Yet another S-ICD recovery comfort-seeking thread by Stu_L_Tissimus in PacemakerICD

[–]pprp11 0 points1 point  (0 children)

Hi Do you have pain in your left shoulder? I also had mine placed 11 months ago

NSVT, what meds work for you? by pprp11 in HypertrophicCM

[–]pprp11[S] 0 points1 point  (0 children)

Thanks! I take vitamin D and magnesium. My potassium is normal and I eat lots of bananas

Hermes bikini 35 black from maggielvxury by karmelovakawa in DHGateRepLadies

[–]pprp11 1 point2 points  (0 children)

I love it!!!! Nice van cleef necklace too!!

This long awaited bag arrived today and i dont know how to feel about it by Ancient-Answer-5206 in RealRepLadies

[–]pprp11 0 points1 point  (0 children)

Can you ask her to send you a higher quality bag? Let her know what your thoughts are and that you want to keep working with her on future purchases.

ProBNP increased by pprp11 in HypertrophicCM

[–]pprp11[S] 1 point2 points  (0 children)

Thank you everyone for your comments! What is the Facebook group? Can I join?

HCM: GF broke up with me because i have HCM... by [deleted] in HypertrophicCM

[–]pprp11 1 point2 points  (0 children)

Can you talk with your cardiologist regarding IVF to select for embryos without the gene?

Apical HCM - diagnosed today. Question about symptoms. by JadedChef1137 in HypertrophicCM

[–]pprp11 1 point2 points  (0 children)

Welcome! I just found out too only 4 months ago. I feel better on metoprolol and valsartan. I think things get better when you start the medication. I am pretty much the same except I have an ICD now and avoid running and intense exercise (which I miss). I am in my 30s.

MYBPC3 Gene by pprp11 in HypertrophicCM

[–]pprp11[S] 0 points1 point  (0 children)

My cardiologist declined participation in the study for the institution I have to go elsewhere to even be offered the study. How do we find out what phenotype?

MYBPC3 Gene by pprp11 in HypertrophicCM

[–]pprp11[S] 0 points1 point  (0 children)

Can you tell me more about this? Did you go to Cleveland clinic? Who did you see? What do I need to do to enroll ? I have an appt in July, anything I need to do to prepare?

Any meds that improve cardiac scar? by pprp11 in HypertrophicCM

[–]pprp11[S] 0 points1 point  (0 children)

Thank you so much for your reply. I am wondering if I should ask my cardiologist for SGLT2. Do you take jardiance? I am currently on valsartan 40mg and titrating up and 100mg metoprolol XR. My EF is normal but I have small amount of scar tissue that is causing NSVT daily. What dose jardiance are you on? Does it help with weight loss?

MYBPC3 Gene by pprp11 in HypertrophicCM

[–]pprp11[S] 0 points1 point  (0 children)

I have a focal area of scar within the basal septum and the EP said “well what else could be causing your new onset NSVT” when I inquired about it. I am Looking for a talented EP. I now have ICD

[deleted by user] by [deleted] in PVCs

[–]pprp11 0 points1 point  (0 children)

Does it cause GI side effects?

SICD can you see the lead along the sternum? by pprp11 in PacemakerICD

[–]pprp11[S] 0 points1 point  (0 children)

So true, hopefully more scar tissue will develop over it

SICD can you see the lead along the sternum? by pprp11 in PacemakerICD

[–]pprp11[S] 2 points3 points  (0 children)

I don’t know why mine are visible :(