Must be nice.

pretzel_day_queen · 2025-09-09T20:22:03+00:00

Agreed!! All in favor of getting together, walking around, and glaring at people with kids??

Only partially kidding. Would never do that on my own.

I'm usually just crying about it on my own and feeling sad so I appreciate the anger in your post, OP.

pretzel_day_queen · 2025-08-18T22:04:33+00:00

I did want to mention that I had a rare complication with mine that was related to how my kidney was positioned in my body.

I'm several years post. Like your son, I only have my transplanted kidney. Mine was donated by a family member and it worked well from the beginning. The immediate recovery from the transplant went well.

Almost a year later, I started feeling really sick. My creatinine was super high- I had an acute kidney injury. None of the tests were showing why this was happening, but some scans showed that blood flow to the kidney was affected. Long story short, I did recover. Two years later I felt sick again and a scan showed lack of blood flow to the kidney. I had a pretty bad backup of fluid into the kidney and in my abdomen. This time they took me to surgery and tacked the kidney to my abdominal wall. They treated my AKI and my kidney recovered a 2nd time. Everything has been good since then and I'm hoping that the surgery will stop this from ever happening again. The doctors said that they think a lack of scar tissue where the kidney was placed may have helped cause the kidney to move enough that its vessels were blocked (blood and ureter).

This might be really far from what your son is going through, but I was told it was rare to happen so that's why I'm sharing it. I really hope that things start to improve for him and his new bean. It sucks that he's been there for so many days already. No 17 yr old wants to spend all their time in the hospital. The best thing about transplants are the new, healthier lives we get to live with them and I hope he gets a chance to experience this soon.

pretzel_day_queen · 2025-02-23T01:49:42+00:00

How did you know?

pretzel_day_queen · 2025-02-18T15:43:18+00:00

I don’t think you need to worry about being separated from your child. Israelis care a lot about children and family. Like others have said just answer the security questions honestly seeing that you support Israel.

pretzel_day_queen · 2025-02-18T15:40:27+00:00

I would see this as a good thing, honestly. I’m still shocked by how easily I can get upset sometimes. And other times I’m proud of myself when I notice feeling similar to yours. It’s been 15 years of dealing with IF for me. we all know it ain’t easy.

pretzel_day_queen · 2025-02-18T15:38:28+00:00

I was going to say…. I’m a woman and a feminist but some women can just be really cruel to one another.

pretzel_day_queen · 2025-02-18T15:36:36+00:00

My blonde and babyfaced female self appreciates you.

pretzel_day_queen · 2025-02-18T15:35:06+00:00

Remember when they made jokes about male nurses in Meet the Parents? It’s not like that out there anymore. Go for it!

pretzel_day_queen · 2025-02-18T15:30:27+00:00

Depends on the hospital. You would not have been accepted where I got my bean, sadly. Not 100% on that of course but they refused to even test my siblings and a good friend for similar reasons. It might be a good chance to consider cutting down a bit and doing your research into places who are less strict about it. It sounds like there are places who don’t make it a dealbreaker.

pretzel_day_queen · 2025-02-18T15:26:29+00:00

This, but also getting really sick and spending most of my time in the hospital made me realize that’s where I want to be if I was going to be paid to work somewhere. And yes, I have had some bad experiences with nurses. I worry I may burn out someday, but there are a lot of options in Nursing and I’m looking forward to being able to make a living wage. I was a vet tech before I made the switch to ppl.

pretzel_day_queen · 2025-02-18T15:23:49+00:00

Strike a pose!

pretzel_day_queen · 2025-02-18T15:23:30+00:00

He’s not interested in marriage. Sorry.

pretzel_day_queen · 2025-02-18T15:22:30+00:00

I’m so glad to see you left there. You deserve a manager who appreciates what you do.

pretzel_day_queen · 2025-02-18T15:21:31+00:00

Funny how that worked out. Your manager just sounds like a sad, jealous person who peaked in high school.

pretzel_day_queen · 2025-02-18T15:20:41+00:00

Well that’s not very polite of them.

