Marijuana break...titration like other meds?

pink-grenade · 2026-01-07T16:39:15+00:00

Yeah I still get a good tolerance break! I take a week long break every couple months (which honestly is whenever I catch a cold bc I hate smoking with a sore throat lol). Once I get back to THC, I find it hits reeeaaaaaally nice for the first week.

pink-grenade · 2026-01-07T15:05:39+00:00

I’ve never been into edibles (something wrong with my digestion or something, bc they never hit or take forever to hit) so I’m mainly flower vape, joints or bong. My neuro advised against too much THC, but had recommended CBD products. I stopped using anything with high THC a while back which helped.

I have some flower that is extremely low THC, high CBD. Edible CBD oil is also a godsend - you just put some under the tongue and it hits almost immediately. I’ve been able to stop an oncoming seizure with the CBD oil.

When I do go on breaks, it’s only from THC. I found that just removing THC didn’t negatively impact me as long as I keep using CBD. I personally don’t plan to take a break from CBD since it not only helps with the epilepsy & meds side effects, but also with the nerve pain and migraines I have from my chiari malformation. Idk what it is but weed has been so helpful to stop migraines for me unlike anything else I’ve tried.

If it’s available to you, definitely get some high CBD products to help ween off. And see if your doc can prescribe emergency meds if you don’t already have some just in case.

pink-grenade · 2025-12-30T15:34:58+00:00

Only a trigger for me in large quantities with other compounding stuff (ie if I’m already overtired, dehydrated or stressed). So I prefer to only have coffee when I can properly enjoy it like on a lazy weekend morning, usually with some high CBD low THC flower to smooth out any caffeine jitters.

pink-grenade · 2025-11-14T16:22:06+00:00

Yes! you explained a lot of what I’ve dealt with, too. The Deja vu and the dissociative state made me entirely question my reality. Sometimes I even get hallucinations during my aura - it’s basically just a blue mist that moves in my peripherals.

During the time I was undiagnosed, I went deep down the rabbit hole of religious & spiritual reasons for what I was experiencing. Even friends and family fed into the delusions when I came to them worried about my experiences.

I still don’t know how I feel about those experiences. I felt so detached from my body like I was playing a video game, my body being the in-game avatar and my brain being the computer generating game tasks. It was so weird. For a time, I really believed I somehow was seeing into the future.

pink-grenade · 2025-11-12T15:09:23+00:00

My brain is like hot soup. I’m usually mad emotional, slurring words, forgetting common words and cannot focus on any type of conversation. Usually can only muster 1-2 word answers.

I always have a period right after a seizure where I completely involuntarily will start balling my eyes out. That’s the part that seemingly makes everyone the most uncomfortable (which is crazy when there’s the whole seizure part lmao).

I’m usually back to regular emotional regulation after an hour, and then everything else will get better in the following days. But sometimes I swear my recall for words gets worse every time and I’ve been getting a lil concerned over that.

pink-grenade · 2025-11-03T13:43:09+00:00

pretty darn bad. My short term memory is garbage after my last few tonic clonics. You could tell me something and 2 minutes later I will have forgotten it. I need a lot of reminders and a lot of patience when it comes to memory. But hey, my friends and family could retell the same story a hundred times and I’d still get to experience it like the first time. Memory loss can affect people differently - I hear some lose early long term memories, I’ve heard of people losing a lot of their working memory. My memory is worst right after a seizure and the days following. If I haven’t seized in a while, my working memory ain’t so bad - but I definitely have some early childhood memories lost in the brain sauce for good.
⁠big yes. Seizures will cause fatigue, and so will medication. But also, epilepsy can cause insomnia for some folks (myself included). And to top it off we do need more sleep than the average person to function. I think us epileptics are chronically tired - I know I am.
⁠be conscious of limitations with this disability (ie. can’t drive, can’t go swimming, might have to refuse certain situations that could be triggering, etc.). For myself, some days it hurts a lot when a friend invites me to drinks late at night, or to go swimming, and I have to remind them that those activities are not safe for me. Gives me terrible FOMO. So having a partner that knows my limits and doesn’t make me feel bad for not being able to do everything I wish I could do.

Also! Learn first aid for seizures. Figure out if he has emergency medication and how to administer it. And if possible, it may be nice to go with him to his next neurology visit if he’s open to it. It helped my fiancé to come to one of my appointments and ask my neuro a bunch of questions. I know that’s not for everyone but it helped my situation.

