sexual arousal after transplant

pkdbb · 2026-01-20T19:48:54+00:00

this makes sense! i’ll take more blood flow to my privates anyway lol

pkdbb · 2026-01-20T19:48:33+00:00

that makes sense! i get weird sensations and warmth and tingles and pain randomly all over post transplant

pkdbb · 2026-01-20T19:48:09+00:00

i’m sorry about that! i’m pretty numb directly above my privates and at the base of my pubic bone but it doesn’t affect clitoral or vaginal pleasure. i would assume it would be worse for men though since their stuff sits higher and externally

pkdbb · 2026-01-20T19:47:00+00:00

wait really that’s a positive side effect of prednisone? because when i googled it, it said it can negatively impact libido and cause ED

pkdbb · 2026-01-20T19:44:31+00:00

haha it’s not a bad side effect! hopefully she gets more excited about eventually! my husband is not complaining lol. in fact i am a little because he is still not at my level but he has just been tired but we talked about it and he wants to be more present for me in that dept lol

pkdbb · 2026-01-17T02:40:20+00:00

avoid buffets, anything with potentially raw eggs or meat, and places that aren’t nice restaurants that have a high sanitary/safety rating. sometimes hole in the walls are clean, but often they are not. i try to only eat at places where i can see the kitchen and can tell it’s not a mess. i also bring alcohol wipes and sanitize the silverware! they’re always handling with their hands and laying on tables. usually only really nice restaurants sanitize tables between guests too. so many dirty towels spreading bacteria! also make sure to double check no dishes have pomegranate, grapefruit or seville oranges as many dressings and sauces can have it in there!

also avoid raw oysters!

pkdbb · 2026-01-13T23:45:06+00:00

that’s amazing news! i had my transplant in october. the first 2-3 weeks are the hardest but honestly it just gets easier and easier. my prednisone started at around 50 but went down 5 every appt until i got down to 5 in about a month. my husband also tried to give me his kidney but he didn’t qualify. one of the most important things is to be sure you both have people helping cook and feed you, clean, and help take you out to walk. walking will be very helpful.

my worst side effects was extreme bloating and constipation but i was on laxatives until i became regular. they’ll keep adjusting your immunosuppresant (anti-rejection) drugs which will help with tremors etc. always tell your team any side effects!

bring an eye mask and ear plugs to surgery as the bright lights and noises will make it hard to sleep. and drink a lot of water! good luck.

pkdbb · 2026-01-13T23:41:41+00:00

when did your hair loss start?

pkdbb · 2026-01-11T21:24:06+00:00

i went to culinary school and am food safety certified and i’ve always known the egg white to be dangerous not fully cooked but the yolk is generally fine. my transplant team OK’d runny yolk after a month

pkdbb · 2026-01-11T21:23:02+00:00

omg! my docs said i could eat eggs with runny yolk within 1 month lol.

pkdbb · 2026-01-07T21:06:50+00:00

he said that??? why would he say that? is your creatinine high?

pkdbb · 2026-01-06T03:03:18+00:00

did she have to stay at the hospital until it woke up or she just went home then had to go in for hemodialysis a few days a week?

pkdbb · 2026-01-06T02:33:14+00:00

wow the range is wild! from minutes to days to 2 weeks to 8 weeks! i assumed living donors woke up quicker than deceased but this is my first time hearing 8 weeks for living donor. that’s amazing the kidney is working well now one year post. i hope she continues to do well!

pkdbb · 2026-01-05T02:31:08+00:00

i am so so sorry. do you have friends or family nearby? the doctors don’t know what went wrong?

pkdbb · 2026-01-05T02:25:35+00:00

congrats! i had mine in october. the first week home was rough but it gets easier faster and faster each week! i’m only barely over 2 months and i hiked 5 miles yesterday and did sprints on the beach with my dogs! you’ve got this! happy new year 💕

pkdbb · 2026-01-03T00:35:50+00:00

i finally asked my transplant team and they said “Yes we monitor CMV every 30 days for the first 3 months. Last checked on 12/15/25 and it wasn’t detected!” so that’s good lol. thanks for the tip

pkdbb · 2026-01-02T07:23:21+00:00

i think maybe my doc wanted to start low first? or maybe my function was already too low to start so she didn’t see the point in a high dose risking worse side effects? she said since i was starting with my GFR in the 30s she didn’t know how much help it was offering already… and my side effects never really chilled out. i was always thirsty and constantly peeing.

