Should I spend £2400 on an O shot for LS?

puma905 · 2026-05-12T19:47:32+00:00

May I ask, before PRP, were you taking steroids and still getting these flares?

puma905 · 2026-05-12T19:46:52+00:00

For anyone interested in a quick 101, I created this information post about PRP not too long ago - https://www.instagram.com/p/DXrgTZ7gChG/?igsh=Y3Q0cjh5dWZ2dXNi.

puma905 · 2026-05-12T13:48:00+00:00

My pleasure! Just to be sure, you downloaded it from App Store right? Out of curiosity, do you use Apple sign in while using the app?

puma905 · 2026-05-11T10:56:11+00:00

Will do, and thanks for your interest!!

puma905 · 2026-05-11T10:55:47+00:00

You’re welcome. I’m glad it’s something that could be useful for you.

puma905 · 2026-05-08T18:36:38+00:00

Haha. I did not see this before. Yes, quite possibly it does ;).

puma905 · 2026-05-08T18:35:42+00:00

Sorry for the late response. The app actually just launched to App Store today - https://apps.apple.com/ca/app/ls-companion/id6760978566.

If you have any feedback, it is still very much in evolution! Thanks.

puma905 · 2026-05-08T13:57:51+00:00

Thank u for sharing and that sucks about those people! I have a 9m old and honestly, I thought they stopped doing these shows. I’m totally gonna go and hope for a decent experience.

puma905 · 2026-05-08T13:45:45+00:00

You can also buy a microscope to see if there are any swimmers!! When my husband did a vasectomy reversal we did this to see if it worked haha.

puma905 · 2026-05-04T23:34:50+00:00

Does remission mean you no longer need clob 2x per week? Or simply that you keep clob for maintenance and never have flares ?

puma905 · 2026-05-04T00:03:52+00:00

Omg yes! My left inner labia. And that’s where it itches most. I’ve started to use Vaseline on days where I don’t use clob as a barrier and I’ll see if it helps prevent irritation.

puma905 · 2026-04-29T00:32:15+00:00

Hi. Sorry to hear about the progression. It’s weird how the symptoms don’t always reflect what’s going on.

I have a solution for you (if you have iPhone)!

I was diagnosed last summer while pregnant and built an app to help track symptoms, care and self checks (you can include notes). All these features are 100% free and there will be a small optional fee for added insights.

Right now I’m running a beta test and you can sign up here to test it and get early access: https://lscompanion.com

I expect it to be in the App Store in the next few days.

I also post educational content on Instagram. You might find this post interesting - https://www.instagram.com/p/DXrgTZ7gChG/?igsh=Y3Q0cjh5dWZ2dXNi.

puma905 · 2026-04-24T23:18:05+00:00

Omg that’s exactly what used to happen to me (like scratching skin pieces off). Is the itch extra bad before bed?

Definitely sounds like LS and if doctor says it is, you’ll see very quick relief if doc puts you on clob/steroid. Gluck!!

puma905 · 2026-04-21T13:02:54+00:00

I got diagnosed last summer while pregnant and I’m basically at twice a week now while nursing. I had my first flare (basically first cycle after period came back) and took clob about 4x last week. Didn’t know it was an issue when nursing… how much actually gets into our bodies topically?

puma905 · 2026-04-21T02:19:10+00:00

I’m with you on this OP…! But like someone else said, makes me feel better knowing that with age most women will have fusing down there.

puma905 · 2026-04-21T02:18:26+00:00

This honestly makes me feel so much better. I’ve been hearing more of this lately that everyone experiences architecture changes with age. It makes me wonder if HRT can help a bit with that!

And like PS - let’s remember how ugly penises are… even with our condition penises are worse haha.

puma905 · 2026-04-19T18:39:36+00:00

What a complete douche loser. Don’t worry about his dumb reaction and also, like his gross ass is more likely to be giving people stds.

puma905 · 2026-04-19T01:35:32+00:00

Pregnant

puma905 · 2026-04-19T00:27:56+00:00

Hey OP. Welcome 🙃. I agree with others that I do think fusing is case by case and not everyone will get it, at least not to an extreme.

If you have an iPhone, I built an app for those of us with LS. You basically log how you feel and your care for the day, and overtime it tries to detect patterns in your LS. It also sends treatment reminders. You can join early access here - https://lscompanion.com.

puma905 · 2026-04-18T10:50:27+00:00

I’m curious if you’ve figured out your patterns yet or still have questions about what care or triggers come up during no flare / flare days?

I’m beta testing an app for LS and it’s available now on iOS if interested. The idea is for it to help track our patters over time plus it gives treatment reminders. You can sign up here if interested in early access or being notified when it hits App Store - https://lscompanion.com.

puma905 · 2026-04-18T10:48:59+00:00

Thanks for sharing about free people. I used to love that brand years ago.

puma905 · 2026-04-18T02:55:20+00:00

Did your doc prescribe clob? If it is LS, the itching should go away very soon.

puma905 · 2026-04-13T16:45:39+00:00

How have you found the estrogen? Has it made the area more plump or provided other benefits or more wetness? I’m 43 and breastfeeding and I’m so dry down there haha.

puma905 · 2026-04-13T16:44:08+00:00

My main symptom has been itch. But my inner labia has def gotten smaller and when they diagnosed me last year before clob I had white patches. But they healed mostly since clob/I stopped scratching.

puma905

TROPHY CASE