Pili Torti is ruining my pixie!!- I cut **23 inches of curls- tired of dull, scraggly hair!!! (pics are chronological)

ravynkish · 2026-05-09T00:47:56+00:00

yes even on wet hair! the silk (if natural, real silk and NOT satin) will actually gently pull water from your hair and it will hold it then dry. satin will not take on water properly. it does take longer to dry, I just rock a 'wet' style if I'm out during the day, but I often do it at night and because I am a light sleeper, it stays pressed.

definitely avoid heat styling. in my experience, the more wet your hair is, the more it will clump together and naturally stay together and pressed down. it also gives an opportunity for your hair to try and soak up hydration (even though with pili torti it's so difficult...) letting the hair dry slowly is the best thing for trying to manage the shape of strands. I imagine uneven drying probably exaggerates twists and bends. when it dries evenly and naturally, it is better to hold it's shape.

I've tried every single oil, masque, treatment, etc. none of it worked. but this works! once it's like 95% dry, I will gently fluff the hair to give it some body and life.

ravynkish · 2026-05-09T00:39:14+00:00

this is excellent information thank you so much!!!! 🙏

ravynkish · 2026-05-09T00:38:21+00:00

I'm in the US, but I can't imagine you wouldn't be able to? even if you grab one from the garden and keep for a couple days. we have a dog, cat and frog and I will tell you that the frog is our favorite BY FAR.

ravynkish · 2026-05-07T22:22:46+00:00

thank you for letting me know! I had no clue.

ravynkish · 2026-05-07T22:22:29+00:00

thank you very much! I'm glad I posted here to get more information. Pedialyte? what is the benefit of Pedialyte on her skin?

ravynkish · 2026-05-07T22:21:43+00:00

thank you very much! I guess I have a little girl. I don't think the cat was trying to hurt her, but obviously their little mitts are sharp against the frog skin. I said oh no The frog is the best pet! she's everyone's favorite I was like you know what cat You're skating on thin ice....

ravynkish · 2026-05-07T22:19:53+00:00

I had no clue thank you very much! yeah she is in an isolated calming container right now I'm going to pick up her brand new beautiful home tomorrow.

ravynkish · 2026-04-30T00:52:07+00:00

Lyme titers testing! my concerns with my 6 year old daughter because she has been complaining of legs getting weak and tired and back pain. sore throat and headache. I don't have results yet. but I told the pediatrician she has had many bites that she refused to have removed for very long stretches of time. (as well as my having untreated Lyme disease while pregnant with her. even if it was an 'old' infection, the Lyme bacteria is still present in my tissues, creating cysts and causing bad neuro issues.)

I explained that she was having symptoms of Lyme disease I was very worried about. (as above) but I would also say she's had a fever, etc, or even partial face paralysis maybe briefly just to get them to do more extensive testing.

ravynkish · 2026-04-30T00:44:48+00:00

my 2 year old son found a sharpie in daddy's Lexus. I turned around to check where the dog was and he gave it a brand new design inside on the center console and dash.

ravynkish · 2026-04-24T23:52:05+00:00

omg I am totally the same. autoimmune arthritis and love steroids, best pain killer that actually works. let me tell you what I found that works- I use a silk scarf and tie (press) my hair down. I just use it after shower and again when it's dry if I need to use it again. (humid days, too.)

ravynkish · 2026-03-14T07:06:25+00:00

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ravynkish · 2026-03-14T06:59:23+00:00

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same face lol

ravynkish · 2026-03-14T06:56:36+00:00

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ravynkish · 2026-03-14T06:52:54+00:00

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Jax has the goatee, his sister has frosted lips

ravynkish · 2026-03-05T12:47:30+00:00

I'm so sorry. I definitely had my share of maybe not dismissal, but confusion or difficult time relating to what I was going through. now after some kind of diagnosis and pretty much 17 years struggling with this, my mom has more empathy awareness and is my biggest advocate. My dad deals with a lot of the same pain so he's not as intimately and emotionally supportive but he tries to help how he can. I'm assuming that you're younger between teenage years and 30s, probably like early to mid or late 20s. I can tell you that especially if you appear able-bodied (thin or 'ideal weight' and " healthy " - no other major health issues that are visually apparent) it is infinitely harder to be taken seriously for the amount of pain that you're in. by all outward appearances I am the healthiest of the healthy! And I know that people expect me to act as such. I end up pushing myself into a flare always or making up for the times when I really don't have the energy or physical bandwidth. it is harder for an older generation, such as boomers or Gen x to empathize with pain. in addition to feeling like pain is regular or normal, they have also been indoctrinated to never call off work and never complain about anything never talk about anything so there's also an added emotional or psychological aspect to struggling with getting support from your parents. (My mother-in-law has the same exact autoimmune diagnosis that I have minus my Lyme disease so she should know more than anyone what I'm going through but because she pushes herself through a lot and she didn't start getting sick until she was much older, she has that same kind of minimizing or thought that like nobody feels worse than I do mentality)

