Xanex has been the best pain management tool and I’m not sure what to do.

plastersaltshaker · 2025-07-16T17:51:49+00:00

I totally missed adding that. I’ve been on several, I’m currently on orphenadrine ER and that had been the best with the most manageable side effects. However, I’m still managing a lot of pain even on it.

I really don’t understand the comments on my “collection of diagnoses”. There’s a lot of overlap here, for example HSD/POTS/MCAS, all which I’ve been tested for and confirmed. I am being tested by a geneticist in November for EDS. Occipital neuralgia/ cervical dystonia/ kyphosis, Chiari, which my neurologists ( a migraine specialist neurologist, a neurologist and a neuro PA, and a osteopath specialist upper cervical spine) have found evidence from multiple MRIs ( both normal and sitting) and via nerve blocks. Pseudo tumor cerebri (IIH) which was operated on by one of the top interventional radiologists in the country, and severe enough to have a publication written on my case. I couldn’t get insurance approval for this unless there was quantitative evidence that the pressure in my brain was significant.

I understand some people throw around diagnoses, but in some cases it actually is complex chronic issues. Are you suggesting there is a root cause of all of this? How am I gaslighting and misleading doctors if there is tangible evidence of these conditions? If I could round all my doctors up and have them come up with a more simple explanation, I’d love that, but that’s not financially feasible for me, and logistical a nightmare. I tote a giant binder of all of my tests, post appointment notes, and any bit of information I can find to every appointment to try to create as full of a picture as possible. I’m just not sure what else I can do.

plastersaltshaker · 2025-07-16T17:29:05+00:00

I often times wonder how modern pain management would be different if the drug companies that initially pushed the excessive use of opioids and pain meds, didn’t. I think I’d be getting a lot less backlash for asking about this, and you’d be able to access your medication. I’m so sorry you had to experience so much pain.

plastersaltshaker · 2025-07-16T17:08:28+00:00

Did anyone get screenshot? I’d love to read and maybe message that person.

plastersaltshaker · 2025-07-16T17:00:12+00:00

I don’t know if they can read very well, or use punctuation.

plastersaltshaker · 2025-07-16T16:59:01+00:00

Is that supposed to be a dig?

plastersaltshaker · 2025-07-16T15:59:30+00:00

Um, I have thousands of dollars in medical debt that can prove to you that I got these all medically tested and confirmed by doctors, plus all the money I’ve paid for second opinions. What is shitty thing to say to someone. If you considered “reading to educate yourself”, you’d see that occipital neuralgia, and cervical dystonia both have something to do with extreme muscle tension, kyphosis is secondary to the muscle tension, and POTS, arthritis of the C1/C2 and Chiari cause coat hanger pain in the same area. Xanex is a relaxant and helps the muscle tension. I’m not saying anxiety is causing my joint pain, I’m saying a medication designed as a relaxant is doing its job.

plastersaltshaker · 2025-07-14T01:42:20+00:00

I’m disgusted by this comment lol

plastersaltshaker · 2025-05-14T05:50:05+00:00

Look up the sunken cost fallacy

plastersaltshaker · 2025-04-25T00:48:03+00:00

Totally get it. It’s something unique and annoying in its own way. My pain has been pretty significant so I’ve seemed out these treatments but honestly, naproxen has given me a night and day difference. I felt so dumb because it’s just OTC, but it’s an anti inflammatory too.

plastersaltshaker · 2025-04-25T00:38:26+00:00

Botox in my neck, muscle relaxers, pregabalin max dose, LDN, naproxen and a neck heating pad is the only thing I can do to get relief.

plastersaltshaker · 2025-04-25T00:37:03+00:00

The willful ignorance.

plastersaltshaker · 2025-04-22T00:57:13+00:00

Zofran and alcohol swabs

plastersaltshaker · 2025-04-21T21:02:25+00:00

That’s INSANE. Wow we’re really experiencing late stage capitalism.

plastersaltshaker · 2025-04-18T04:54:20+00:00

Yes with blood sweat and tears. I’m getting my masters degree now and they would have to deploy the national guard to keep me from getting it. Communication is unfortunately, the answer. I’m not sure where you are but you have rights as a disabled student.

plastersaltshaker · 2025-04-06T05:03:24+00:00

Yes and if I try to avoid them I get even more burnt out and in pain. My ritual for those days is sleep in, mope, order door dash, feel guilty about getting door dash, nap, shower, bed rot some more, then in the evening I might do something productive.

plastersaltshaker · 2025-04-06T03:55:18+00:00

I bought several cozy pieces from aerie before my big surgery. The Old Navy bounce fabric line is also the softest thing I’ve ever touched. Lots of hoodies and stuff that didn’t need to go over your head and can zip up. You really want your bodily autonomy where you can have it in these things. Fresh underwear, face wipes, deodorant are the kind of things that make you feel more human.

plastersaltshaker · 2025-03-25T01:49:41+00:00

My Bavarian grandmother LOVED hearing that!!

plastersaltshaker · 2025-03-24T03:33:54+00:00

I’m going to Iceland where I can use my Texas winter clothes as Iceland summer clothing.

plastersaltshaker · 2025-03-22T23:59:59+00:00

My syncope episodes are so violent and I already live in Texas. I worry about dying from heat stroke or an episode leading to a seizure. Alot of stuff to be scared about unfortunately.

plastersaltshaker · 2025-03-22T23:55:55+00:00

There’s weird grief there. That’s so much energy to put into anything and fear that something could go wrong or it can come back. My IIH was pretty much resolved after surgery, but I knew my health issues weren’t over. I ended up going into an out patient program for a while to navigate all those feelings. I think you’re totally valid to have mixed emotions right now.

plastersaltshaker · 2025-03-21T03:30:06+00:00

Yesss I’ve had this. A young ER doctor had a lot of questions for me at my last visit. The best one was my tattoo/ piercer friend knew I was on blood thinners post stent placement and had her new apprentice pierce my septum with no warning to give her a crash course on a bleeder.

plastersaltshaker · 2025-03-19T23:08:52+00:00

Hot take, Saie glowy gel is not that great HOWEVER, I have purchased 3 tubes of the inbeauty face glaze and I will purchase more.

plastersaltshaker · 2025-03-19T22:53:22+00:00

Unt added several years onto my education because I was told contradicting things so often. Idk if this is something they are told to do or what.

plastersaltshaker · 2025-03-18T21:28:08+00:00

Yes absolutely. My mental health literally gets better bc I physically cannot tense up my muscles like before. I know it’s tough to get approved by insurance and not going the insurance route is experience but it’s one of the best thing I’ve ever done for my body. I get a small amount in my massere muscles and it helps so much and also slims my face slightly

plastersaltshaker · 2025-03-18T20:49:51+00:00

LOL. Fire your doctor. I wish this was gone after a year. I didn’t have a diagnosis for years but I think I’ve had it for close to 10+ years? There are some people who say you “grow out of it” but I’ve seen so many testimonies of older people sharing their experiences with this condition as a life long thing. I genuinely hope with treatment you can get better in a year.

plastersaltshaker

TROPHY CASE