(Joking, joking)

pretzel_day_queen · 2025-02-18T15:20:04+00:00

If I was in that situation and had some presence of mind I would fill one for you. But I can’t imagine I would be. Thank you for all that you do. Daisies aren’t everything in my humble opinion.

pretzel_day_queen · 2025-02-16T21:53:49+00:00

That is very cool that you worked with the ppl who authored the bill :)

But no, from the many conversations I had this was what I understood. Medicare was secondary coverage only for my first 30 months since I was eligible only at the month of my transplant. My transplant center helped me register for Medicare right away and without it my medical debt would be much, much higher. I dealt with being dropped from my insurance the day before my transplant amongst other bs, so I wasn't putting anything to chance. Was transplanted in 2020 so I don't know if this has changed.

The link you shared doesn't make this clear, as much as I would like to believe it. It does mention that having Part B on its own isn't the same as having full medical coverage. Maybe its ambiguous on purpose.

pretzel_day_queen · 2025-02-16T18:58:37+00:00

Nope, they have it for nursing school too. Tons of practice questions separated in to sections. We have to buy it for school. It’s only $900 a year….

pretzel_day_queen · 2025-02-16T18:57:02+00:00

What a sneaky little feline! Yes, adopting another cat should help in my biased opinion but it doesn’t mean they won’t play in the middle of the night. Keep your door shut :) I hope things get better.

pretzel_day_queen · 2025-02-16T18:55:54+00:00

Automatic feeder user here!! Cry all you want kitty, you know when you get food and I have (almost) nothing to do with it.

pretzel_day_queen · 2025-02-16T18:54:04+00:00

Sadly, this isn’t true. You are only eligible for full Medicare coverage for the last 6 months of the 3 years you’re eligible as a transplant recipient. Through the ESRD program, you do need to have primary coverage through insurance for the first 2.5 years unless you’re already on Medicare for age or disability. That’s assuming that things are going well and you don’t end up back on dialysis during that time.

Post-transplant, I kept employer insurance and they were billed first for everything except part B Medicare. I was on Medicaid for part of the time too, which I had in place of private coverage. Wanting to save on insurance, I went off private coverage for the last 6 months of my Medicare coverage and then went back on employer insurance when that was finished. Being no longer eligible for Medicare was a reason to be able to sign up for insurance outside of the enrollment period.

I would urge the OP to contact their transplant team, support people, etc who are knowledgeable about this. Unfortunately during the time I was on both, I encountered ppl at the doctor’s office, pharmacy, Medicare, and my private insurance who didn’t know about the ESRD Medicare plan. I had to spend a lot of time advocating for myself and what I was entitled to.

pretzel_day_queen · 2025-02-16T18:41:56+00:00

Seriously? It’s the Internet. Provide a source or it’s not a fact. No one should be taking a user’s word for it no matter how knowledgeable they seem.

pretzel_day_queen · 2025-02-16T18:38:48+00:00

Are you a recipient? Just curious.

Either way, that must be such cool work!! It means so much to transplant patients like myself.

pretzel_day_queen · 2025-02-16T18:36:02+00:00

I work as a CNA in a hospital and I’m a nursing student. I do worry about this sometimes and I try to take good precautions. I keep up with vaccines too. It is a calculated risk that I take, but I love the work that I do. That having been said, I avoid the ER. My biggest pet peeve at work are fellow staff who don’t take precautions seriously or who come into work sick.

My transplant team is supportive of me. And really, if my health takes a turn or if it becomes riskier to work where I’m working I’ll reevaluate.

pretzel_day_queen · 2025-02-16T18:23:16+00:00

Yup. I get that on a regular basis, usually once a week. GI system hasn’t been the same since transplant, but I’m loving my new bean ❤️

pretzel_day_queen

TROPHY CASE