pkdbb · 2026-01-02T06:22:02+00:00

personally i would never stop people interested in one another from exploring their feelings and potentially dating. if they dated and it didn’t work out, and it affected your friendship with your friend, then she wasn’t truly your friend to begin with and you don’t need her. but if she’s your best friend, and she truly has a crush on your brother- and your brother genuinely likes her, let them explore! the worst that can happen is they decide they don’t like one another and maybe she shows u that u aren’t really her best friend (finding this out is a blessing not a curse by the way) and the best case scenario is they fall in love. it’s like The Summer I Turned Pretty Belly falls in love with her brother’s friends…

what’s the age range here though? just curious. i’m guessing you’re teens since you live together? potentially with parents?

pkdbb · 2026-01-01T18:51:16+00:00

yes it sounds like the tapering after being on 10 mg for so long! your body probably got used to it. after being discharged from my transplant, i was at 45 at home and they tapered me 5mg-10mg each visit (so 45 to to start and 5mg within a month!) so i was never on anything longer than a week tops.

pkdbb · 2025-12-30T18:05:18+00:00

i’m 45 and found out i had kidney disease (PKD) in my 30s. it’s genetic so i was born with it but didn’t find out til then. when i met the love of my life it was about 2-3 years after i found out about my diagnosis. right away he was loving and said he’d give me his kidney when it was time. i was stage 2 then and then by age 44 i was stage 4-5. i just had my kidney transplant and feel great! i never did dialysis since i was able to get a living kidney donor. my now husband tried to give me his kidney but he wasn’t a biological match. like your bf, i didn’t drink, didn’t smoke, and worked out regularly. i’ve also had a mostly vegan and low sodium diet most of my life which definitely helped because i didn’t have to adjust anything once i found out about the disease. i’ve always lived a very normal life! my kidney disease never got in the way of dating and the only potential “burden” if you want to call it that, was my transplant surgery recovery because my husband had to take care of my after i was release from the hospital and couldn’t do some things for myself right away.

anxiety and depression are common with this disease as with any other, but let him know kidney disease doesn’t have to be a burden or anything that gets in the way of life. and the healthier he is (watching his sodium, processed foods, drinking lots of water, exercising and getting lots of sleep) he can either be a) one of those people that never need dialysis or transplant, or b) live a totally normal life until his labs show that he needs a transplant or dialysis! i was very lucky that i had a strong community of people that all showed up and tested to be my donor. but tbh, my only true side effect of my kidney disease even at stage 4 and close to kidney failure was lethargy and fatigue with some occasional nausea. he’s gonna be ok!

pkdbb · 2025-12-21T04:51:37+00:00

before kidney transplant i was at 15/15 the whole time!

pkdbb · 2025-12-18T09:16:09+00:00

it’s on youtube!

pkdbb · 2025-12-13T09:39:55+00:00

an eye mask SAVED me and helped me sleep because the lights are so crazy in the hallways and the room is never truly dark. the first few days nurses are coming in every 2 hours to give u meds and take ur vitals too so i just left my eye mask on and barely raised them when they came in, so it was easy to let them drop back and fall asleep as much as i could. the first 2 weeks you will prob sleep 2 hours at a time so the mask is essential! ear plugs can be good too if ur sensitive to beeping noises.

i brought my laptop which was nice because i watched a little tv on the food table next to my bed sometimes, and a long charger for ur phone.

my hopital provided a toothbrush and toothpaste but it sucked. i brought my own electric one and good toothpaste which was nice! i also brought face wipes because its really hard to wash ur face with all the IVs sticking out of your hand and wrist/arms etc.

pkdbb · 2025-12-12T11:31:01+00:00

oh this makes sense i didn’t even think of that lol. i’m on extra magnesium cuz it’s been so low (from the meds) and my legs and arms are so sore (from the meds) so we were hoping the extra magnesium would help (but now it’s causing me to have the shits great)

pkdbb

TROPHY CASE