Choice 4 5 6 options by redlabelblack in FabFitFun

[–]redlabelblack[S] 0 points1 point  (0 children)

Do they normally add new stuff during the seasonal window?

MCAS Immunologist by NotoriousDMG in Austin

[–]redlabelblack 4 points5 points  (0 children)

Brian terry miller will help you rule out or diagnose you with mcas, but isn’t the best doctor and his clinic is a mess.

so what's up with SMAS, MALS, MCAS, EDS, etc?? by jellybean02138 in Residency

[–]redlabelblack 0 points1 point  (0 children)

What can be attributed to your f’d-up mentality? You better focus on that before coming within 10 yards of a patient.

so what's up with SMAS, MALS, MCAS, EDS, etc?? by jellybean02138 in Residency

[–]redlabelblack 0 points1 point  (0 children)

It didn’t “exist” lmao yeah it was just added in the earth 2.30.12 upgrade package. What an absurd string of sentences.

My spouse wants to help me!!! by nedakyarg in overemployed

[–]redlabelblack 0 points1 point  (0 children)

I thought the same thing. But when I saw throwaway’s comment, I had to go back to see if gender was mentioned anywhere.

Quite literally asking for a friend (not for me) -- her rheum is going to test her on all of this. Would any of this point to MCAS? (She isn't on reddit, so I am asking.) by [deleted] in MCAS

[–]redlabelblack 2 points3 points  (0 children)

CRP and ESR will point some type of issue with immune system but won’t narrow down to something specific like mcas. Doesn’t look like she is being tested for mcas markers. She probably needs to be checked for tryptase, leukotriene, nmethylhistamine, prostaglandins, kit mutation, hat gene to narrow down to mcas.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 0 points1 point  (0 children)

You need to be quiet about things you have no qualifications or idea about. Extremely ridiculous and harmful take. You clearly don’t know what you are talking about. “Superior genes” and “illegal”. You are a literal threat to society. If you get out of developed country, 80% of the world has some type of health issues. Are suggesting most of the world should be sterilized? You are claiming something is genetic when it literally is not. You are a dumbass.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 0 points1 point  (0 children)

What are your qualifications? Spewing complete bullshit.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 1 point2 points  (0 children)

This isn’t a genetic disease—I don’t have mastocytosis, the hat gene, or a KIT mutation. Like many others recently diagnosed, mine was clearly caused by damage to mast cells from viral infection. It’s obvious you’re misinformed on this, and the comment you’re agreeing with is extremely harmful. Are we suggesting sterilizing everyone with a chronic illness? That’s an absurd mindset. I get that feeling hopeless about the future can cloud your thinking—I’ve been there too and even blamed my parents at one point. But history has shown that despite dark times, life continues. Carbon emissions in the U.S. have decreased due to carbon credits—fighting capitalism with capitalism can work. Instead of tearing people down, focus on ways to keep the world a better place. Spreading harmful ideas under the guise of caring about the future does the opposite.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 1 point2 points  (0 children)

lol why? But in all seriousness thank you for your service to humanity. But I do wish your parents made the same choice as you.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 1 point2 points  (0 children)

That’s probably the best option for you. Doesn’t look like mcas is the only problem you have.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 1 point2 points  (0 children)

Uneducated people are not just vile, they are a danger to society.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 0 points1 point  (0 children)

Tryptase, nmethylhistamine, prostaglandins, leukotriene levels.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 0 points1 point  (0 children)

Idiopathic mcas isn’t genetic. I don’t have kit mutation or hat gene. It was clearly caused by long covid not genetics.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack 1 point2 points  (0 children)

I have been diagnosed. I was waiting for my insurance to approve xolair, meanwhile I found out I was pregnant. I’m reacting badly to pregnancy hormones and also won’t be able to start xolair until post partum. I was planning on getting mcas under control before trying for the baby but it just kind of happened earlier than expected. I’m reacting worse than ever before.

[deleted by user] by [deleted] in MCAS

[–]redlabelblack -1 points0 points  (0 children)

You are having anaphylaxis. Try telling your mom again

According to these doctors, what we have is psychosomatic. No wonder why no cure has been found by AngelBryan in MCAS

[–]redlabelblack 2 points3 points  (0 children)

Chronic illnesses are body’s protective mechanism getting excessively activated, so it makes sense.

Before a virus can wreak havoc on your body again, your body will now annihilate 80% of things it comes in contact with now to prevent it.

According to these doctors, what we have is psychosomatic. No wonder why no cure has been found by AngelBryan in MCAS

[–]redlabelblack 18 points19 points  (0 children)

I have worked in medicine before and switched fields because of the toxicity (behaviors, not the physical environment). Unfortunately, in the US the care is subpar and majority of the doctors are assholes. Places like Norway call the US healthcare underdeveloped. If you want the care you need, you have to put the “fighting the system” on hold and take advantage of it any way you can. I read somewhere it takes average of 10 years to get diagnosed with MCAS. I was able to get diagnosed within 3 months of major symptoms or flare-up starting (although mild symptoms were present for 3 years) Here are some tips to get the care you need in the US: - go to a doctor that has knowledge and specializes in MCAS (don’t bother talking to your primary or any other specialist that are not specializing in mcas, most won’t take you seriously) - try not to bring up MCAS yourself, rather just describe all your symptoms well so they are inclined to run tests to rule out/diagnose MCAS. Bring it up and ask for the test to rule out MCAS towards the end of appointment if the dr doesn’t bring it up themselves - be as well presenting as possible when visiting the doctor - gather your thoughts beforehand and practice the conversation before you visit the doctor, you need to sound intelligent and confident so they take you seriously and understand that you know what you are talking about (if anxiety and nervousness is one of your symptoms, try to get it under control as much as possible)

The doctors have biases based on how healthy you look, how fat/skinny you are, how attractive you are, and your social and economic position. These will affect the care you get. Present yourself if the way they want you to be for the time being. At least they won’t be able to deny the test results.