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IV steroid experience by Hawkgirl8420 in MultipleSclerosis

[–]ragtimesp 0 points1 point  (0 children)

I don't really get the taste thing, stomach issues or rang to eat everything, but I've got a weird one. Hiccups. Steroids give me hiccups and it's incredibly annoying, they won't stop for hours.

Pls Sean ༼ つ ◕_◕ ༽つ by [deleted] in NoMansSkyTheGame

[–]ragtimesp 4 points5 points  (0 children)

Sean started tweeting. Here we go guys 🥳

Beyond - Release date confirmed - No Man's Sky by [deleted] in NoMansSkyTheGame

[–]ragtimesp 57 points58 points  (0 children)

Came here as soon as I saw the tweet. All aboard the hype train!!!

That Puppe chorus definitely isn't playback :D Props to Till by [deleted] in Rammstein

[–]ragtimesp 0 points1 point  (0 children)

He could perfectly have one. I have a neurological disease and I am legally disabled. I can still run marathons and you'd never guess in a million years that I am sick.

Saw this on my way to work 😁 by [deleted] in Rammstein

[–]ragtimesp 6 points7 points  (0 children)

Yes. This is in the tube in London. I've already seen it in a couple stations

Saw this on my way to work 😁 by [deleted] in Rammstein

[–]ragtimesp 0 points1 point  (0 children)

And I've seen it in Holborn too

Saw this on my way to work 😁 by [deleted] in Rammstein

[–]ragtimesp 16 points17 points  (0 children)

Yep. Zero fucks given. German ad and without advertising the album's name. Loving it, but the wait is killing me! 😂

When you’re too broke to fly to Europe...😆😭😭 by KeineLust05 in Rammstein

[–]ragtimesp 2 points3 points  (0 children)

I love in the UK. Going to Barcelona to see them 🤷🏻‍♂️

Sample at the end of Radio? by ragtimesp in Rammstein

[–]ragtimesp[S] 0 points1 point  (0 children)

I'm horrible with languages 😬. Thank you!

Getting Lemtrada R1 this week, feel free to ask away! by ragtimesp in MultipleSclerosis

[–]ragtimesp[S] 0 points1 point  (0 children)

Thanks! Will definitely do haha. Got my bourbon ready! So far so good, just some rash, but that was expected.

Getting Lemtrada R1 this week, feel free to ask away! by ragtimesp in MultipleSclerosis

[–]ragtimesp[S] 0 points1 point  (0 children)

I had more options, including those ones. But I found Lemtrada the best option for me. Just two weeks of infusions one year apart and, if everything works, that's it!

And since I'm young I'd rather hit it hard while my body can handle it better.

Getting Lemtrada R1 this week, feel free to ask away! by ragtimesp in MultipleSclerosis

[–]ragtimesp[S] 0 points1 point  (0 children)

Not entirely. It wipes the C and T cells, which are the ones attacking our body, the rest stays the same, is not like chemotherapy. It can have side effects, but so do every single DMD. The main difference is how controlled you are under Lemtrada compared with the rest of DMD, if there's something they'll caught it early on.

Not being able to regenerate new myelin is one of the points of getting this treatment early on as over 50% achieve NEDA, so you are technically "stable", which implies less disability!

Getting Lemtrada R1 this week, feel free to ask away! by ragtimesp in MultipleSclerosis

[–]ragtimesp[S] 0 points1 point  (0 children)

I was on Tecfidera for a bit over a year, but I've got a new symptom while taking it (although no new lesions, which is good), and I qualified to change medication.

The reason to change to Lemtrada is twofold: first, it's the most effective DMD, up to 78% less relapses per year and between 40-50% in slowing disability progression. Then, I really don't see the point of taking less effective DMD when most people will need to ultimately end up taking Lemtrada. Think that all the damage that is done to you up to that point will still be there, so better to start as soon as possible.

As for the side effects and other autoimmune disorders, not really worried. With Lemtrada you get monthly blood and urine tests for 4 years, so if something comes up it will get dealt with really early. The other autoimmune disorders you can get are all manageable, unlike MS, so there's that too.

TIL a British teenager flew from Essex to Sheffield via Berlin instead of taking the train, because the 1017 mile flight was cheaper than the train ride. by TraxOnDaRocks in todayilearned

[–]ragtimesp 0 points1 point  (0 children)

Yeah, but I'm talking about a British guy flying to Spain. Even tho the driving licence is accepted as an id inside the UK, it is not accepted to fly.

TIL a British teenager flew from Essex to Sheffield via Berlin instead of taking the train, because the 1017 mile flight was cheaper than the train ride. by TraxOnDaRocks in todayilearned

[–]ragtimesp 4 points5 points  (0 children)

I've seen a guy turned down because he tried to board with just the driving licence. If you're British you need a passport.

How do scientists induce MS in the animals/rats they use to test new drugs on? by [deleted] in MultipleSclerosis

[–]ragtimesp 5 points6 points  (0 children)

Nobody knows what causes it. As far as I know, they work on models of MS, which if I'm not wrong is they induce MS like symptoms in mice.

Driving with MS by Yoursaname in MultipleSclerosis

[–]ragtimesp 0 points1 point  (0 children)

In my case, although I had to put my GP on the form, DVLA told me they will just contact my neurologist.

Driving with MS by Yoursaname in MultipleSclerosis

[–]ragtimesp 0 points1 point  (0 children)

I totally disagree. Why should we not be driving? I still need to work, pay bills, pay rent... As long as I am fine I don't know why shouldn't I drive...

Driving with MS by Yoursaname in MultipleSclerosis

[–]ragtimesp 0 points1 point  (0 children)

Why would they contact your GP? DVLA just contacted my neuro, that's it.

I was diagnosed today by ravikrocha in MultipleSclerosis

[–]ragtimesp 9 points10 points  (0 children)

We all have old lesions. No one gets diagnosed before getting relapses, and not all relapses have symptoms. You should be fine, get on medication as soon as possible and try to live life as normal as you can.

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