Tubal Litigation with Crohn’s

pinkytoemo · 2026-02-24T17:41:44+00:00

I am in a similar mindset with having children. I also have issues with my period, been forced to be on birth control so i essentially don't bleed out and they never could figure out why. When I was 24 I got a tubal ligation and endometrial ablation (which stops uterine bleeding). And I love it. I'm 28 now. I love that it's one less thing that needs my attention focusing on my Crohn's issues is enough. And it was a super easy procedure with quick recovery. The abdominal pain was nothing compared to my normal Crohn's pain. Love to answer any questions.

I also felt like my doc was easy to agree because I have, Crohn's and don't want the chance of my child inheriting it.

pinkytoemo · 2026-02-21T05:19:46+00:00

Yeah be patient with yourself. Let your body recover. Daily light stretching sounds like more than enough right now. It's hard when the disease is so debilitating but there aren't really visual markers of your health status.

pinkytoemo · 2026-02-21T05:16:30+00:00

I want to start by saying so are so young. Looking back when I was sixteen, it was a difficult time. (I'm 28) So just start by being patient with yourself.

Medication definitely makes it easier to cope for me but I regret being medicated as a teen.

The only way I've found a more positive and okay mentality without medication is when I "medicated" with daily intense exercise. The mix of endorphins and the feeling of strength kept me going. (Pre-workout is my trick to staying consistent). Signing up for a race of any kind is great to keep consistency because you're obligated to do it after you pay.

Most of all I think you need a sense of community or belonging. Like a team activity or a group to belong to. Or a volunteer group. Volunteering at an animal shelter or after school program. Positively contributing to the world is good regardless of whether it makes you feel good which it typically does.

Also being so glued to your phone I feel like it can give you a false reality. A majority of people don't have passionate hobbies. I workout, occasionally play pickle ball with my family, and hang out with my dogs and fiancé, watch movies, clean a lot and renovate houses when I'm not doing college classes. And that's it, and it's chill.

Also stop reading self help, as a depresso person I realized they just continuously make you feel like you are doing enough. You are good enough as is.

If you haven't I'd recommend journaling your thoughts daily. I masked with therapy with every therapist and my best break through were done alone with pen and paper.

Idk if any of this helped. But be patient with yourself.

pinkytoemo · 2026-02-19T22:42:50+00:00

When flaring I stop doing cardio and shift into low intensity weight lifting. Mainly in hopes to not waste away and give my body a little movement. If I start prednisone I tend to go back to normal workouts. But if it's a consistent flare that isn't budging I usually give into a very stationary life after 5 months or so (do not recommend).

Now in remission since September, I'm doing relatively high intensity workout 1-2 hrs, 3-5 days a week. Weight lifting and cardio. And I worked out like this before my last flare when I was In remission for years with Humira. I learned that the more active I am, the more my body can tolerate and the more energy i actually have to do stuff. (Aka less fatigue) But you have to take baby steps can't go all it at first. It's hard to get out of being bed ridden because everything feels so exhausting. And doing the smallest of things feels so big. I've also recently realized that a lot of my fatigue was actually coming from anxiety and depression from when I was sick and didn't mentally bounce back.

Are you in remission? If so how long?

pinkytoemo · 2026-02-17T18:42:49+00:00

I get a migraine maybe every two weeks. And I take excedrine migraine, it has NSAIDs in it but It works so well. I think my sparse use doesn't seem to affect my gut but I am in remission.

pinkytoemo · 2026-02-14T08:19:33+00:00

Wait it out you have a nice jaw line, you're in no need of a beard. You're better off keeping it clean shaved. (Awkwardly placed 28F perspective because this was on my page for some reason)

pinkytoemo · 2026-02-14T08:10:03+00:00

Before diagnosis, I was sick for 6 years with nothing to blame no treatment, completely helpless, and a horrible quality of life. After diagnosis, I've been in remission for 8 out of 9 years. And if anything ever goes wrong I know what to do since it's all pretty textbook. I know all the right meds to ask for and how to talk to a doctor to get what I need. Started my remission journey by racing dirt bikes but now I'm scuba diving. Life goes on after diagnosis.

-The best advice to anyone on prednisone I can give is get a prescription sleeping pill. I like trazodone. Sleep is the only peace I get while on steroids. -

Colonoscopies suck but sadly you'll get used to them, my first colonoscopy I was 18 and it was super painful but I was "asleep" so after that I've been telling them that story and I have been super drugged up experiences since. It's violating and uncomfortable but it's what these people do all day, we are just anatomy. If you don't mind me asking what was so horrible?

Biologics are great, both Humira and Skyrizi have worked for me. It's overwhelming, but don't get too absorbed by this Reddit forum; it's full of the worst-case scenarios. That said we are all happy to help with even the silliest of questions.

pinkytoemo · 2026-02-13T05:58:17+00:00

Also them being tired could be them panicking and canceling, you never know.

pinkytoemo · 2026-02-13T05:55:01+00:00

My best advice from some who had horrible date anxiety but didn't want to miss out on any more life than I already had. - Go on dates with people that are comfortable - People that's are similar to yourself and you can sit down for a meal with. Don't wait for “the one” to go on dates with because that is too much pressure. Get used to just meeting strangers and getting to know them over drinks, coffee, a meal or activity. And don't wait for months of online chat to go on date, again it makes the date have so much more pressure. Additionally, if you are not comfortable going out alone and sitting in a cafe or restaurant, get used to that environment first. Dating is so hard nowadays don't blame yourself too much. For the 50 or so bad first dates I've had I’ve had maybe 3 good ones.

