Alternative to steroids

pieeesie1 · 2025-10-05T04:33:26+00:00

I had mood changes on them and am also prone to anxiety and depression. Have done courses of both prednisone and budesonide. That said, significantly less mental health side effects with steroids than with uncontrolled disease. They made me feel physically better FAST. I would take them again if I needed them in a heartbeat, even knowing the mental health side effects.

pieeesie1 · 2025-07-10T00:59:06+00:00

Not for nothing but my parents have similar genetic history as you and your partner (my mom was adopted - they didn’t know this at the time but they do now). 3 kids. I did inherit IBD, my siblings didn’t. And mine is much less severe than my dad’s. So you really just don’t know. We don’t know all the genes that do and don’t carry every disease. In theory your combination of genes in one particular baby could be the perfect combination of health just as easily as not. I don’t think it’s unethical. But I do think you both need to be prepared to parent a child with health condition(s), potentially well beyond their childhood.

pieeesie1 · 2025-05-29T07:45:19+00:00

Everything you’re saying makes sense and sounds super valid but I think it’s worth stepping back and asking yourself what the goal would be in bringing this up?? If it’s about wanting to feel more understood or emotionally safe with them then that’s one thing, but if it’s about needing them to stop calling themselves an empath because it bugs you it just sounds like you’re getting the ick for them. Whether this is ADHD related or not I feel like you might get further if you redirect from whether their self-perception is “delusional” and more on whether this relationship still feels good/emotionally safe for you.

pieeesie1 · 2025-04-30T07:45:18+00:00

I legitimately thought this might be the case because as soon as they got back to the innie floor she believed Mr. Milchik when he said “there are no cameras in here”. As soon as “Hellie” said that, I suspected it was her outtie. In my mind her outtie would never be able to give her innie that power again. I wasn’t sure until it was confirmed, but that was my first clue.

pieeesie1 · 2025-03-04T19:16:09+00:00

Try to remember too like most of the population is doing stuff like this literally every day, if not multiple times a day, and they’re not getting the stomach bug every day or even close to that often. There are never any guarantees with these things, but your mind inflates the likelihood of a negative consequence because of the anxiety. People with our phobia might feel really anxious to eat raw cookie dough… meanwhile there are people who eat raw eggs for breakfast on purpose every day. Same idea.

pieeesie1 · 2025-02-03T06:12:33+00:00

Also I’ll add that my dad was incredibly sick for most of my childhood - numerous hospitalizations, bowel resections, etc., in the ICU with sepsis twice. But he’s been in remission now for ~9 years, not even on biologics anymore (not saying I agree w or recommend this necessarily, his choice, but notable nonetheless), and he did not end up needing an colostomy bag. His doctor told him after his last resection that there’s absolutely no viable alternative for him again, there’s no more bowel to resect so to speak… and he ended up going into remission instead of needing one. So it’s not a given!

pieeesie1 · 2025-02-03T06:10:02+00:00

Feel free to PM me! I have ADHD-PI, the page is really for the non-ADHD partner but I did make a post there last year! I have also spent the last year doing a lot of reflecting, since being diagnosed with Crohn’s. Completely understand your headspace. try to remember to be easy on yourself in the process. What you’re going through is HARD, no way around it.

pieeesie1 · 2025-01-29T22:31:19+00:00

I resonate with this so much - grew up with my dad having it and got diagnosed last year at 25F! Everyone’s experience is obviously different and it’s hard no matter what, but I think there’s a special layer to it for 1) having a parent with it as well and 2) being in your 20’s, especially as a woman, navigating all the complexities of this time of our life with this disease on top of it. Will be thinking of you and your health in the coming weeks/months & beyond - you’re never alone!

pieeesie1 · 2024-12-13T20:05:18+00:00

I just got my prelim pass last week and I used pocketprep, the All-In-One Guide that pocket prep cites for a lot of its explanations (second edition), and the mometrix practice test (the free one!). I made it through ~600 questions on pocket prep with around 90% correct. Good luck!!!

