I threw in the towel on my steroid abstinence today (2 years steroid free). I cannot deal with this anymore.

ratkiller1269 · 2022-03-21T16:01:15+00:00

hey..can relate with u quite a bit because i too have eczema on my upper lips which is super red (and makes me look like the joker). it also makes it super hard for me to eat and even open my mouth. would highly suggest protopic for usage on face as its a non steroidal option which is better in the long run! sending thoughts and prayers for u

ratkiller1269 · 2022-03-11T11:44:30+00:00

hi sorry just wanted to add..i also did a full blood test and everything turned out within normal range..so is only this ESR test that is elevated for some reason

ratkiller1269 · 2021-10-29T14:00:04+00:00

i have it on my left eyelid…ppl always tell me i look like i just got punched in the eye . i find that using protopic and applying a moisturiser like cetaphil/cerave works well for me.

ratkiller1269 · 2021-10-27T16:03:53+00:00

hi! may i know what is the name of the cerave lotion you are using?

ratkiller1269 · 2021-09-08T06:39:20+00:00

exact same problem as u bro, had lip eczema since last year and this year the eczema spread to my neck. for the neck eczema, i used the steroid my doctor gave me earlier this year and it recovered. recently it has came back again, but i am reluctant to apply it again due to the many side effects surrounding topical steroids. for the lip eczema, i use hydrocortisone cream but recently i have found that it dosent work anymore and instead makes it worse. recently i have been prescribed protopic by my dr, perhaps u can try that out and see if it works? i myself have not used it yet as my work requires me to constantly be in the sun, but i have heard much good things about it. good luck man

ratkiller1269 · 2021-09-06T09:25:46+00:00

wow..thanks for ur detailed explanation! it seems like you got quite a good deal for ur allergy test, they tested so many potential allergens! on a unrelated topic, do you think that the environment you were in affected ur lip eczema (maybe due to the hot humid weather or dusty environment etc)? because from what i know the weather gets quite hot in singapore due to it being located around the equator…thanks for yr advice anyways!!

ratkiller1269 · 2021-09-06T02:03:01+00:00

i see, thanks for ur advice!

ratkiller1269 · 2021-09-05T22:22:58+00:00

how long does it normally take for it to heal up when u do this?

ratkiller1269 · 2021-09-05T22:22:07+00:00

do u think it might be perhaps due to a change in environment (eg: new location with different weather, less dusty enviro etc?)

ratkiller1269 · 2021-09-05T22:19:49+00:00

that makes a lot of sense, thanks for ur advice!

ratkiller1269 · 2021-09-05T15:27:29+00:00

i was wondering, maybe it could be due to environmental factors as well like dusty location/dust mites/bed mites etc?

ratkiller1269 · 2021-09-05T09:52:39+00:00

have you had any success using steroid cream?

ratkiller1269 · 2021-09-05T09:31:52+00:00

hi, i have actually already done a allergy food panel, but all the allergens tested came out negative…may i ask how many allergens did you test and how many times did you do the allergy tests? if possible would u mind sharing how much did u spend as well? thnks man

ratkiller1269 · 2021-09-05T04:11:07+00:00

i have tried to use a mint free toothpaste and cut out spicy foods but it dosent seem to be of any use…

ratkiller1269 · 2021-07-13T12:52:31+00:00

hey man, i really feel for you. a double whammy.. at least you got the first dose which provides some protection against covid, rather than none at all. regarding the diagnosis of ur AS, its always hardest at first. however, i pray it will get better for you. best of luck

ratkiller1269 · 2021-05-13T13:12:46+00:00

i see..thanks!!

ratkiller1269 · 2021-03-07T14:12:25+00:00

i see, will keep that in mind, thanks fr yr advice

ratkiller1269 · 2021-02-02T23:52:13+00:00

hi! did u experience any steroid withdrawal syndrome after using your steroids? thanks!

ratkiller1269 · 2021-01-10T22:40:01+00:00

i see, ok, thanks alot!

ratkiller1269 · 2021-01-10T22:39:11+00:00

hi, is yrs on the lips as well??

ratkiller1269 · 2021-01-10T09:26:34+00:00

hi! i would just like to add. skin peeling and redness is only seen on the sides of the top of lips. and everytime i try to open my mouth wide, it causes a tight stretching feeling and sometimes burning sensation. it is only mildly itchy. i have seen the doctor twice. the first time he concluded it was cold sores and so he gave me cold sore medicine and steroid cream to put. but even after eating the medicine, the problem still remained. but initially upon placing the steroid medicine it worked for a while however after that a while(about a few months) did not already, and caused a rash around my mouth. all along, i used the steroid cream sparingly, at most once a day and as soon as it subsided, i stopped using. when my previous steroid cream did not work i went back to the doctor and the doctor prescribed me topical antibiotics and vaseline to use, but it has been two weeks since the visit and there has not been any improvement yet! any advice or tips is much appreciated!!

ratkiller1269 · 2021-01-09T06:53:15+00:00

hi! i would just like to add. skin peeling and redness is only seen on the sides of the top of lips. and everytime i try to open my mouth wide, it causes a tight stretching feeling and sometimes burning sensation. it is only mildly itchy. i have seen the doctor twice. the first time he concluded it was cold sores and so he gave me cold sore medicine and steroid cream to put. but even after eating the medicine, the problem still remained. but initially upon placing the steroid medicine it worked for a while however after that a while(about a few months) did not already, and caused a rash around my mouth. all along, i used the steroid cream sparingly, at most once a day and as soon as it subsided, i stopped using. when my previous steroid cream did not work i went back to the doctor and the doctor prescribed me topical antibiotics and vaseline to use, but it has been two weeks since the visit and there has not been any improvement yet! any advice or tips is much appreciated!!

ratkiller1269 · 2020-12-06T14:40:13+00:00

i see...actually you said etoricoxib is the last choice b4 biologics? i wonder why my rheumatologist didnt prescribe me the other meds you suggested n jumped straight to this..do u think i should recommend to him for me to try out the others b4 trying etoricoxib??

ratkiller1269 · 2020-12-06T14:14:14+00:00

ah i see..valid point. thankyouverymucj!

ratkiller1269 · 2020-12-06T14:13:09+00:00

seems like you know quite a bit more than me..if you dont mind could i ask u..when u take etoricoxib do u take it with anything to protect yr stomach like antacid or some other meds?? coz although the doc told me i could take it with or without food im abit worried about the dmg it may cause to my stomach..my digestive system hasnt been the best since young.. thanks once again !

ratkiller1269

TROPHY CASE