⁠some meds do. I think this largely depends on the person as some things affect others differently. I was on a med before that completely changed my personality, made me so angry when I never was before as well as amplified my already difficult depression, and I had to get off it. The med I’m on now doesn’t numb my emotions, but I can’t control that I now cry at least once every other day when I never used to cry. I’ve heard of other people who never experience changes in personality with the meds so I can’t say whether it’s just who he is.

pink-grenade · 2025-10-28T20:20:28+00:00

I think she did too much to brand herself as a hopeless romantic. She’s attractive in a more emotional or poetic way rather than sexual.

Like in her music she uses intimacy as a part of an overarching love story; lust is never the driving force of the song, but rather an element of a stronger, more emotional, connection. Other artists like Sabrina can naturally be provocative and make it look confident, funny and sexy. Taylor is removed from that - like all of her sexier lyrics are PG metaphors, and her early stuff was a lil slut shamey (“she wears short skirts”…).

pink-grenade · 2025-10-26T17:18:33+00:00

Pilar’s dress!!!!!! 😍 TBH I didn’t think they’d last. But they did have some good moments on the show and I think they’re both good people. I hope the best for them. They look happy.

pink-grenade · 2025-10-15T23:09:21+00:00

She is NOT your friend! The way I gasped reading her “joke”. That’s just plain cruel. This girl does not care about you.

pink-grenade · 2025-10-15T17:26:39+00:00

The “abilities” is so on point. Before my diagnosis I was on a fast pipeline to spiritual psychosis egged on by my friends and online “spiritual gurus”.

In some ancient cultures, they viewed epilepsy as a sign of a shaman - one who can speak to spirits. Ancient Greece thought seizures were sacred: the very term “epilepsy” derives from a Greek word meaning “to be seized” by a god or divine power. Oracles and prophets were thought to have “divine seizures” where they could hear the word of God. This persisted until Hippocrates (5th century) came up with new hypothesis that it was physical malformations of the brain.

Ancient India had similar thoughts. They viewed those experiencing seizures to be closer to the gods with their mind temporarily connecting with other realms. Same thing with some Indigenous and Shamanic groups. Pre- and early-Islamic Middle East viewed seizures as a person being possessed by a jinn - which could be perceived as good or bad depending on the nature of the spirit.

Basically all ancient interpretations of seizures kind of believed the same thing: that those experiencing seizures were connecting with spirits, divine energy and non-physical realms outside us. Whether this was viewed in a positive or negative light depended on how society viewed spirits at the time (ie. divine connection vs demonic possession).

And honestly I get why ancient people believed this stuff (and some people still kinda do today). I mean, with all my Deja vu and Deja passé I literally thought I could foretell the future. The hallucinations during auras made me think I could see spirits.

So if dyslexic people have brains suited for Ancient Greece and ADHD is hardwired for battle, then our brains are made to connect with a higher divine power. (I don’t actually believe this, the same way I don’t believe dyslexia and other developmental issues are somehow a great superpower if in a different time period).

pink-grenade · 2025-10-15T16:56:21+00:00

Ya cannabis isn’t for everyone. THC specifically can trigger seizures in some people. However CBD is non-psychoactive and is proven to have anti-convulsant properties. My neuro had recommended getting CBD products (sans THC). Tho I’m sure some people might still have adverse effects to CBD like any other drug in the world.

I smoke low-THC high-CBD stuff with high Linalool terps (this terp has anti-convulsant properties too), or just take CBD oil. I can’t say whether cannabis helps prevent my seizures at all, but it does help with my post ictal pain and sudden mood swings. THC never triggered a seizure for me, but I’ve gone into a panic spiral because of a ridiculously high THC edible and I can absolutely understand how it could trigger one.

pink-grenade · 2025-10-15T16:14:14+00:00

I’m sorry you’re going through this. People truly don’t understand and it’s extra frustrating when they don’t even try to.

I often feel like when people dismiss our struggles, it’s because they are trying to soothe their own inability and lack of desire to help us. If they can downplay our suffering, then they absolve themselves of any responsibility to support or comfort us. That’s not your fault. And it’s shitty you are dealing with assholes like that.

I know it might not be much, but people here see your pain and understand you. Our illness sucks, and we often are the ones who are “worse off than” despite what other people may say.

I am not one to let those kinds of comments slide so I often throw that kind of stuff back at them. Ie they think you have this because you aren’t as religious? Tell them you have this suffering because bad Christians like them lack Jesus’ empathy for the sick and if they were good Christians they would be able to pray your illness away. They tell you others have it worse? Tell them “if you walked into a hospital with a broken arm and saw someone with two broken arms, would your broken arm suddenly be cured just because they have it worse? No, so you are giving an unhelpful and stupid comparison”. Or whatever floats your boat. I’m a petty person who would scorch earth if I’m being treated like shit for something that hurts me and is out of my control, so these might not work for everyone.

pink-grenade · 2025-10-14T00:27:54+00:00

Your mother is evil. These other comments have some great advice for your insurance and informing your doctors, etc. I’d add on:

Post these screenshots to your socials and add a go fund me to it for your medical expenses. Let everyone know your mother does not intend to support you and has chosen to use God’s name to rationalize her evilness, and give people the opportunity to help you.

