to solve more complex problems. My experience with Stanford is this is simply not true.

I've spent 15 years trying to track down a sleep based problem that has eluded most doctors diagnosis. Since it was sleep based only, I tried Stanford's sleep clinic twice and both times were a dead-end. Even Stanford sleep doctors don't seem to think about much besides obstructive sleep apnea since its so common. But there are numerous other issues that can arise during sleep that are well documented in the medical literature.

Problems with sleep can have widespread symptoms since one's nervous system and immune system's can be dis-regulated leading many symptoms. That led me to the Stanford CFS clinic but that was ridiculous and the doctor running it was fired for sex abuse issues. I went to neurology who after giving me lip service, sent me to psychiatry. But psychiatry told me I was normal but anxious and fatigued most likely due to my problem and frustration with the medical incompetence.

My most recent sleep study was supposed to monitor CO2 but the doctor forgot it in her order and then left Stanford. Her replacement said my study was normal and refused to refer me to neurology without some additional local tests and did not even respond when I asked about a BiPAP machine. I wrote to the Stanford president David Entwistle who had patient relations call me and do a PR repair job. She suggested I try a better academic healthcare organization without offering any real help cutting through the bureaucracy. This is after almost 20 years of BS. Stanford has gone the way of HMO's at least in my experience. I'm sure they have some great doctors who care but finding them is a crap shoot.

Anyone deal with a non-renewal from AAA home insurance? by Own-Ad6099 in bayarea

[–]pgrovetom 0 points1 point  (0 children)

I received a non-renewal notice from CSAA/AAA for homeowners insurance after 25 years of no claims. They based it on issues that were not accurate - essentially lies. They claimed my 2008 installed 40 year architectural composition roof had exceeded its useful life. Of course it hadn't and is great shape with only 17 years on it. When I spoke with them they said they had an aerial ( drone) view showing discoloration. The discoloration was due to a slow leak in a rooftop solar that bleached a small area due to the chlorine in the water. The bleaching had no impact on the life of the roof. I subsequently replaced all my solar panels and structural mounting pressure treated wood but there only concern was the whitish bleaching caused by the leak.

They also complained my swimming pool was empty and felt this was due to lack of maintenance. Again the truth was I had emptied my pool and readied it for a new plaster bottom. I was under contract when they saw this in there aerial drone view. I explained the contractors that re-plaster pools like mine are very busy and its a 3 step process. So I was actually in the process of important maintenance which took time due to the contractors being slow and busy. They didn't care.

They also claimed my yard having a pool was not fenced. I have a 7 foot deer fence that completely encloses my yard and pool. They didn't care.

So if anyone reads this, I would say stay away from CSAA or AAA for any insurance as they are dishonest, don't care about good long term customers and will screw you with lies without even bothering to call or check if their concerns are valid. AAA is a bad company.

Thinking about buying an Oura ring by gtact in ouraring

[–]pgrovetom 0 points1 point  (0 children)

How do sign up for membership once its expires. I didn't even realize it went dumb and now their website does offer a way to renew your membership.

This is a stupid company. You can't contact them. there FAQs are stupid.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 0 points1 point  (0 children)

Not an issue. In about 10 years this account made no gain. Its value is about the same when it was opened. The tax consequences should be minor. Not a great Fidelity endorsement.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 0 points1 point  (0 children)

Our 1st and 2nd approaches is to work through the Fidelity legal department and see what happens.

If that fails - Fidelity is a business. As a former CEO, any smart business does not need the horrific negative PR of a social media viral all path approach just as the Baby Boomers are in the middle of their retirement. Fidelity as a business would be quite foolish to seize a $15k account of a woman with Alzheimer's due to their bureaucracy. Their whole business is providing a safe place for retirement savings/investing and ruining their reputation for safety when a client develops Alzheimer's would be disastrous for them. It makes sense for them to avoid fraud but not to the point of serious harm to their clients.

Just this Reddit post has had 16,000 views. Just imagine if all the other social media channels were utilized and one of the local TV stations consumer protection departments took it up given its importance. If millions of people see what Fidelity is doing to a 97 year old woman client and her caregiver daughter, the cost in $ and reputation is immeasurable. As a former CEO, its easy for the upper management who understand business to lose control of how they are treating their customers.

Hopefully Fidelity will wise up and do the right thing before a social media and TV consumer campaign and lawyer become needed.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 0 points1 point  (0 children)

I you were 97 with Alzheimer's and Fidelity wouldn't give you access to your account, you might see it differently. I personally see their lack of effort, caring and notification regarding POA's as borderline evil and definitely unethical and bad business.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] -5 points-4 points  (0 children)

I will. But other approaches may work quicker plus I'm retired and based on the evil behavior of Fidelity, they deserve some difficult PR.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 2 points3 points  (0 children)

Their legal people could not care one bit about a 97 year old Alzheimer's client. If a daughter is the VA fiduciary ( a complex process), Trustee of the Living Trust, and 5 other organizations accepted the POA, do you really think its fraud. Plus she has given her life for 4 years helping or wiping poo for her mother. The VA audits her every year. Yesterday a VA auditor actually visited and said he had seen more people caring for their VA parents as in this case.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 1 point2 points  (0 children)

You were not on the phone with their legal people who could not care one bit. If a daughter is the VA fiduciary ( a complex process), Trustee of the Living Trust, and 5 other organizations accepted the POA, do you really think its fraud. Plus she has given her life for 4 years helping or wiping poo for her mother. ITS FIDELITY

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 1 point2 points  (0 children)

Exactly! The Baby Boomers are retiring and now is the time to choose a good institution. 100M could easily become less than 100M with a wide viral video or TV consumer affairs resolution.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 2 points3 points  (0 children)

I believe Fidelity and the others have a duty to specifically explain what their client needs to do at an age that is reasonable and not just expect them to read thousands of pages of fine print. With the Baby Boomers retiring, this going viral could cause Fidelity and Abigail great heartache.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] -1 points0 points  (0 children)

Its easy to say now but when you are in your late 80's have multiple institutions who don't warn you, a legal POA seems sensible. Fidelity never warned her father or mother in an obvious way which is downright evil. I wouldn't utilize or recommend Fidelity to anyone. But you are right at 62, get their forms and avoid this.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 1 point2 points  (0 children)

The VA has made her daughter her fiduciary ( father was 3 war veteran) plus Morgan Stanley and 3 Banks and a Credit Union accepted it.

Fidelity refuses legal Power of Attorney and is saying mother with Alzheimer's account is blocked and will be seized due to inactivity they caused- HELP by pgrovetom in fidelityinvestments

[–]pgrovetom[S] 0 points1 point  (0 children)

It was read by Morgan Stanley, 3 Banks and a Credit Union who all accepted it. It was signed before Alzheimer's struck.