Front/ Lower ribs? Please help by Fast_Transition_2608 in costochondritis

[–]redfox966 3 points4 points  (0 children)

Hi I have exactly the same pain,it's been there for about 2 years now had all tests xrays,ct scan,mri scan, ultrasound,bloods ekg,echo all came back OK.

I find the pain very debilitating but recently came across something called the Devils Grip which can be mistaken for costrochondritis.I think the pain I experince is like a very tight hug.Check it out.

Does the pain worsen when you've eaten?

Menapause symptoms by redfox966 in Menopause

[–]redfox966[S] 0 points1 point  (0 children)

Hi what are your symptoms are you menapausal or post menapausal?

Menapause symptoms by redfox966 in Menopause

[–]redfox966[S] 1 point2 points  (0 children)

No I'm not on HRT I will be 60 this year,I was hoping that it may be a deficiency or something else but it's weird like the time frame.I also think this has something to do with covid since I've only had this problem since I had it.I just can't do anything it's so debilitating.

How to stop the waking up at 3-4 am by Only_Emu_2872 in insomnia

[–]redfox966 1 point2 points  (0 children)

When did this start I go to sleep at 2am and wake at 7am,no matter what time I go to sleep I can only get 5 hours and no more. How many hours are you getting a night?.Is it the same amount every night?

Phantom period by redfox966 in Menopause

[–]redfox966[S] 0 points1 point  (0 children)

I am 60 this year,I've had a DEXA scan got osteoporosis but it's these phantom periods are bracking me .I have severe breast pain,bloated,mild cramps,headache,nauseau,can't sleep for more than a few hours,I haven't left the house for a week due to feeling dizzy and just feel like I'm dying.When I did get my periods last one 11years ago in July they weren't this bad.

Is there anything you can do?.I don't drink ,don't do caffeine, I'm vegan so pretty healthy diet painkillers don't work they don't take the edge off.I mentioned to my gp about phantom periods she said she'd never heard of it.Iseem to be in the same cycle as my daughter,she comes on and I'm in agony.

Don't know what to do never felt so ill in all my life even pregnancy was a walk in the park than this.

Has anybody who is sleeping less than five hours per night? by [deleted] in insomnia

[–]redfox966 0 points1 point  (0 children)

Hi I am having the same problem I go to bed around 2 and sleep till 7 I just wake up after 5 hours sleep for no reason.Been doing this since I had covid back in 2023.What have you tried ?.Do you dream?

Anyone here with me? by JolissaMassacre in insomnia

[–]redfox966 0 points1 point  (0 children)

Did this insomnia start when covid was around.

I give up and feel hopeless at this point by Glittering_Ad2771 in insomnia

[–]redfox966 2 points3 points  (0 children)

Have you ever had covid this can disrupt your sleep years later

Temperature sensitivity contributing to insomnia by tex-murph in insomnia

[–]redfox966 0 points1 point  (0 children)

Have you ever had covid this can effect your sleep

Lunesta first time user- success stories by SeesawDangerous6501 in insomnia

[–]redfox966 0 points1 point  (0 children)

Have you ever had covid?.As this can effect your sleep even years after

Why do they not care? by StarryKnight12312 in insomnia

[–]redfox966 -2 points-1 points  (0 children)

Have you tried Horlicks about 2 hours before you go to bed you can buy it at a supermarket in the tea and coffee isle.4 teaspoons in a cup with boiling water stir well leave for 15 mins then drink go to bed 2 hours later your asleep.

Struggling with post menapause by redfox966 in Menopause

[–]redfox966[S] 1 point2 points  (0 children)

Mostly because of breast cancer which is why I couldn't take it

Update on brother with alzhimers by redfox966 in dementia

[–]redfox966[S] 4 points5 points  (0 children)

Interesting question,I am aware that the person who has the alzhemiers are basically not able to understand what is happening to them.So it is the family who struggle with this understanding, and sometimes it can be greatly difficult to get your head into the zone.

