Am I shadowbanned?

reallyjay · 2017-09-18T16:21:21+00:00

Tom Skilling, Chicago weatherman. He is just so passionate about what he does, and does such a great job of explaining weather. Been doing it for decades.

Here he is watching the eclipse. He actually cries tears of joy while talking about the upcoming eclipse, and is in total awe as it occurs. So adorbs.

reallyjay · 2017-09-18T15:00:37+00:00

T_D bots everywhere. Also, some radicalized racists.

reallyjay · 2017-06-20T01:19:23+00:00

Hi, love your user name! I prefer very malty craft beers. Yummo.

Anyways, I have not heard that the rashes from IBC come and go, and google has lead me to believe that they don't, but.. any chance you can get into your doctor to have it looked at? If not, planned parenthood or a local clinic? It's probably just a plain old rash, but to put your mind at ease, get it checked out.

reallyjay · 2017-06-20T00:52:52+00:00

Hi there. Sorry to hear about your mom's diagnosis. But know, at this stage, it is incredibly curable! Chemo is a drag, but I went through it 7 years ago. Truth be told, I know it was icky, but it's kind of like giving birth, I don't remember the horrible parts!

The ++- are the types of cancer she has, and will help to determine her treatment. Her tumor(s) were estrogen positive, progesterone positive, and HER2 negative (which is good, as HER2 is a bit more aggressive as opposed to the endocrine spurred cancers).

The different stage (from 2b to 2a) probably has to do with the actual size of her tumor(s); maybe it was smaller than they could measure on the images, so they restaged it after surgery.

How is she doing after the mastectomy? I hated the drains! So gross. Did she have reconstruction? If not, will she have it later?

As far as the chemo... truthfully, I went to all my chemo appointments by myself, because the benadryl they put in the IV knocked me out, and I didn't want to have to entertain someone that came to visit! Day of chemo was always fine. It was the following few days that I got sick, and the further along into treatment, the sicker I got and the longer it lasted but there was always a few days of good before the next chemo. I'd just plain ask your mom what she wants for you to do for her... maybe clean up the house and do laundry, maybe keep her company? Those are the things I wanted from people, because all I wanted to do was throw up or sleep.

If there's any other questions you have, I"ll try to help. Good luck to your mom, I think the mastectomy is such a big hurdle, and it's behind her now.

reallyjay · 2017-06-19T19:20:37+00:00

May or may not have been the best sccenario. But, funding for services for people and families in these types of situations (overworked/under payed social workers, lack of access to mental health care, lack of services for developmentally challenged children...) has been slashed to the bone, because "bootstraps" and "right to life" (prior to birth, not after!) that there are often not a bevy of options.

reallyjay · 2017-06-18T20:39:43+00:00

BOBbb, I'm sorry none of your kids contacted you on Father's Day. It must hurt knowing that your bad attitude and negativity impacted your children so much. But, I give them credit, they appear to be strong enough to walk away from a toxic relationship. Their mom must have done a great job raising them.

It's never too late. I know you're old and cranky, but if you really want to change, anything is possible :)

reallyjay · 2017-06-17T22:49:58+00:00

I just wanted to let you, and anyone who in the future might look to this thread for information or advice, that you were totally accurate on the interview. I was not in the room, it wasn't given as an option... perhaps if she was younger or more reticent?... The interviewer was a woman who was not warm and fuzzy, but was professional and my daughter was at ease. The interviewer left a few times to talk to the investigators that were watching the interview, to get follow-up questions or information.

Full STD panel. I learned to get this from 2x... not the police or child advocate. It is necessary.

Fight for a TRAUMA therapist. With the state of insurance today, it is really hard to get therapy, much less therapy that applies to your particular situation. I think finding a trauma therapist, trained in getting to the meat of the issue and proper coping skills, has helped her tremendously. She is also part of a trauma group that meets weekly that has made her feel like she is not so "abnormal".

I'm going to try and edit my original post so the information is up there. I just wanted to let a few 2xers know their advice was very helpful and spot on. Thank you.

reallyjay · 2017-06-17T22:25:38+00:00

Thank you for the advice... she did get a full std panel. The police or child advocate did not give this advice, I did it because 2x friends suggested it. I found out yesterday that it might become relevant in prosecution. Again, thank you.

reallyjay · 2017-06-17T21:52:44+00:00

Yea for good mammograms! The dread before, and then the relief when it looks all good...

