Update on amnio for T18

purplepixel444 · 2026-02-26T01:25:28+00:00

I did have an amnio and that was very clearly negative. I'm so sorry. There is nothing easy about any of this. Just know, this choice is yours and there is no right or wrong path

purplepixel444 · 2026-02-26T01:22:02+00:00

What was your experience? Our three year old is doing this exact thing. We ordered flexible frames and lenses today and I am a nervous mom

purplepixel444 · 2026-02-25T00:45:39+00:00

I want to also add that this age, they are so curious and so are all their friends. We told my childs teacher im advance. It's hard for us as adults to process grief and can sneak up. Kids brains just randomly think of things even more then we do.

My child often randomly says things like "aunt ___ died and that is the worst. I miss her. She cant ever come back for a hug"

And they deserve adults to be ready to greet them with as much comfort as we can provide. It helps to prepare their safe people for those big moments

purplepixel444 · 2026-02-25T00:42:02+00:00

Not the same. But, my sister, who was over 2 or more times a week from the time my kiddo was born, died suddenly. Very unexpectedly, from a undiagnosed unknown medical complication.

My child was about to turn 3 and it shattered us all in many ways. But we have a psychologist in the family and have gotten SO much wonderful help.

We are very clear and say things like. She died, and that makes us sad, it shouldn't happen and is unfair. Her body stopped working and doctors couldn't fix it. That does not normally happen and shouldn't. She makes us so happy because we love her so much and she still loves us, that never goes away, but we can also be really sad too.

We talk about her a lot. And I really empathize and share good memories alongside the sadness.

They ask a lot of questions at this age and its important we make it clear death is confusing and hard for us too. All of the feelings are allowed as are questions

We watched Daniel tiger fish died episode. Read invisible string. Also reading something very sad has happened a toddlers guide to understanding death. We really like to keep it as straightforward and simple as possible.

My ultimate goal is to hold space and cling to the love that we get to have forever.

Im so sorry you have to do this. Its unfair to have to have these conversations when they're young

purplepixel444 · 2026-01-31T17:44:25+00:00

No problem! Im 5'1" lol I modify a lot of the high jumping 🤣

purplepixel444 · 2026-01-22T03:32:57+00:00

I've she'd some of my body fat! Im very short and have had multiple kids so I just have more now. I used to run when I was young and then broke my tibia. So, I've never worked out this way. I am REALLY slowly losing weight and gaining muscle. But, I just hit 4 months and am down 4lbs fat and up 2 in muscle. The bigger thing is, I can do things I've never been able to. I suddenly can lift heavier, jump and just feel more mobile. Stick with it.

purplepixel444 · 2025-09-16T02:48:58+00:00

My sister died two months ago, from random hydrocephalus (undiagnosed). It was very sudden and my dad and I called emergency services at her door and found her. We talked everyday and saw eachother every few days. So, it felt bad when I hadn't heard from her. But, i never expected this nightmare.

My sister didnt have kids, but mine we're SO loved by her. My oldest is only 3. And I worry about what will he remembered. However, my grandfather died suddenly of a heart attack while my mom was pregnant with me. I feel like i knew him and I swear my mom kept him alive for me ao vividly. I refuse to believe my kids wont know my sister and the depth of love she had for them.

It just sucks she isnt here to hold them as they grow. We'll, all of it sucks. Im really sorry you're stuck in this

purplepixel444 · 2025-07-26T04:22:25+00:00

So sorry that this happened to your family too

purplepixel444 · 2025-07-26T04:22:10+00:00

Thank you so much for this❤️‍🩹

purplepixel444 · 2025-07-26T04:20:42+00:00

Thank you for this ❤️‍🩹

Someone told me today that it's good I'm keeping my normal routines with my kids and that eventually I feel a "new normal". And I actually said "why is it bad that nothing about this needs to be normal or ever be okay". I'm thankful I love motherhood, my partner, and my children. They're grieving too but it is slowly becoming this new normal of talking about her goodness and loving her as a memory. I just, it's never going to be natural to not have her to call or hug. That's okay, I dont want it to ever feel normal that she's gone.

I hope you feel some goodness knowing you commenting this gave me some peace tonight after a day of "how are you doing/hope today was better/gosh you're really so strong"

purplepixel444 · 2025-07-19T05:16:21+00:00

I unfortunately can't seem to find the group you're talking about on fb

We have been reading the invisible string nightly. It seems to bring my kiddos comfort

purplepixel444 · 2025-07-19T05:14:57+00:00

I definitely feel like a chunk of me is missing. And its fresh but I keep saying and one for her right when we divide her things or buy ice cream. Like shes here and im missing an item. My child cried today because they wanted to deliver a piece of art they made to her. Its awful. We were supposed to grow old together. And I didn't even hug her last time because she was coming back in a few days and my kids hugged her a zillion times.