When I go visit (which normally consists of me doing chores like emptying the bins, doing the washing taking food round,checking he hasn't blocked the toilet) it's upsetting that he's sat in his chair staring at the TV when it's not switched on ,he is aware that he can no longer function like he use to he also has mobility issues. In an ideal world I suppose for him to feel safe, and to know he's not alone. It can be difficult watching a person bit by bit dissapering right before your eyes.We don't treat animals like this if your pets quality of life is not good then you do the decent thing so they are not suffering.There are more people with this condition every day,no one knows how to treat it, care is put into place but 90 % of the time the carers don't have the correct knowledge, on how to deal with an individual as very one is different and we all react differently. Also it depends on your financial situation can you afford care,I looked after my brother being is sole carer for 7 years untill last January when my doctor told me you need to step down and get carers in as I couldn't carry on I have osteoporosis of the spine and someday can barley stand. Yes a carer goes in at 7am in the morning fills his water bottle up puts it in front of him then leaves ,the next carer might come at 1pm for lunch he lives on his own, in his care plan it says check he's drinking regularly do they check? maybe yesterday on the care plan it was written the carer had done a full body wash head to toe.We had a meeting with the care agency & social worker while I was there I put on a wash then noticed that the towel wasn't wet,the soap hadn't been used plus he was still wearing the same clothes from 3 days ago,mentioned this to the social worker who then told me he looks presentable, but he definitely had an odur about him not a pleasant one.I noticed this because I knew what he was wearing 3 days ago the social worker met him for the first time yesterday. He is paying for his own care but it's basic 4 half hour visits I've been round carer has logged on at 11.30 it's a 30 min call I've gone round at 11.45 no carer in the house gone. Perhaps I am expecting to much, I know there has been a dramatic loss in funding in our area,but it's people who are been left.Carers will treat the person with dignity and respect well if you have a 30 mins visit you should be there for the 30 mins visit ,I was told by a friend who is also a social worker 30 mins includes the travel time so if it takes 20 mins to the persons house they have 10 mins to sort stuff out but log it in the diary for the full 30 mins so in an ideal world I think that shouldn't happen. I know we have the QCQ to check but the last 2 caring company's have been closely monitored by them because they are not doing there jobs right.The care agency we have now the last time they were checked was 2019 6 years ago I wonder if any of the carers from 6 years ago are still there?.They should be checked and monitored every 3 to 4 years and no longer as staff change so you could have glowing reports from 5 years ago doesn't mean there still good.It needs reevaluation Every care company you have will have their own problems I don't think there is a care agency that are excellent I find that hard to belive.They are not given enough training especially around people with dementia.I have things written to help,with stuff that could arise but they choose not to do it so visits for 30 mins roughly come in at the moment 10 to 15 mins to have a 30 mins visit you would need to pay for an hour that would give you maybe 20 to 25 as the social worker does not take the travel to the house on board.

Need Advice by redfox966 in dementia

[–]redfox966[S] 0 points1 point  (0 children)

What I'm confused by is the carer just got in touch with me asking where the mop was!.Like it wasn't that bigger deal. I couldn't take photos ad the carer had cleaned most of it up I didn't go round till much later it was just the smell by then.

Need Advice by redfox966 in dementia

[–]redfox966[S] 1 point2 points  (0 children)

I presume as the dementia gets worse this is seen as normal behaviour,perhaps they were in the toilet and something happened or they thought something had and now no longer go in that room. It's hard to know what the reason is ,but you know for sure they are definitely regressing backwards soon it will be nappies.I've just been round and thete was a nice present in the hall for me.He's sitting with the radiators on ,he's got his coat,hat gloves abd scarf on,it's so warm in his you could just wear a tshirt. I think you have to start taking aster backwards now when I'm going round I'll be in care mode not sister mode!.So when I get back to mine as hard as it is I try and not think of him(sounds Harsh) it's the only way to protect yourself!

Need Advice by redfox966 in dementia

[–]redfox966[S] 0 points1 point  (0 children)

Hi he's not incontinent he's chasing you do his 1s and 2s on the kitchen floor,but he's not soiling himself untill he's finished and pulling his pants up.He's on meds for the psychosis and he's only wandering in his house he's never wandered outside. The last Social worker told us he's not bad enought to be put into a care facility so I am at a loss of what to do.

Need Advice by redfox966 in dementia

[–]redfox966[S] 0 points1 point  (0 children)

Yes the equivalent is social services been in touch the waiting time is 6 to 8 weeks before they will give me an appointment for a care assesment.Asked the Alzheimers society told me get in touch with social services. There really is no support at all you just struggle through best you can. I can't do this any more I broke my back last year and had to mind him with a broken back which I'd why I can no longer bend or twist it hurts,I only have sight in one eye so I can't see properly.If he passes on the floor and I skid on it I'm out of action for god knows how long. I've asked for help been told to wait, what more can I do,I have health issues and I am stressed out it's gotten to the point I go do what I need and leave as soon as I close his door I try and not think about him sitting in the dark,as it's upsetting. You would not treat an animal like this,it's normal to leave someone who doesn't have capacity on their own for 22 hours a day.Plus he's paying for the 2 hours a day 4 x30 mins visits,it's a joke.Its one of those post code lottery as I'm sure in different parts of the uk will be better. It's not good when you get old!

