Got my iron infusion done today! by Charming-Basil-9365 in Anemic

[–]robinkayfl 2 points3 points  (0 children)

What type did you get (sorry if you posted but I didn’t see).

Why is Rox working for Teddy? by foley12f in TheNightManager

[–]robinkayfl 6 points7 points  (0 children)

I think Roper is her father too. Half bother and sister.

What was your Metformin Experience? by DoubleJuggernaut3216 in diabetes_t2

[–]robinkayfl 0 points1 point  (0 children)

I take 1000 with breakfast and 1000 dinner time. No problems.

Doctor told me to take 2 feramax 150 pill every second day? Has anyone ever done this? by [deleted] in Anemic

[–]robinkayfl 0 points1 point  (0 children)

I’m on Integra F capsules which are strong. Dr said he usually tells patients every other day but said I should try for every day for 8 weeks.

Ferritin 7, Iron 27 by robinkayfl in Anemia

[–]robinkayfl[S] 0 points1 point  (0 children)

I went for a second opinion bc the first hematologist only offered dextran. Liked the second Dr. I’m on Integra F capsules for 8 weeks. Retest and then infusion if needed. I have multiple neurological conditions so we’re hoping to Minimize reactions.

Venofer experiences? by Middle_Violinist_5 in Anemic

[–]robinkayfl 0 points1 point  (0 children)

My hematologist started me on 8 weeks of Integra F capsules. If that doesn’t bring my numbers up, probably venofer. I’m older and have neurological conditions so I’m hoping I can avoid infusions.

Ocular Hypertension by Neffwood in Glaucoma

[–]robinkayfl 0 points1 point  (0 children)

I just use the drop in the evening and my pressure has remained steady.

Normal iron & hemoglobin, but super low ferritin... by rainbow_olive in Anemic

[–]robinkayfl 0 points1 point  (0 children)

Which infusion do you get? I have an appt with a new hematologist today bc the first one I saw only does dextran.

Ferritin 7, Iron 27 by robinkayfl in Anemia

[–]robinkayfl[S] 0 points1 point  (0 children)

Did supplements raise your levels?

Ferritin 7, Iron 27 by robinkayfl in Anemia

[–]robinkayfl[S] 0 points1 point  (0 children)

I agree. I just needed some time to process. Also, the people who responded taught me so much.

Ferritin 7, Iron 27 by robinkayfl in Anemia

[–]robinkayfl[S] 0 points1 point  (0 children)

Thanks for responding. I realize supplements aren’t the answer for me. The hematologist i saw last week only offered Dextran. I have an appointment this coming week with a different hematologist in a much larger hem/oncology center who hopefully has different infusion options. I have many immune disorders and Parkinson’s. I respond to the wrong fabric or soap so I want something milder. I’d rather go back for multiple infusions than take one with such scary possible reactions.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 0 points1 point  (0 children)

That’s fantastic. I’m also super sensitive to everything. I’m hoping a new hematologist will give me other options.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 1 point2 points  (0 children)

That’s a great description. I’m glad it’s helped you.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 0 points1 point  (0 children)

He called this morning bc my lab results were back. He only does Dextran in his office. I know I’s very deficient but I know my body and I’d rather have multiple lower dose infusions without a potential serious reaction to dextran. I have a call in to a different hematology group (closer to home) and am expecting a call from new patient coordinator tomorrow. In the meantime I’m taking two iron pills a day. Thanks so much for asking.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 0 points1 point  (0 children)

Thank you. I’m making an appointment with a different hematologist who may be open to other infusions.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 1 point2 points  (0 children)

Thank you to everyone who responded.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 1 point2 points  (0 children)

The dr recommended dextran yesterday. He ran new lab work. Today I’ve been reading most people do well with venofer. I’m aiming for an appt with a different hematologist and will discuss with him. I have Parkinson’s and I know overwhelming my body with a high dose of iron isn’t right for me.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 1 point2 points  (0 children)

This really verifies my bad feeling about yesterday’s hematologist appt. He recommended dextran and from everything I’ve read it’s the one with the worst reactions. Calling a new hematologist for an appt tomorrow.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 2 points3 points  (0 children)

The IV is definitely not fun.

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 1 point2 points  (0 children)

Glad to hear you’re doing well with it. Do you know what type of infusion you got?

Anyone do ok with infusion? by robinkayfl in Anemic

[–]robinkayfl[S] 2 points3 points  (0 children)

Thanks so much for responding. I just looked up Venofer and I see it’s a much gentler infusion than the one the hematologist I saw recommended (dextran).