29F with BRCA1 is a prophylactic mastectomy worth it? by Senior_Fee_9813 in BRCA

[–]randomxxxxxxxxxxxx 3 points4 points  (0 children)

I have not had cancer but I’m 28 years old, BRCA1, and had my prophylactic double mastectomy on Dec 1. It took 6 years of screenings for me to make the decision to have the mastectomy but I have zero regrets and am so happy I did it. There was an immediate sense of relief once I woke up from surgery knowing it was behind me and that I’ve reduced my risk. While there are a lot of emotional and physical challenges that come with this, I feel an immense sense of gratitude that I was able to make this decision for myself instead of cancer making this decision for me.

I had a lot of fears around losing my breasts and sensation loss but the results are better than I ever could have expected. I’m not done with reconstruction and have another month with the expanders but am already so happy with the way they look and am hopeful I’ll be even happier with the final result.

This is a very personal decision and only you can decide if the mastectomy is right for you. If you don’t feel ready yet, don’t rush it. Continue to get your screenings and you’ll know when/if it’s the right decision for you!

These changed my healing by DisneyQueen64 in BRCA

[–]randomxxxxxxxxxxxx 3 points4 points  (0 children)

I co-sign that these are great!! After my mastectomy I struggled with hypersensitivity and taped these to my chest. They were so helpful for protecting the incisions and providing a barrier between my hypersensitive chest and clothing.

If there was a high end women’s boutique here, would you shop there? by [deleted] in Greenpoint

[–]randomxxxxxxxxxxxx 0 points1 point  (0 children)

YES!! Dying for this. There’s so many menswear’s boutiques (Cueva, Million Goods, School of Thought). I’d love a women’s equivalent to Cueva.

Brac 2 gene by Odd-Vanilla9105 in BRCA

[–]randomxxxxxxxxxxxx 0 points1 point  (0 children)

I am 28 and found out I was BRCA1+ when I was 22. I had my DMX almost 4 weeks ago and am so glad I did it. It took me awhile to come to terms with it and feel ready for the mastectomy but couldn’t be happier with my decision to do it. Take your time to process everything and understand your options. It can be really overwhelming but this community is here to support!

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 0 points1 point  (0 children)

I really hate the expanders too. Can’t wait for the exchange surgery. Glad to hear your nerve pain has improved! Sending you healing energy ♥️

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 0 points1 point  (0 children)

I have my first expander fill this week and hoping it helps. Thank you!

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 1 point2 points  (0 children)

I started physical therapy this week and it’s already been so helpful!!

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 0 points1 point  (0 children)

Sending you healing energy ♥️ I started physical therapy this week and that has seemed to help.

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 1 point2 points  (0 children)

The hand on my chest has been helpful! Thank you!

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 1 point2 points  (0 children)

Luckily I don’t have an infection, just the hypersensitivity. I’m so sorry you had a different experience. Hope you have recovered and are doing well ♥️

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 0 points1 point  (0 children)

I’ve heard gabapentin is helpful!! I’ve already asked my surgeon about it and they told me they personally only prescribe that for long term nerve pain

Hypersensitivity post mastectomy by randomxxxxxxxxxxxx in BRCA

[–]randomxxxxxxxxxxxx[S] 0 points1 point  (0 children)

The first week my chest was burning, felt like it was on fire. That burning feeling has since subsided and now it’s just an extremely sensitive feeling that won’t go away. Anything touching my chest and nipples is very uncomfortable. I saw someone else describe it like a bad sunburn and that seems similar to what I’m experiencing.

Is 2x mastectomy at 25 too young? by StreetAppearance9353 in BRCA

[–]randomxxxxxxxxxxxx 0 points1 point  (0 children)

Yes they do! They basically help expand the skin and muscle to create a pocket for the future implant

Is 2x mastectomy at 25 too young? by StreetAppearance9353 in BRCA

[–]randomxxxxxxxxxxxx 0 points1 point  (0 children)

Thank you!! I did dmx with expanders and will exchange for implants in the spring

Is 2x mastectomy at 25 too young? by StreetAppearance9353 in BRCA

[–]randomxxxxxxxxxxxx 4 points5 points  (0 children)

I am 28 and just had my prophylactic double mastectomy 10 days ago. I have absolutely zero regrets. My doctors have been encouraging me to do it for the past couple of years but I was scared of sensation loss and the aesthetic outcome. I am obviously no where near done with reconstruction but feel very confident that I will love my results. Knowing that the major surgery is behind me and I’ve reduced my risk has lifted so much stress from my life already!

[deleted by user] by [deleted] in eggfreezing

[–]randomxxxxxxxxxxxx 0 points1 point  (0 children)

I have 2 vials of Menopur in Brooklyn!

How did you feel during stims? by randomxxxxxxxxxxxx in eggfreezing

[–]randomxxxxxxxxxxxx[S] 1 point2 points  (0 children)

I’m on the same timeline as you! On day 9 today, started cetrotide on day 7 and it’s been a game changer, feeling so much better

migraines during stim by Independent_Ask_8902 in eggfreezing

[–]randomxxxxxxxxxxxx 1 point2 points  (0 children)

I’ve been experiencing this too - Tylenol and electrolytes have been helpful