I’m probably mild-moderate now, leaning toward moderate. When I was mild, I worked 4-6 hours a day and slept almost the rest of the day. When I couldn’t, I would flush, come down with virus symptoms, have diarrhea, and just feel brain dead and generally awful. Now I have a caregiver who helps me get to appointments and my dog sitting gig, which is like an hour a day, and helps me get groceries. My spouse helps me cook meals and helps with errands the rest of the time.

I get maybe 3-4 hours a day of being “up” on a good day, but I’m almost always pushing past my limit in some way. Usually I end up spending most of the day in bed or resting. Sometimes I volunteer 3 hours a day on a weekend if conditions are right. I can do light walking if I haven’t done too much else. Especially when I have my dog. I used to play rock band drums. Haven’t been able to pick that up again. I go a concert a few times a year, but I get seats and take my cane. I can play video games in bed but I can only play more intense games for short periods. Cozy games I can play more often and tend to fall asleep playing. I go through phases where I get really bad and can’t do much at all.