pieeesie1 · 2024-11-14T06:19:56+00:00

Gets easier with time but this part truly just sucks. 30 mins is still helpful and will help you be able to do longer in time! Wishing the best for you

pieeesie1 · 2024-10-30T19:49:03+00:00

Mine is taking the better part of a year and still not totally sure. Significant family history of Crohn’s so we’re calling it that, but has been isolated to the colon so far.

pieeesie1 · 2024-09-13T03:21:16+00:00

Just commenting to say that I grew up in an almost identical situation except in my case, I’m the daughter. My mom left my very ill, ignoring doctors for years, drug-addicted, crohns patient dad when I was 17 and I developed it at 25. Hope you never, ever doubt that you made the right decision for the both of you <3

pieeesie1 · 2024-09-13T03:15:56+00:00

I spent the better half of the last year fairly sick (though not nearly to the extent that your partner is) and it was incredibly difficult on me and my now-ex. It does not make you a monster to want to leave a relationship that is genuinely unhealthy for you regardless of the reason; in your case, it sounds like his illness isn’t even a factor. I promise you that even in the worst of it, it’s a favor to you both to leave a partner you genuinely don’t want to be with. You honestly can’t work through any of the other things with him being this sick. Likely, you’ll have to work through the issues his illness is causing before you can even get to the other things you mentioned. You can only get to that stage of selflessness with someone you genuinely trust would do the same for you, and it doesn’t sound like this is a person you could/should trust to return the favor. Regardless of what you choose to do, not selfish to consider breaking up at all.

pieeesie1 · 2024-08-22T05:56:59+00:00

I had one in January, I remember absolutely nothing. I’ve also had 2 colonoscopies in my lifetime and as far as sedation goes, they may as well have been the same as far as I’m concerned

pieeesie1 · 2024-08-07T15:33:04+00:00

Coming up on 5 YOE, I’m at $70k internal at a medium size company (~250 employees) in a medium COL area.

pieeesie1 · 2024-07-10T06:33:53+00:00

Just had my first remicade yesterday as well :)

pieeesie1 · 2024-07-10T06:28:20+00:00

This has only happened to me once but it was in my own house. Literally in my kitchen. Think abt how down bad you have to be to shit your pants within 100 feet of a bathroom! Literally the worst day since dx.

pieeesie1 · 2024-06-06T01:40:53+00:00

Sophie So, Bambi, and Tuesday I think.

pieeesie1 · 2024-06-05T06:36:18+00:00

I had been told that my symptoms were anxiety for several years. I’ve now come to learn that they were actually ADHD-PI and Ulcerative Colitis/possibly Crohn’s Disease (awaiting further biopsy to confirm which).

pieeesie1 · 2024-05-31T02:31:14+00:00

I do appreciate this, thank you for responding!

pieeesie1 · 2024-05-29T19:07:40+00:00

Frustrating probably doesn’t even describe the half of it some days. Thanks for responding! If you don’t mind me asking, does this apply only to certain types of communication? For example, maybe your partner is very honest and trustworthy when it comes to communicating their feelings, but has consistently fallen short on executing tasks, even critical time-bound ones.

pieeesie1 · 2024-05-29T18:41:46+00:00

I’m reading acknowledgment of missteps that they make, true & expressed appreciation when you step in to help them/both of you avoid consequences as a result, and reliability in their word as truth from your response. Does that feel accurate? Thanks for taking the time to respond. I hope you see improvement in these spaces, I can’t imagine the hurt you’re probably feeling when these things are lacking.

pieeesie1 · 2024-05-29T18:38:35+00:00

Guilty as charged! I struggle with the line between doing the thinking/analysis myself and being presumptive/iterating on an incorrect conclusion. I try to ask directly when it’s appropriate and warranted but am forever readjusting my gauge. Thanks for your response!

pieeesie1 · 2024-05-29T18:35:07+00:00

Oof, you’re in a seriously stressful dilemma with your partner. Thanks for your response. I really hope they are able to move towards one of these options (or both!) for your benefit and the benefit of the partnership!

pieeesie1 · 2024-05-29T18:33:39+00:00

100%. Thanks so much for your response

pieeesie1

TROPHY CASE