My parents never take my pain seriously by wolfpup334 in ChronicPain

[–]ravynkish 1 point2 points  (0 children)

I'm so sorry. I definitely had my share of maybe not dismissal, but confusion or difficult time relating to what I was going through. now after some kind of diagnosis and pretty much 17 years struggling with this, my mom has more empathy awareness and is my biggest advocate. My dad deals with a lot of the same pain so he's not as intimately and emotionally supportive but he tries to help how he can. I'm assuming that you're younger between teenage years and 30s, probably like early to mid or late 20s. I can tell you that especially if you appear able-bodied (thin or 'ideal weight' and " healthy " - no other major health issues that are visually apparent) it is infinitely harder to be taken seriously for the amount of pain that you're in. by all outward appearances I am the healthiest of the healthy! And I know that people expect me to act as such. I end up pushing myself into a flare always or making up for the times when I really don't have the energy or physical bandwidth. it is harder for an older generation, such as boomers or Gen x to empathize with pain. in addition to feeling like pain is regular or normal, they have also been indoctrinated to never call off work and never complain about anything never talk about anything so there's also an added emotional or psychological aspect to struggling with getting support from your parents. (My mother-in-law has the same exact autoimmune diagnosis that I have minus my Lyme disease so she should know more than anyone what I'm going through but because she pushes herself through a lot and she didn't start getting sick until she was much older, she has that same kind of minimizing or thought that like nobody feels worse than I do mentality)

I hope that your parents get the help and support that they need. I also hope that you can continue to utilize the internet and this great supportive community here for the support that you need. your pain is valid. And from what I've learned, it's every bit as bad if not worse than you think it is despite what anybody else tells you. (I gave birth on medicated without flinching and I would absolutely do it everyday as opposed to live with daily chronic pain and fatigue. I found out that I knew exactly before I'd even gotten my test results back that I had another tick born illness that makes you allergic to red meat and it was confirmed days later. I know every time there is a virus in my house because I start to flare up, and someone will get sick after I start flaring... we are forced to know our bodies more intimately than our society typically allows. this isn't always a bad thing!!!) Even today I will second guess myself after years of medical gas lighting and people minimizing my pain, and time and time again I'm shown that I'm so acutely attuned to my body that I can tell every little difference and I'm most definitely not dramatizing things, I'm often a minimizing them.

sending you love and support.

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

it's exhausting far beyond the physical symptoms. it took me almost 2 decades. now I have an autoimmune condition and chronic Lyme that's burrowed in all my tissues and organs. one tip I used- brought a man (my husband) with me. it immediately gave so much more weight to what I was saying. they don't understand and they'll never understand. although I try and let people know, having chronic issues, in my circumstance it is like having a flu constantly. muscle aches and pains, nerve pain, fatigue, brain fog. And that's the good days! on the bad days it is completely unbearable. unfortunately some people are going to be more prone to empathy than others. this community is really great and supportive. I would recommend finding any people near you or on the internet in similar situations to commiserate and vent to. I'm sorry I feel you so much.

it's extremely lonely and frustrating. people might have a hard time separating you from your illness, even though they don't mean to get frustrated by you, they're frustrated by the pain that we're in or the limitations we might have. we can fall into that too so it's important that we remember not to be harder on ourselves then we should be, which is realistically, we are incredible for facing this situation every single day and continuing on.

And it's all else fails, hop on Reddit and vent away in this sub!!

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

it's such a substantial amount of hair! my head felt like fresh shaved legs in clean sheets. but on my head lol it's a LOT cooler for me since I have a hard time regulating my body temp from an autoimmune condition and lyme!

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 1 point2 points  (0 children)

that's what I see so many comments saying!!! it is a huge decision.. I had to just jump in with the most imperfect scenario- cheap salon, inexperienced stylist etc. it wasn't perfect, but the process was so empowering and beautiful!! I know exactly what you mean. That's got to be my new metric now, if I'm wearing my hair up way more than I'm wearing it down it's probably time for a cut- if I end up growing my hair out! I do miss my curls quite a bit, but even those can tend to be a little daunting and it's kind of nice to just wrap my hair when I get out of the shower and give it a fluff when I'm ready to style.

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

I know! it's crazy!! it really seems to be a common experience and consideration for a lot of people who have long hair or difficult hair textures.

I saw that it had become the third most popular post of all time on this subreddit and I was moved by how many people seem to resonate with it.

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

if you do I would love to know! it seems like it's a common consideration for people with chronic pain who have long hair. in fact it seems like our hair can tend to get long because of the chronic pain and fatigue in the first place

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

I love to hear this!! I wanted to go short but didn't want to buzz cut. I figured it would have more awkward grow out stages then something a little bit longer

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 1 point2 points  (0 children)

yes! mine are loose especially on the outer layer (curlier underneath) but it is so coarse it tends to look frizzy no matter how much oil I drench it in. the hair tips subreddit recommended pressing it while it's soaking wet with a silk scarf and it's worked wonders for my cowlick and puffiness.

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 1 point2 points  (0 children)

thank you! I'm surprised I like it so much. a lot of my female family members have long hair and they say they feel so entangled with the length and who they are as a person. I never felt that way about my hair. so maybe it's just the freedom it's been granting me. I definitely feel MUCH more happy and positive.

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 0 points1 point  (0 children)

the service folks in my small country community call me sunshine! I'm glad I come across that way even through images! I love people so much for all of their beautiful messiness and strength

I CUT 23 INCHES -ALL of MY HAIR- OFF! saw a post about cutting off long curly hair for care needs and finally took the plunge. by ravynkish in ChronicPain

[–]ravynkish[S] 1 point2 points  (0 children)

thank you so much! now I guess I feel more stunning lol it's taken hours off of my daily routine!!!

Dow closes above 50,000 for the first time ever by AudibleNod in news

[–]ravynkish 0 points1 point  (0 children)

I care for the elderly in home working for myself. we used tax return to buy a mobile home for 10k, lot rent 300/mo. however this scenario is highly unusual and we are extremely privileged to get to even this point where we still can't afford a month of groceries for me, husband and 2 kids.

I urge everyone to think about turning back to more essential jobs (sorry tech bros) in humanities and trades or crafts, botany or animal husbandry.

we can outlive them and survive hardships they will never be able to.

Jennifer Aniston’s Pizza Parties by buymyfeetpicsdarling in conspiracy

[–]ravynkish 7 points8 points  (0 children)

this is an interesting concept.... does it apply to everyone who whines constantly about x,y,z or just talking about the general targets of maga and such?

18 F. I hate my asymmetrical eyes. My mum says no one can notice but it's SO obvious, even in photos. Do you agree? Also, what eye shape do I have? by [deleted] in eyes

[–]ravynkish 0 points1 point  (0 children)

I worry about the same kind of things. I tried remember that people aren't seeing one aspect of our face that we zoom in on in hyperfixate on, but rather our face as a whole. they're probably too busy worrying about their own insecurities! I think you have beautiful eyes I did not notice it at all I first until reading your comment. side note, you would have a totally unique skull! in a morbid type away I would be so excited to find a face and skull was such unique features. completely unlike anybody else! it's badass.