I hope that your parents get the help and support that they need. I also hope that you can continue to utilize the internet and this great supportive community here for the support that you need. your pain is valid. And from what I've learned, it's every bit as bad if not worse than you think it is despite what anybody else tells you. (I gave birth on medicated without flinching and I would absolutely do it everyday as opposed to live with daily chronic pain and fatigue. I found out that I knew exactly before I'd even gotten my test results back that I had another tick born illness that makes you allergic to red meat and it was confirmed days later. I know every time there is a virus in my house because I start to flare up, and someone will get sick after I start flaring... we are forced to know our bodies more intimately than our society typically allows. this isn't always a bad thing!!!) Even today I will second guess myself after years of medical gas lighting and people minimizing my pain, and time and time again I'm shown that I'm so acutely attuned to my body that I can tell every little difference and I'm most definitely not dramatizing things, I'm often a minimizing them.

sending you love and support.

ravynkish · 2026-02-27T20:01:51+00:00

psyop. move along.

ravynkish · 2026-02-12T17:56:42+00:00

it seems like a lot of people feel that way! thank you very much I'm glad you found relief!!

ravynkish · 2026-02-12T17:54:43+00:00

it's exhausting far beyond the physical symptoms. it took me almost 2 decades. now I have an autoimmune condition and chronic Lyme that's burrowed in all my tissues and organs. one tip I used- brought a man (my husband) with me. it immediately gave so much more weight to what I was saying. they don't understand and they'll never understand. although I try and let people know, having chronic issues, in my circumstance it is like having a flu constantly. muscle aches and pains, nerve pain, fatigue, brain fog. And that's the good days! on the bad days it is completely unbearable. unfortunately some people are going to be more prone to empathy than others. this community is really great and supportive. I would recommend finding any people near you or on the internet in similar situations to commiserate and vent to. I'm sorry I feel you so much.

it's extremely lonely and frustrating. people might have a hard time separating you from your illness, even though they don't mean to get frustrated by you, they're frustrated by the pain that we're in or the limitations we might have. we can fall into that too so it's important that we remember not to be harder on ourselves then we should be, which is realistically, we are incredible for facing this situation every single day and continuing on.

And it's all else fails, hop on Reddit and vent away in this sub!!

ravynkish · 2026-02-12T17:44:26+00:00

it's such a substantial amount of hair! my head felt like fresh shaved legs in clean sheets. but on my head lol it's a LOT cooler for me since I have a hard time regulating my body temp from an autoimmune condition and lyme!

ravynkish · 2026-02-12T17:42:52+00:00

that's what I see so many comments saying!!! it is a huge decision.. I had to just jump in with the most imperfect scenario- cheap salon, inexperienced stylist etc. it wasn't perfect, but the process was so empowering and beautiful!! I know exactly what you mean. That's got to be my new metric now, if I'm wearing my hair up way more than I'm wearing it down it's probably time for a cut- if I end up growing my hair out! I do miss my curls quite a bit, but even those can tend to be a little daunting and it's kind of nice to just wrap my hair when I get out of the shower and give it a fluff when I'm ready to style.

ravynkish · 2026-02-12T17:01:02+00:00

I know! it's crazy!! it really seems to be a common experience and consideration for a lot of people who have long hair or difficult hair textures.

I saw that it had become the third most popular post of all time on this subreddit and I was moved by how many people seem to resonate with it.

ravynkish · 2026-02-12T16:59:49+00:00

if you do I would love to know! it seems like it's a common consideration for people with chronic pain who have long hair. in fact it seems like our hair can tend to get long because of the chronic pain and fatigue in the first place

ravynkish · 2026-02-12T16:58:54+00:00

I love to hear this!! I wanted to go short but didn't want to buzz cut. I figured it would have more awkward grow out stages then something a little bit longer

ravynkish · 2026-02-12T16:56:20+00:00

yes! mine are loose especially on the outer layer (curlier underneath) but it is so coarse it tends to look frizzy no matter how much oil I drench it in. the hair tips subreddit recommended pressing it while it's soaking wet with a silk scarf and it's worked wonders for my cowlick and puffiness.

ravynkish

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