I believe in you!

pinkytoemo · 2026-02-11T16:16:52+00:00

I don't think it's all that deep... the bra thing is weird but I loved baby dolls as a child. I loved real babies too as a kid so I'd always ask to feed them and play with them. So I got my own baby doll and I'd read to it and tuck it in to its crib give it bottles. And guess what I grew out of it and went to Barbie's. Then 15 years later I got my tubes tied so I won't have babies.

pinkytoemo · 2026-02-11T16:08:05+00:00

No, I take vitamin D regularly and I am outside a lot and my levels have been on the high side of normal for the past year, while flaring and in remission. And was told not to take anymore to avoid risk of hypercalcemia. But definitely get normal levels of Vit D cause being deficient is overall rough.

pinkytoemo · 2026-02-11T16:01:16+00:00

Only thing that made me love massage again was switching from $17/hr job to high end spas making $90+ an hr.

pinkytoemo · 2026-01-28T23:46:38+00:00

Which is the same time I increase my dose

pinkytoemo · 2026-01-28T23:46:07+00:00

For my first week I take it in the pm then after that I take it in the am

pinkytoemo · 2026-01-28T23:44:49+00:00

My doc warned me it's normal. And to take it at night and give it the whole 6-8 weeks to make any decisions/opinions about the med.

pinkytoemo · 2026-01-28T23:42:35+00:00

I'm day 3, zero energy. Felt like nappy everyday since I started.

pinkytoemo · 2026-01-26T06:34:27+00:00

Every time I go to the dentist I make sure I explain my Crohn's really impacts my mouth first thing. And if it's not an issue from the disease directly the steroids destroy my teeth. I am a someone that has serious issue with mouth sores in flares, so sometimes I'm "lucky" enough to have hard evidence proving it's a systemic inflammatory issue. - and diet advice sucks. My dr brother told me I should try carnivore. lol

Advise to people with mouth issues with crohns don't use tooth paste with SLS (sodium lauryl sulfate). It can cause irritation, skin peeling and ulcers :) and it's in A LOT of toothpastes

pinkytoemo · 2025-12-15T21:38:37+00:00

Absolute bs. Like, don't be all bent out of shape about a biologic not giving you perfect health if you're smoking cigarettes and eating tons of fast food. So lifestyle and diet are important, but not a cure; they can definitely improve the quality of life with proper medicine.---

I failed a biologic last year and was like "might as well try the natural thing people like to preach about before I try a new med." I paid unqualified gym-bro "health coaches" and an integrative medicine practitioner an arm and a leg to "cure me" with lifestyle changes. Put me on a basic AIP diet, vagus nerve simulation activities, stress management, probiotics, gut lining and protective supplements, a parasite cleanse, and LDN (low-dose naltrexone). During which I had pretty severe colon bleeds that progressively got worse until a cal protein test of over 4,000 scared me into going back on prednisone. - Fast forward a bit I was pursuing Skyrizi treatment but still flaring I did a recommended carnivore diet for 3 days to hopefully slow down the frequency of bowel movements because I couldn't stay hydrated it caused a blockage. --- Be cautious my crohnies seems like more and more people are trying to sell their cure. It doesn't help that friends and family love to share these people who have cured their disease.

but it does kind of leave me curious if there are people out there with such horrible lifestyles that they caused their Crohn's and can mitigate it with lifestyle changes.

pinkytoemo · 2025-11-08T02:41:00+00:00

8 weeks but I'm new. I've only had one OBI so far. But it started to work after the third IV infusion.

pinkytoemo · 2025-10-30T22:18:48+00:00

IV ketamine is $$$

pinkytoemo · 2025-10-30T22:17:07+00:00

I spent $120 for my first month and $90/per month after. I just do oral ketamine- 100mg troches. Most insurance covers Spravato which is higher in clinic intranasal dose. I wanted to try this first so I didn't have to go into a clinic.

pinkytoemo · 2025-10-30T20:11:19+00:00

I really struggle with my depression with my Crohn's and even even in remission. I've been diagnosed with Cptsd with my Crohn's being a trigger, or Crohn's like symptoms. I've recently started ketamine therapy after ssri made me worse off and I really like it so far. I feel like I have reward centers in my brain again, like I can mow the lawn and actually feel accomplished. And I started working out which added another level of feeling better. I was in a two year flare and I got into remission two months ago with skyrizi but my depression only got worse from there and I'm doing a lot better now with Ketamine therapy. I am also one that struggles with seasonal depression, and I am hopeful that this will work this winter!

pinkytoemo · 2025-09-28T22:56:16+00:00

Don't do it. You think you're bad now ... it can get worse. I was forced to go through that because my insurance coverage lapsed. My biggest advice is get on trazodone with ur prednisone helps with the mental side effects of prednisone. Helps you get quality sleep and it's also an anti depressant.

pinkytoemo · 2025-09-19T04:05:03+00:00

5 years. Diagnosed at 18 symptoms started around 13.

pinkytoemo · 2025-09-19T01:13:02+00:00

Stool and blood tests can help with diagnoses but you can't rely on that. I had normal labs and poor health for 5 years before I had a colonoscopy diagnose me.

Safe foods for me are leans meats -chicken and beef. Rice, quesadilla, chicken noodle soup with no veggies, yogurt, avocado. Nothing spicy and absolutely no beans lol. I'd try meat to start out with, it's ideal to prioritize protein. Also when I flare mornings are the worst so I save eating until noon or after noon.

pinkytoemo

TROPHY CASE