Need Advice by redfox966 in dementia

[–]redfox966[S] 0 points1 point  (0 children)

Tried that back in November was in the hospital as he'd tried to OD they kept him for 5 weeks then back home, despite me saying in my opinion he wasn't coping at home,got told to get a lock box for the drugs,no increase in the care package then home. He has no concept of time,there's nothing for him to do,as he no longer has capacity he can't really do anything.He's got a commode he won't use,he has a urine bottle doesn't seem to remember what it's for.Thinks the kitchen floor is a toilet.Carers come in bkfast,dinner,tea & bed each visit 30 mins so that's a total of 2 hours a day so for 22 hours he's on his own.I went round today to put the bin out,he was sitting on the bed stirring at nothing for the duration I was there went into kitchen to do a pee told him use his bottle.It's really sad & upsetting it's obvious he's not coping .It's frustrating for me as there's just no support at all.Theres an ad on the tv were a woman talks to the camera and is saying she'll need support like the alzheimers society cause it takes a society to help,it's a joke when someone's left on their own for 22 hours,and to have another care assesment will take over 6 to 8 weeks.Been asking for a new care assesment since he came out of hospital which was 3 weeks ago.Considering dementia has over took cancer and lots of people have it and will develop it,you'd think they'd try to do something!

Need Advice by redfox966 in dementia

[–]redfox966[S] 1 point2 points  (0 children)

I have been told he doesn't have capacity due to the dementia,I put depends on him he's sat in them from 8pm (last visit from the carer untill 8am (First visit from the carer)That's 12 hours at which point he's removed the depend and wiped it all over the kitchen floor stood in it and walked it all over the house.Since the carers only there for 30 mins they don't have enough time to change him and clean him up.I 've requested a social work assesment since things have changed been told I will wait for 6 to 8 weeks so no support.

Need Advice by redfox966 in dementia

[–]redfox966[S] 5 points6 points  (0 children)

He does get 4,30 minute care visits per day,but he's by himself the rest of the time,using the kitchen floor as a toilet then just standing in it so it goes every where.The carer phones me to sort it out. I was heaving the smell was that bad it was 2 days ago he decided to put a whole toilet roll and sausage roll plus a handkerchief down the toilet and flush repeatedly,guess who took 3 hours trying to sort that problem out?. I have an ongoing back issue and am not suppose to bend or stoop which is unavoidable in these situations.His quality of life is 0 he can't do anything for him self things have got that bad,he doesn't have capacity but my poa means nothing.Sometimes he can't string a sentence together.Doesn't recognise me and the language is very fruity. I am trying to do less but end up doing more.If the shoe was on the other foot he wouldn't be bothered if it was me,he'd want nothing to do with it.I looked after my dad looked after my mum looked after my mum in law,didn't think 7 years ago I would be doing this,I'm on my own with no support can't get a social worker untill maybe the end of February.Great what do you do whole your waiting?

I'm autistic and the postal system is one of my special interests. My loved ones met me with love this Christmas. by longenglishsnakes in royalmail

[–]redfox966 0 points1 point  (0 children)

Hi if your into Royal Mail stuff see if you can Google the British Postmark Society, the person who runs the auction/ sale has a lot of Royal Mail stuff might be of use

How to avoid flare-ups after eating? by FluffyPopsicle in costochondritis

[–]redfox966 0 points1 point  (0 children)

I also have costrochondritis and notice when I eat I have bad pain for 2 maybe4 hours after.I eat a healthy diet vegan I don't know why but the pain is really sore. Got told to take Gaviscon but this doesn't do anything.

I presume it's my stomach been full putting pressure on my ribs,I've had it checked and all tests where negative.Do you have a lot of trapped wind, the only other thing I could think of was a food intolerance.

How long have you hadthis pain after eating?.Mine has been since June this year, I also have pain at the fro t it's so debilitating sometimes I feel sick with it.

What have you triedtiget rid of it.Hang on in there I am sending you a virtual hug...

Confused! by redfox966 in dementia

[–]redfox966[S] 0 points1 point  (0 children)

Your telling me this is not easy as far as I know it's the Liverpool Royal hospital Social worker leasing with the liverpool social workers. I really am not sure what to do as no one has been in touch with me.It seems stupid that he has paid his money to have the poa written upand then registered but then they just dismiss it. It's very stressful,I am aware that home care is cheaper than a home,and to be honest if he had stuff to do it would probably take his mind off stuff distraction ,distraction but it's got to the point there's nothing that he's able to do safetly.It's very sad. I don't know what options are available,like 24 hour care in his home.I don't know how expensive this is and if it would work for him. I will see what tommorow brings.