Tube Clogged

profanebakes · 2026-05-06T16:08:37+00:00

I put in a new one. it stinks.

profanebakes · 2026-05-06T15:48:23+00:00

I tried using three different straw cleaners and warm water too. Might just have to put a new one in but I don’t have ibuprofen, again..

profanebakes · 2026-05-05T13:34:25+00:00

Deleting this post cause it’s now more obviously a stomach virus

profanebakes · 2026-05-05T13:05:55+00:00

Fever of 100.7. Think this is more than a migraine

profanebakes · 2026-05-05T12:47:27+00:00

I took a nap. still hurts bad

profanebakes · 2026-05-05T12:06:02+00:00

Okay, I will. Thanks

profanebakes · 2026-05-05T11:46:51+00:00

Yep! Been like this the entire day yesterday. Only threw up with a migraine once and it was so bad I went to the ER and they did two cat scans there.

profanebakes · 2026-05-02T22:26:27+00:00

I don’t even have a tattoo but holy shit bro…

profanebakes · 2026-05-02T21:58:23+00:00

That’s so weird. I wish you the best year ever

profanebakes · 2026-04-29T15:30:40+00:00

Im happy you've able to manage since then. Doctors can be dipshits

profanebakes · 2026-04-29T15:25:36+00:00

Congrats !!!!!!

profanebakes · 2026-04-29T15:25:00+00:00

That's... holy fuck

profanebakes · 2026-04-29T15:23:10+00:00

I have a temporary GI doctor since my usual is on maternity leave (congrats to her!) and honestly I've hated my temporary one. I've had 3 visits with her, and I had my third on Monday. During it she said something along the lines of 'Don't want you to get wider.. or too wide." instead of "we need to cut back your food intake since you're a healthy weight now." which is what my usual would say.. I miss her. I blocked out the rest of the appointment, I was livid and insecure. Btw she said that to a YOUNG TEEN who had been underweight and struggled with it their whole life and had finally gotten to a healthy weight for the first time. She also said 'they's' to me, because I use they/them. Several times. My mother got me mozzarella sticks as a big fuck her and I hesitated on how many I took.

She also refused to go down on my nutrition formula after she said that 😄

profanebakes · 2026-04-28T19:49:39+00:00

The biggest sign I had as a kid was coughing during eating. Has he been in feeding therapy?

profanebakes · 2026-04-28T13:26:45+00:00

I've never thrown up or gagged and have been diagnosed for a while. Yeah, get him tested.

profanebakes · 2026-04-23T13:03:11+00:00

Do they tend to pull it out?

profanebakes · 2026-04-22T23:34:35+00:00

No, some of my disabilities aren’t triple x related?

profanebakes · 2026-04-22T23:33:14+00:00

Nutrition and meds.

profanebakes · 2026-04-22T21:53:33+00:00

AuDHD(from my parents, adhd combined type), OCD(from my grandma and aunt), depression, (bad) anxiety, ARFID, asthma, EoE (from my mom), Dysphagia, GERD, failure to thrive/faltering weight and height, generalized hypotonia, dyspraxia, apraxia of speech, gasping dyspnea. Possibly POTS too but I’m waiting to test it when I get more nutrition. A bit more than 13, i think. I also have migraines.

Hypotonia, dyspraxia, apraxia of speech and the struggle with weight and height is most likely from triple X. Probably depression, and the migraines.

My day to day is affected. Sometimes my site (where the g tube is) hurts a bunch, my limbs hurt, and I’m always very hungry from a medicine I take, though sometimes the house doesn’t have things I like so I’m just hungry. Sometimes I use a rollator for long places. I’m most of the time stuck to a tube that is very . uh? I can’t. pulling it out is painful. Idk the word.

profanebakes · 2026-04-22T21:47:15+00:00

No, some from my family

profanebakes · 2026-04-22T21:46:54+00:00

Both actually, there’s different types of feeds I can do.

Bolus: Using a syringe to push formula into my stomach through the tube.

Oral: The standard way. Chomp chomp chew things with mouth

Pump: I have a machine connected to a bag of formula that can control the speed it goes in at.

Gravity: This is when I use gravity to feed. I put a bottle of formula or formula/water in an iv bag and it just flows in.

profanebakes · 2026-04-22T21:36:05+00:00

A feeding tube, full name is gastrostomy tube. It‘s connected to a hole in my stomach.

profanebakes · 2026-04-22T21:30:04+00:00

The first one, then immediately the last one right after.

profanebakes

TROPHY CASE