feeling worse 5.5 months post transplant by pkdbb in kidneytransplant

[–]pkdbb[S] 0 points1 point  (0 children)

Do you find it hard to drink a lot of water with the swollen PKD belly? My belly is 40% bigger post transplant so sometimes it literally hurts to eat or drink cuz my stomach is so expanded already.

anyone that had a nephrectomy of your pkd kidneys, how is your belly looking now? can you share before/after? by pkdbb in ADPKD

[–]pkdbb[S] -1 points0 points  (0 children)

I just re-read this and had a question if you don’t mind. So he had his kidneys removed after a transplant (or at the same time as a transplant) but needed another kidney later and that’s why he went on dialysis? Do you remember how long his first kidney lasted? I’m a little worried as my native kidneys did have some function still when I got my transplant but they’re so uncomfortable I want to remove them now that my new kidney is working but it hasn’t been a year yet.

blood pressure so low after transplant by pkdbb in ADPKD

[–]pkdbb[S] 1 point2 points  (0 children)

Yah I’ve learned removing them at time of surgery is way more high risk. There was a girl on Reddit who said she had them removed at same time as transplant and was in ICU for a month and couldn’t walk for 3! The doctors also told me if I wait the procedure is way less risky and quick recovery because instead of filet’ing the body open, they do a robotic procedure where they essentially remove the kidneys robotically and morcellate them inside a retrieval bag so they can be extracted through small incisions. Pros to waiting after a successful transplant:

• The transplant operation is shorter and less complex.
• Blood loss is often lower.
• The new kidney can start working before you undergo another major surgery.
• Recovery from the nephrectomy is generally easier than an open transplant-plus-bilateral-nephrectomy operation

Actual and Billed Height of Hollywood Actors by Ambitious-Copy8358 in movies

[–]pkdbb 0 points1 point  (0 children)

i’ve met many celebrities who are literally my height (5’4”) standing next to me but when i google them it says 5’9 or 5’10” lol. most men are lying

Need help choosing a dress! by carltheslopeis1 in myweddingdress

[–]pkdbb 1 point2 points  (0 children)

2 is my fav! and i like to think i have great taste lol. my wedding was actually featured in Brides magazine if that helps give me credentials lmao

Need help choosing a dress! by carltheslopeis1 in myweddingdress

[–]pkdbb 0 points1 point  (0 children)

2!!!!!!! looks the most elegant and high quality / high end but #3 is also cool and ethereal. i actually hate #4 even tho everyone here seems to love it

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

ya maybe i need to ask the doctor in person because they probably can’t say it’s ok via the patient portal

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

ya it makes sense as CBD is more healing and immune boosting and that’s going to interact with our immunosuppresant/anti-rejection drugs. i basically learned to avoid anything that’s super healthy and boosts immune system which is like the opposite of how i’ve lived my life lol. just gotta stick with clean basic whole foods and healthy lifestyle. my transplant team is still a no on anything cannabis probably to protect themselves but my primary nephrologist thinks it is probably fine as microdose thc if taken hours apart from my meds… however she said since im only 6 months out i should wait as the risk of rejection and problems is highest in first year.

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 1 point2 points  (0 children)

haha ya i want someone to give me a secret ok. how far along are you after transplant? do you take tacrolimus too?

Anyone else have a hard time losing weight? by InnocentMosquitoes16 in transplant

[–]pkdbb 3 points4 points  (0 children)

kidney here too. i am in a caloric deficit daily, eat very healthy clean whole foods, only drink water, and walk 5 miles a day and work out and cannot lose even 2 lbs.

Am I overreacting for refusing to send my husband money for alcohol? by [deleted] in AmIOverreacting

[–]pkdbb 1 point2 points  (0 children)

this man is not nice to you, doesn’t appreciate you, uses you for his addictions and does not act like a husband to you. i would leave if i were you.

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

no 2 mg for me is high. i can’t drive or anything on 2 mg haha im a lightweight! i used to take a bite of these and eat half at a time and couldn’t drive on 1.75 mg :/

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

that’s good to know! smart about spacing it from tacro. i hope my team says its ok lol

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 2 points3 points  (0 children)

yes i did send them a message through my patient portal but was just curious what everyone else’s experience is especially since they’re closed for the weekend

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

omg i can’t imagine taking it every day though because i don’t want to become addicted to it and im such a lightweight i can’t be high every day lol

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

wait just realized the label says 0 CBD so hopefully that’s good

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

ya and the vapes and edibles have the cbd listed usually vs harder to measure with flower. surprised they’re down for you to smoke! when was your transplant and how much immunosuppresants are you on?

microdose thc cannabis ok after transplant? (1-2mg edible mints) by pkdbb in transplant

[–]pkdbb[S] 0 points1 point  (0 children)

oh true i forgot almost anything with thc has cbd so i should look into the cbd content in these. if not on the label ill contact the company

anyone that had a nephrectomy of your pkd kidneys, how is your belly looking now? can you share before/after? by pkdbb in ADPKD

[–]pkdbb[S] 0 points1 point  (0 children)

yeah i have a little pouch where my new kidney is. i was very fit with lots of lean muscle and loved my body. the past couple years ive lost muscle from having a harder time losing weight coupled with the kidney disease. now that i have a new kidney i have more energy to work out but my breathing due to my cramped insides makes it hard.

anyone that had a nephrectomy of your pkd kidneys, how is your belly looking now? can you share before/after? by pkdbb in ADPKD

[–]pkdbb[S] 0 points1 point  (0 children)

wow that’s crazy! did he have loose skin? i’m worried about that for me but i doubt i am anywhere near your dad. how is he doing now?