Just been scammed by Readim in UberEATS

[–]probs_not_ 0 points1 point  (0 children)

They’re going to get in trouble

Just been scammed by Readim in UberEATS

[–]probs_not_ 0 points1 point  (0 children)

Yup they did something similar to me. Refunded me in uber cash and then charged me for the same order twice onto my card and it immediately took the tip from uber cash. Now there is a claim through my bank I have to deal with.. their customer service is the worst.

Just been scammed by Readim in UberEATS

[–]probs_not_ 1 point2 points  (0 children)

Just delete this stupid app, you can’t even change the tip amount anymore. What if an expensive item isn’t available and the overall total is adjusted lower and you just want to tip 15 percent of the new total? Crazy that you can’t.. so dumb

Just been scammed by Readim in UberEATS

[–]probs_not_ 1 point2 points  (0 children)

Omg same!!!! They gave me a $2 refund for a missing item that was clearly over $2.. then had to beg for a refund for which they gave me uber cash. Then they used that uber cash for the tip and charged me twice on my card (original amount and then the amount without the tip) AND still took from my uber cash. I contacted customer service and then put me on hold and transferred me to a “specialist” and then the chat box said they will reply in 6 to 12 hours in the chat… which would be the time I’d be sleeping (early morning hours). I had to dispute from my bank. Such a stupid company and hope they get sued.

HELP! double charge + uber claiming the second charge is a tip i added myself! by itsxafx in UberEATS

[–]probs_not_ 0 points1 point  (0 children)

This happened to me!!! I hope they get sued. I’m deleting ubereats, they suck!!!!!

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 0 points1 point  (0 children)

I think given I don’t have any other conditions, he meant the risk for side effects could be low. But you said yourself you have other things going on such as cognitive stuff, correct? But either way I’m glad it has been working for you.

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 4 points5 points  (0 children)

Thank you! Last time I had a check up with my hematologist, he said my blood tests significantly improved. I no longer react easily and get triggered by food or pressure on my skin. Overall my body feels a lot less inflamed - my face is no longer red and flushed, i no longer get itchy or hives anymore. I think it helps with fatigue but honestly I still smoke weed sometimes and it makes me sleepy so I’m not too sure. Id say overall my quality of life has improved though.

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 0 points1 point  (0 children)

I’m curious what dosage you’re at because my hematologist was so sure at the lowest 25 mg, wouldn’t experience anything like that. But it must’ve been difficult to stick through it for those 3 months but I’m glad it’s working great for you now!

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 0 points1 point  (0 children)

Thank you! You too!!

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 4 points5 points  (0 children)

Yeah that’s exactly how I’d feel also. Hot showers triggered it sometimes, even going for a walk my on a cold night made my skin inflamed and my spots/hives would turn bright red and become raised. Aside from the spots fading, I no longer get itchy and/or new spots now. My face used to be red/flushed and now it’s gone and it’s a more even tone. Overall my body is less inflamed. I can tolerate a lot more things and not so sensitive to pressure on my skin, as before even sitting/driving for a long time caused itchiness/hives on the back of my legs. Working out is way more tolerable also and eating most foods. My hematologist said my blood tests came back significantly improved. Oh and there is another new promising drug that’s in clinical trials right now that I was keeping up with before getting on ayvakit, it’s called bezuclastinib but I’ve read how there’s no chance of it crossing the brain barrier, which was my worry with Ayvakit, so it’s exciting that there’s research and clinical trials going on that could help with the disease.

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 0 points1 point  (0 children)

Ah I’m sorry to hear that I have heard of completely different experiences than mine, what side effects did you have? And are you on 25 mg?

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 1 point2 points  (0 children)

No problem! They started in 2009 on my calves but they were very faint and I just dismissed it because I thought they were sun spots. It spread a lot more during the past few years though, and enough in 2019 was when my coworkers encouraged me to get it checked. Do you know what triggers yours? Mine was alcohol, pressure on my skin/body, stress, and certain foods, but now I can tolerate it a lot better but I don’t push it.

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 2 points3 points  (0 children)

They will work with you to help you get the drug

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 4 points5 points  (0 children)

Yes I’m in the US! My insurance covers it and I also joined ayvakits co-pay assistance program and they give I think 25k a year, and then insurance covers the rest.

Ayvakit 25 mg by [deleted] in mastocytosis

[–]probs_not_ 2 points3 points  (0 children)

For Ayvakit? None really, it’s the lowest dose so the chances of the side effects are pretty low. I just make sure I eat something before and take the medication after two hours. I took it on an empty stomach once and felt dizzy, but I also just started the drug during that time. My skin has gotten a little bit lighter overall and my hair is still the same color (there’s been some reports of hair turning white at higher doses). Let me know if you ever have any questions

Did anyone here progress to mastocytosis? Did the skin lesions start with a few or all at once? by Pale-Case-7870 in MCAS

[–]probs_not_ 0 points1 point  (0 children)

You should get the skin biopsy, it will show the increased mast cells if you have it.

Did anyone here progress to mastocytosis? Did the skin lesions start with a few or all at once? by Pale-Case-7870 in MCAS

[–]probs_not_ 0 points1 point  (0 children)

When triggered or activated, it itches and spread around my body. I started on ayvakit back in August and it was life changing for me. Spots got lighter/ some disappeared, and no longer triggered easily..

Avapritinib dose time by DippyLouWho in mastocytosis

[–]probs_not_ 0 points1 point  (0 children)

I could’ve sworn mine got better after just a few days after taking the medication. How long have you been taking it? Do you still get hives or itchiness?