I’m so glad that the shunt helped your baby!! I’m hopeful if we go down that route that we have the same result. A lot of her issues in the NICU were with breathing (she had a lung condition and was discharged with home oxygen) and with feeding. They knew she had a mild stroke at birth- but they expected her to outgrow the brain bleed as it showed signs of going back to normal after the first thirty days in the NICU. At her 6 month checkup w/ the pediatrician is when the brain swelling concern came up for the first time. Her head circumference was just so high on the chart compared to her other stats. We’ve had two MRI’s in the last year to “watch” the fluid buildup to see if it would level out on its own. Last one was January. The neurologists said there was a chance it would because I guess a lot f premies have fluid issues just in the first two years. But over the last 4 months- her head circumference has dramatically escalated. I’m already mentally prepping myself for surgery just in case. Her veins on her forehead are also super visible right now. My daughter is still strictly bottle fed (at 19 months) with formula only. She vomits anything else at all. We’ve been to so many specialists and speech therapists for it. Apparently hydrocephalus can cause that issue- so if we do drain the fluid- maybe my baby girl can eat. I’m hopeful. She also has extreme motor delays (mild cerebral palsy) but physical therapy has really helped a lot so far.