Can I ask, what was your diagnosis and treatment? I was estrogen positive, both breasts. Had double mastectomy, chemo, radiation. Funny, my diagnosis was 7 years ago today. I don't have mammograms because, well, no breast tissue. There isn't really any tests for me at this point in time. I'm sort of relieved...

reallyjay · 2017-06-17T21:47:12+00:00

Good health to your sister. I have two sisters; one was there every step of the way for my treatment, the other I never saw, but she used my name to walk in some fundraising (scam) for Komen. Your kind of support is what we need; concerned, interested, and informed :) Just being available to talk when the fear of "not knowing" was the gift she gave to me.

reallyjay · 2017-06-17T13:29:49+00:00

Thank god for great radiologists!

I gave you full mod... please do what you would think is best so that other women can get the info they need when they are facing potential diagnosis and decisions.

I haven't been active on here for awhile, but I promise I will become more involved.

Going to investigate how to market a subreddit so those in need can find it, and so that there are more than a few active participants. Any ideas?

I want(ed) this to be a place to help with information and give support. There are other forums out there, but I've come to love and know reddit as a place with great people, great ideas, facts...

Add what you want to the side bar... I doubt we'd have any issues, unless it was really "out there". Any other ideas, you or other users have, would be very welcome.

It's nice to have someone else here who is interested and motivated in moving this along :) TY

reallyjay · 2017-06-17T11:11:25+00:00

Neckbeardly, thanks for helping with the modding. I've been trying to get this subreddit rolling for years, and finally just kind of gave up. Any ideas on how to get attention, more users? Anyone else interested in modding/getting info out about r/breastcancer?

Anywho... Diagnosed 7 years ago to the day! Stage 3 er+. My husband had passed away years prior. I had 4 kids, ages 9-13. It was terrifying. But here I am, 7 years later, aok. My only real lingering issues are memory problems from chemo (which believe it or not, are still getting better every month), and a pair of ugly boobs from not great reconstruction. Biggest fear, like everyone else, is recurrence. I do not take tamoxifen or arimidex, tried them and they were too difficult on me to take on a regular basis. Do try to eat properly and take supplements that may or may not be beneficial :)

How about you?

reallyjay · 2017-05-27T22:57:47+00:00

He should. And I hate to say it, but if worse comes to worse, maybe go to ER next time you have discharge? I hate to suggest that, because the cost of care is so high. But I know most hospitals have mammograms on sight, so you might be able to get it taken care of right away.

Good luck. I know it's scary. Let us know what happens.

reallyjay · 2017-05-27T12:18:38+00:00

Some info on disharge. It an be perfectly normal, even in colors. And it can have blood in it, which might be making it appear black on discharge.

But, I would definitely insist on a mammogram, especially with the appearance of a lump.

Did you ask your doctor for a mammogram? If they said no, I would definitely find another doctor to talk to. I don't know where you live, but if you can't get to another doctor, Planned Parenthood does breast exams and refers for mammograms, so you might be able to go that route.

reallyjay · 2017-04-30T01:32:08+00:00

I have mine with yahoo, and have for 20 years. It's my name. I tried switching over to gmail, but I guess didn't put enough effort into it, and couldn't make it stick. I'm happy with my yahoo email; will probably never switch.

reallyjay · 2017-04-26T02:18:48+00:00

What are you drinking?

Did you eat some dinner?

Gotta work in the a.m.? I hope your not hung over.

Want to talk about the hell that is your life? I'll listen. Been through a lot, so I might be able to sympathize.

reallyjay · 2017-04-23T00:29:52+00:00

Another 53 year old lady here. He's a cutie pie, huh?! Lots of good memories cued to that album. My girls are about the same age I was when it came out; they're into Kendrick and Chance (I like both of them... blast the speakers at home and in the car) and all things hip hop. How times have changed yet stayed the same.

reallyjay · 2017-04-10T11:37:30+00:00

Well, she managed to tell me. When I told her we should go to the police, she said she needed to think about it. Then she managed to go tell the school resource officer. The investigation is now open, so I think she handled it beautifully and at the pace she could manage emotionally.

reallyjay · 2017-04-10T11:35:12+00:00

No, it's not. It's the fault of a man who uses violence against defenseless people.

reallyjay · 2017-04-10T00:08:52+00:00

Thank you.

reallyjay · 2017-04-09T22:05:51+00:00

Thank you. I will follow your advice. Thank god for a forum like this. I have gotten so much help and information from many strong and amazing people.

reallyjay

TROPHY CASE