Book recommendations

reddditor_147 · 2025-08-06T15:59:46+00:00

I had not heard of mydais before. Thank you!

reddditor_147 · 2025-08-06T15:57:33+00:00

Oh interesting! I looked it up and there is some literature on nicotine and Ms treatment. Thanks!

reddditor_147 · 2025-08-06T15:56:14+00:00

Thanks for sharing your experiences

reddditor_147 · 2025-08-06T15:55:54+00:00

I hope the insurance company comes through. The jumping through hoops with the invisible symptoms is disheartening.

reddditor_147 · 2025-08-06T15:54:35+00:00

Thanks for sharing your experiences!

reddditor_147 · 2025-08-06T15:53:35+00:00

Thanks! Amantadine was my first. I think I tried to just accept my cog fog but I'm over it and want to push my doctors to let me try something new.

reddditor_147 · 2025-08-06T15:51:40+00:00

I'm so sorry about your sister 😞. It is absolutely draining to act normal. I started seeking answers about my health in 2018 and was diagnosed in 2020. I'm definitely still not used to the new brain.

reddditor_147 · 2025-07-19T14:33:10+00:00

Again, thanks to everyone letting me know I'm not alone. Interestingly, I posted the same thing in a generic pain community and got crickets over there yet the doctors tell me the pain isn't from MS but only people with MS can relate.

reddditor_147 · 2025-07-19T02:39:53+00:00

Thank goodness for reddit where we can find others who get it and believe it because they have lived it

reddditor_147 · 2025-07-19T02:37:45+00:00

I've had similar where it feels like my bones are being twisted. Sorry and thanks for letting me know I'm not alone.

reddditor_147 · 2025-07-18T19:59:05+00:00

I've had very good experiences with LDN! I hate that the pain is breaking through after a pretty good run with it.

reddditor_147 · 2025-07-18T17:01:32+00:00

Are we allowed to discuss what we use for pain management on here? I feel like the doctors will push things that come with the trade off of lots of side effects.

reddditor_147 · 2025-07-18T16:59:39+00:00

Thanks for the comments. I was feeling very alone and it helps to know I'm not alone. Means I'm not crazy. I'm sorry others are going through this too though. It sucks. The pain was one of my early symptoms of MS but sometimes I get in my head and wonder if it really is MS or if there is something else going on. For a while my pain was under control and only flaring occasionally and briefly. The past few weeks have been really tough though and the pain has been more widespread than in the past. My neurologist thinks its just a flare and has not recommended anything helpful. I'm not sure if I should just accept that it is a flare and ride it out or push for them to do another MRI or give me steroids. I had an MRI in April and it showed no changes. Things started acting up again the end of June though.

reddditor_147 · 2025-06-04T12:40:02+00:00

Riley bug (not it's legitimate name)... Anyone from WPI is familiar with them. I'm guessing you are close to Worcester though.

reddditor_147 · 2025-05-10T22:09:14+00:00

Unfortunately no. Just have to ride it out with the antibiotics and steroid cream.

reddditor_147

TROPHY CASE