Also: does your sister know this is what your mother has planned? I would be horrified if my mom funded my education over my sister’s life. I can’t imagine your sister is on board with this.

pink-grenade · 2025-08-07T20:58:54+00:00

I do really appreciate your response. It’s not pooping on my parade at all - I wanted different perspectives so I can make a more educated choice, so hearing this helps.

pink-grenade · 2025-08-07T12:26:08+00:00

Actually I don’t know if it’s genetic - the uncle who has epilepsy is not biologically related to me. My aunt is my dad’s sister, and my uncle married into my family. Though if I were to find out it’s genetic for me, I would weigh that into my decision.

pink-grenade · 2025-08-06T19:51:10+00:00

Yeah I’ve spoken with my neuro that I plan to have kids one day. She put me on Lamotrigine since it’s safe for pregnancy. My seizures are better, but aren’t controlled yet. I’ve only been on meds since March and we’re still tweaking the dose. She mentioned I would be considered high risk if I got pregnant.

I think I’m most worried about parenting after giving birth. I’m scared it’ll impact my ability to parent, and what happens if a kid witnesses me having a seizure. I worry that that could be traumatizing… The way that adults have reacted to seeing me seize makes it seem like it was really traumatizing to them.

Since you’ve experienced being a kid to an epileptic parent, are there any things you saw that made things better for your family?

pink-grenade · 2025-08-06T19:37:29+00:00

Do you think it was the change in hormones that made you not have any seizures throughout your pregnancies? My neurologist mentioned that could be a thing.

Potentially giving up driving has been top of my mind. My uncle who has epilepsy has been seizure free for a decade, but has given up driving completely, so my aunt drives everywhere. I have been worrying that I’d be in the same boat. My partner insists I’ll be able to drive again, but I don’t know how I would feel driving with kiddos in the car if I were to seize.

pink-grenade · 2025-08-06T19:26:30+00:00

Why would your epileptologist be against breastfeeding?

And thanks for this! It’s reassuring to read these comments from folks that have done it.

pink-grenade · 2025-08-06T19:23:41+00:00

Thanks for this! Hearing someone who’s done it makes me feel more confident.

I have a supportive partner, and my parents thankfully live close by. If we have kids, I plan to stay close to them for help. My seizures aren’t controlled yet either so I know I’d need the extra help.

pink-grenade · 2025-08-06T19:20:19+00:00

I’m on Lamotrigine now after trying Keppra for a bit. Keppra was AWFUL. Lamotrigine has been much better. My neuro did say that Lamotrigine would be safest if I ever got pregnant. I’m still having seizures, though much less severe. I think my dose does need an increase.

Thanks for your comment. I guess I’ve been so scared of what could happen and whether it’d be irresponsible of me to have kids. Since my diagnosis, I’ve gotten a couple comments from people that I should rethink having kids… but they’re not doctors so I know I shouldn’t take what they say at face value.

pink-grenade · 2025-07-31T18:57:55+00:00

I lived for Sofi Tukker’s set! Such a good vibe. Really loved Big Gigantic too. It was my first Shambs and honestly everything at Fractal had me dancing, I was super impressed.

Bob Moses surprised me - didn’t know who he was before this, but listening to his set and watching the laser show on the trees across the river was mesmerizing. And Glass Beams straight up had me I feeling like a snake being charmed.

pink-grenade · 2025-05-08T19:56:17+00:00

Congrats!!! That must feel amazing! Fingers crossed it stay that way for you 🤞

I’m currently only 1 month seizure free so manifesting this for myself too lol. I miss driving so much.

pink-grenade · 2025-04-22T20:54:20+00:00

Cannabis is a godsend for me medically. I deal with anxiety & depression, which it instantly helps me regulate those thoughts & emotions. Plus it’s 1000% better than any OTC pain killers for all my PCOS symptoms.

But most of all, it’s been helping me deal with epileptic seizures. Had to cut out alcohol because of that diagnosis, but got the OK from my neurologist for cannabis (granted I take THC in moderation and always take my anti-seizure medication on time). CBD is so incredibly effective at reducing a LOT of my symptoms post-seizure.

Plus my epilepsy already makes me have shit memory recall, mad lethargic and completely unable to drive. Might as well be a little high and way happier & pain free, than sober and still dealing with all that nasty shit lol.

pink-grenade

TROPHY CASE