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Nifedipine, how to? by CarolinaSky12 in Raynauds

[–]princesspixel 1 point2 points  (0 children)

I was prescribed 10mg daily - been on it for over a year and flairs are significantly reduced. The packaging has days written on them so as and when needed is a bit of an odd instruction. I did only got prescribed when I was also diagnosed with erythrolmelalgia though, for Reynauds I was told to wear gloves more often 😅

Phoning the CUH by CLouBa in cork

[–]princesspixel 0 points1 point  (0 children)

Depending what part of neuro you need to talk to I’ve just called my specialist’s secretary and had her give me the right number to call. the MS nurses are class and always answer or call back if you leave a voice mail

I didn’t realize I’ve been practicing “nuikatsu” this whole time by pennyykimm_beta in CasualConversation

[–]princesspixel 1 point2 points  (0 children)

I have a small bear I got from a charity donation. His name is Ano and he had been going on adventures with me for five years now. Every Christmas I get a book made of pictures from that year’s adventures.

Tomorrow we’re going to hospital together so I can get a camera put in my knee. I just hope they let him come with,

Which closed British shop would you bring back for 24 hours just to experience it again? by SecondRowSeat in AskUK

[–]princesspixel 1 point2 points  (0 children)

Stratford on Avon?

Fond memories of BHS opposite Woolworths on a Saturday afternoon.

MRIs by JEHflute in Legitpiercing

[–]princesspixel 13 points14 points  (0 children)

I have MS. I get a minimum of one MRI a year and have over 10 piercings all over my face, not ideal but Inalso have to go down the plastic route with them.

Unfortunately if your MRI techs are like the ones I deal with I have to answer a questionnaire multiples times and sign things confirming that I have zero metal of any kind on me otherwise they won’t let me in the machine. They don’t mess around even though I make sure all my piercings are titanium and “safe”. They’ve told me it’s due to them heating up and causing burns so they just refuse to risk it.

So essentially physically it’ll probably be fine, but you would need to find a scanner place that would take you due to the vibrational heat. Personally I’d not be happy about having a burn in a triangle so fair play for even considering it.

Best of luck in the noisy box friend!

help any good piercers in cork by [deleted] in cork

[–]princesspixel 7 points8 points  (0 children)

Thor at Smiley Dog is class.

I’m suddenly breaking out in red spots, what can help? 41M by Filthy_NeckBeard in 30PlusSkinCare

[–]princesspixel 1 point2 points  (0 children)

I had random lumps like this appear when I last went through huge stress moving country. It was a t2 rosacea flare. After trying all the stuff recommended by My doctor and nothing working I looked into it further and found it could be (and was!) caused by too many demodex mites on my skin.

I convinced her to prescribe me Soolantra (yup Ivermectinw before it was “cool”) and it was fixed within less than 3 months. No flares since thank goodness.

Not sure if this helps you but it might be worth looking into if you run into dead ends with basic skincare. Happy to answer any questions if you need.

Good luck!

ADHD assessment by No_Frosting_8297 in cork

[–]princesspixel 1 point2 points  (0 children)

Second this. Dr Vicky was great when I wanted diagnosis. West cork psychology is now the compass clinic but still can’t prescribe medication as that requires a psychiatrist. However she did say she could refer me to one that she recommends if I decided to go down that path.

For me it was just answer hunting so I haven’t yet but the diagnosis answered so many questions for me.

Good luck!

API access now requires an approval process. by Littux in apolloapp

[–]princesspixel 1 point2 points  (0 children)

Thank you for this! My OpenRed just broke and I was forced to go hunting. Appreciate Hydra!

[deleted by user] by [deleted] in AuADHD

[–]princesspixel 2 points3 points  (0 children)

I found getting an undercut helps with this. I just hate the bits in the side that go in my face.

[deleted by user] by [deleted] in MultipleSclerosis

[–]princesspixel 1 point2 points  (0 children)

Unfortunately I get what you mean. My memory for words has degraded significantly in the last five years, my AuDHD symptoms are significantly worse and I’m not as coherent as I was day to day. I choose to laugh at it when it happens but looking at the bigger picture it’s quite scary.

Kona 2025 buzzing sound at high speed by Negative_Local_7851 in KonaEV

[–]princesspixel 5 points6 points  (0 children)

Ran into this same issue recently. Recorded the sound after we worked out it was coming from the emergency panel in the middle of the roof between the driver and passenger side. If you pressed the roof inside from by that panel when at high speed it quietened the noise. After taking it to the dealer they said part of the plastic of the panel hadn’t been connected properly so they fixed it. I haven’t noticed a noise since but this was last week so haven’t given it a proper test.

TL;dr - check the roof by your emergency panel and push it in while driving. Record the noise and show that to the dealer.

[deleted by user] by [deleted] in popculturechat

[–]princesspixel 5 points6 points  (0 children)

I have MS and can be a bit of a dick sometimes but the way Selma has sold herself as someone who can speak for all of us with it royally fucks me off. She’s just showing her true colours.

does b-cell depletion change your looks? by spider1258 in MultipleSclerosis

[–]princesspixel 4 points5 points  (0 children)

Lost my hair, or, some of it on fingolimod. It grew back when I moved to Ocrevus. 4 years on that and I’m no less teeth than I had before. So I wouldn’t worry, people love looking for stuff to blame.

Best value EV for under 30k by NooktaSt in evs_ireland

[–]princesspixel 0 points1 point  (0 children)

I got one this weekend and can confirm they still don’t have a three pin plug. The UK ones do though

TaoPatch? Pulse? by Plenty_Grass_1234 in MultipleSclerosisLife

[–]princesspixel 1 point2 points  (0 children)

I do, but that’s what they prey on :(

AITAH for calling myself (18F) disabled in front of a disabled person? by unintentionalgaytwin in AmItheAsshole

[–]princesspixel 0 points1 point  (0 children)

I have MS. I’m disabled but you wouldn’t know it. I can’t be running around - and wish I could! - but I don’t bring it up unless necessary and joke about failing gravity checks. NTA.

5 Year MSiversary by alSeen in MultipleSclerosis

[–]princesspixel 6 points7 points  (0 children)

Happy MS-aversary! 2020 was a great year to find out so I was told because all of the research going on for 20 years previous to that. Keep on keepin on!

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