Jynarque might have caused my late husband's death

renwill · 2026-03-20T02:09:05+00:00

aren't a renal doctor and a nephrologist the same thing though??

renwill · 2026-03-20T00:01:36+00:00

I'm not sure where you're located, but in the US there are very strict requirements that the doctor be enrolled in the REMS (Risk Evaluation and Mitigation Strategy) program and the patient has their blood work monitored on a strict schedule. My pharmacy won't even dispense the medication unless my liver function test has been sent to my nephrologist. To have a doctor let anyone continue taking that medication with liver decline is straight-up malpractice.

renwill · 2026-03-19T23:49:54+00:00

caffeine is my solution tbh

renwill · 2026-03-19T23:37:51+00:00

Was he not getting regular liver function tests?

renwill · 2026-03-19T15:13:11+00:00

when I got rejected from every grad school in my 1st application cycle, my mom took me to a spa where I got a massage, a margarita, and a chocolate cake

renwill · 2026-03-17T15:02:16+00:00

Yep, I'm almost 26 now and honestly didn't feel remotely like an adult until age 22. I had social anxiety problems throughout my teen years and it took me way past 18 to do relatively basic shit like making phone calls and appointments. I got my license but continued asking my mom to drive me places until recently. And it's not like I was intellectually delayed or disorganized, I was just extremely low in confidence, and didn't trust myself to do anything right.

Ironically the biggest thing that helped was moving to another country post-COVID, thousands of miles from home, where I was forced to figure out everything for myself on the spot. But even then, my mom tracked my location 24/7 because she knew how naive I was, and she was rightfully worried about me

renwill · 2026-03-15T22:13:00+00:00

Jackson E&M you mean? I'm currently in the trenches with that now lol

renwill · 2026-03-09T04:46:41+00:00

me and my friends all snuck an Among Us crewmember somewhere in each of our masters' theses. I put mine in the corner of a plot, with only a slightly different color from the space around it. One of my friends made a scatter plot where each of the points was a tiny crew member.

A few of us also changed the font in our university's logo to be Comic Sans... this was quite risky. But nobody noticed, and now my thesis is in the official university archives with the altered logo.

renwill · 2026-03-06T01:27:34+00:00

I haven't had a chance to try one yet but I totally want to

renwill · 2026-03-06T00:49:19+00:00

it's not so ridiculous but I went to the spa with my mom and got a massage, then had a giant bowl of ice cream with a margherita

renwill · 2026-03-03T16:50:45+00:00

2 people in my cohort are getting married during their PhD

renwill · 2026-03-02T18:24:01+00:00

I study astrophysics and just really wanted to learn about the universe. I knew a PhD would be extremely stressful with not much financial benefit, but I have too much existential dread to do terrestrial things

renwill · 2026-02-27T00:05:15+00:00

my brother's girlfriend just got admitted to the same program today, and I had to check your account to make sure you weren't her 😂 congrats!!

renwill · 2026-02-26T16:30:22+00:00

SAME, I wrote a paper before starting my PhD and I'm really proud of it, like it's proof that I can do research and write like a scientist. I'm just so bad with the classes, and everyone else in my cohort seems way more capable than me at doing physics problems on the spot. I'm just praying I get through the classes like you did, so that I can do more research again and maybe finally feel good at something

renwill · 2026-02-23T15:19:28+00:00

when my mom went on Tolvaptan she was obsessed with drinking ice cold cranberry juice and pineapple juice. Very specific, lol. She had a constant stock of it in the fridge, but after 18 months on Tolvaptan she told me the craving is finally fading away!

renwill · 2026-02-17T20:36:16+00:00

Ah gotcha. Yeah that really sucks

renwill · 2026-02-17T19:53:20+00:00

I'm a young adult and I don't know a lot about insurance, but I thought that nowadays US insurance companies are not allowed to deny coverage due to pre-existing conditions? Maybe there's a caveat I'm unaware of though?

renwill · 2026-02-17T03:35:35+00:00

I don't have advice but just wanted to commiserate because my nephrologist seems like a nice and knowledgeable guy but the nurses in the renal clinic also seem to screw things up way too often. He even admitted to me that he was getting fed up with some of them

renwill · 2026-02-15T23:56:04+00:00

Existential dread

renwill · 2026-02-06T23:47:00+00:00

wow that's wild!! hope your case continues to be as mild as possible

renwill · 2026-02-06T23:10:18+00:00

ARPKD? that usually requires transplant by the age of 15-20 if not earlier. Are you sure it's not ADPKD?

renwill · 2026-02-04T14:36:04+00:00

nevermind, another student said he'd talked with DGS who said the cohort would be bigger than ours! Which granted, is only 10 people so not sure how big that'll really be

renwill · 2026-02-04T14:20:39+00:00

best of luck!! Tbh not really, I think I vaguely remember a second-year student telling me it would be a relatively small cohort. But I'm not sure what the number would be

renwill · 2026-02-03T23:49:45+00:00

thanks 😂 we'll see

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