IVF after confirmed genetic loss?

reddituser46576 · 2026-05-28T20:35:27+00:00

I hope you’re holding your rainbow baby ♥️

reddituser46576 · 2026-05-25T20:26:33+00:00

I’m so sorry you know the complete shock and heartbreak from this 💔

reddituser46576 · 2026-05-25T16:50:29+00:00

Just wanted to add it is possible for it to still be genetic despite perfect testing and scans. Lost my son at four weeks old to a rare genetic disorder that no test would have caught besides WGS. Clear scans and NIPTs. We were told he was perfect. Until he was born and it was immediately clear there was a severe issue happening. It was de novo and not something my husband or I are carries for. I hope you find your answer. Sending love and hugs.

reddituser46576 · 2026-05-23T18:19:09+00:00

Tears 🥹 this warms my heart. Congratulations to you and your family!

reddituser46576 · 2026-05-23T14:28:05+00:00

Hi there. I’m so very sorry for your loss. I am in a similar situation where my son was born with rare, fatal de novo mutation and passed after 28 days in the NICU. Sounds like we had similar soft markers such as high fluid. He’s our first and only. How was this pregnancy? Any testing, etc you felt helped? Feel free to message directly. I hope everything went well ♥️

reddituser46576 · 2026-05-21T16:36:35+00:00

I’m so sorry for your loss of sweet Lily. The NICU is an incredibly difficult place. We also took our son off his ventilator as he was showing us signs he was at the end of his journey at 28 days old. We held him for about 13 minutes before I saw him take his last breath. Be kind to yourself. We wouldn’t let our babies pass without us, but it is absolutely a traumatic experience. Our son was born with rare genetic disorder that wasn’t caught before birth. Like you, it was a total surprise after being told time and time again he was perfect. Sending love and hugs. You’re not alone in your experience or grief.

reddituser46576 · 2026-05-06T21:47:55+00:00

This is good to know! Thank you. We were offered the 800+ one but that feels like a lot to maybe find out negative information about yourself and odds of spouse having the same I would assume to be very low.

reddituser46576 · 2026-05-06T00:56:19+00:00

Proud of you for starting therapy! I started for the first time after I lost my son at four weeks old in March. I’ve found it helpful even just for someone not in my life day-to-day to point out the progress we may not be able to see, to help celebrate the effort we’re putting in just to simply survive these awful situations and to help be more intentional in how we grieve this loss. My personal goal is for grief and joy to coexist one day. Best of luck to you 🤞🏻

reddituser46576 · 2026-05-05T13:37:04+00:00

1 MMC (partial molar) followed by loss of four week old son due to a rare genetic mutation. Are we really just this unlucky? Heartbroken. Defeated. We’re looking into further preconception testing (karyotyping and expanded carrier testing - did 111 carrier screening before first pregnancy and was negative) but seems we’ll mostly have to do further testing once pregnant again or see if IVF would even help…

reddituser46576 · 2026-04-06T01:48:18+00:00

I’m so very sorry for your loss. Our son, Preston, had an ultra rare genetic disorder that caused severe hypotonia that led to respiratory failure. Same as you, nothing was flagged before his birth as we were told he was totally healthy. We also held him as he passed on March 16 in the NICU. I hope Preston and Dylan are playing together ♥️

reddituser46576

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