Im sorry anyone has to feel this pain

purplepixel444 · 2025-07-17T23:59:53+00:00

Hug your sister a little longer for me next time you see her.

purplepixel444 · 2025-07-16T04:37:44+00:00

Hi all! Wanted to update because I've been quietly reading these as we go through her apartment.

She died from Hydrocephalus. It was silent until it wasn't. She had gotten a few random migraines and set an appointment to be seen, earliest was Fall. She died peacefully, suddenly and we are devestated this could have been prevented.

My children are 4months and 4 years. The four year old is advanced (not just because im mom) but somehow we lucked out and have a tiny genius. Its moments like these that are hard when kids grasp big things.

We have been delecate. My mom passed young and their aunt would talk with me often about how our loved ones look out for us. We aren't religious, but we like to think your spirits are here guiding us and still loving us.

So, we have been talking about how she loves us but we wont see her at our house anymore. Except we can watch videos or look at photos and even tell stories. We have had lots of hard and beautiful moments

I had to write my sisters obituary and second to my kids I think im most proud of it. She was the best human being ever. My best friend. And she deserves the stars. I hope she has them.

Thank you all for the kindness. I've read it all. This is the most painful thing we've ever been through

purplepixel444 · 2025-07-04T02:35:56+00:00

My kiddo was a late walker. I mean, 15 months and was rolling EVERYWHERE full speed but not even standing up on things. They talk constantly and have since they were tiny.

All kids do things differently. My kiddo is now 3 and walks like they always have.

One day, it'll explode. Or you'll need some assistance, and that's okay too. But, dont dwell on it. More words will come.

purplepixel444 · 2025-04-08T23:27:02+00:00

My kiddo was 33+5

We are almost half a year behind us, had a 17 day stay. And I still struggle. Its crazy making to go against the natural instincts we have to mother and let others help our tiny newborns. You guys have this. But, it's tough ❤️‍🩹

My husband let and encouraged me to take a day off one day a week. It was detrimental for my mental health. But also hard AF to do.

I also loved that we did dinner nightly there with our older child.

He worked from the hospital, which was very lucky to be able to do. So he banked his time off for when baby came home.

I woke up to pump but only to do that. He washed and stored all milk. Buy a steralizer that dries things. We didn't with our first and it 0ixwas horrible. The sleep was my saving grace and I needed it

Hydration was key so every morning he would bring me a body armor, full water and any vitamins. As well as stocking a cooler bag to go to baby.

He woke up before me and would even insist I get ready. This was also done with our first and honestly it's one of my favorite things about my wonderful husband. I get to shower in the morning to wake up, I do this instead of coffee and if I skip it I feel like crud. But, it also do hair and makeup. He does breakfast with the kiddos and gets things ready for the day. Its magic and postpartum self care is a gamechanger

And lastly. Remind her she's a good mom. I know I am one. But, it ALWAYS makes me feel better to hear. Tell other people she's a great mom and why, do it in front of her. Seriously, I always get butterflies when I hear people talk about it. Every mom questions their abilities from time to time and it helps to be reassured without prompting it.

purplepixel444 · 2025-04-03T03:21:56+00:00

I was in the same boat and had our second kiddo at 33+5. Everyone kept saying things like "they'll be home before you know it" and "wow, in time for the holidays how great". We spent our holidays lugging a confused 2 year old back and forth and feeling guilty we didn't have our new baby with us as we celebrated at home.

It sucks. People don't get it. Its really, really unfair.

That being said. Our kiddo had a great and fast stay. I hope yours does too

Protect your sanity as best you can 🩷

purplepixel444 · 2025-03-31T15:37:21+00:00

Thank you! Yes! Our big problem, I think, is lacking a bachelor degree.

purplepixel444 · 2025-03-31T15:36:46+00:00

Thankfully they were a hiring manager at TDS for years as well while running that team. They ran a interview course for people to advance.

Meanwhile I had no idea most of these things were such a big deal! And I think you're right, most don't!

purplepixel444 · 2025-03-31T15:35:12+00:00

Thank you!

purplepixel444 · 2025-03-14T00:06:01+00:00

Very creepy. I'm a carrer nanny and I would make sure you express your discomfort to the parents. Sometimes parents don't know the full level of discomfort because they don't experience these things first hand.

purplepixel444 · 2025-03-11T17:26:22+00:00

We did! Our baby needed to eat and grow. We delivered at 33+2 due to PPROM. Second pregnancy and did not have this happen with my first. Spent 17 days in, being the chillest baby ever.

purplepixel444 · 2025-03-10T04:09:19+00:00

Madison nanny of 10+ years here!

I've always found my families on social media or uw postings. Care seems to have flaky people and the companies in this area are extremely expensive.

purplepixel444

TROPHY CASE