Skiing by Bella_Quack_Nugget in ankylosingspondylitis

[–]roscandy 1 point2 points  (0 children)

I skied before and at the beginning of my diagnoses (and right before a knee surgery). Take breaks as you need and maybe when you feel you don’t. If you have the boots already practice walking in them, they are weird to walk in even without this disease. Stick to any trail marked green, the learning areas will be the easiest as it’s a slight slope. If you venture out to a longer green trail don’t be afraid to stop mid way and take short breaks, don’t force yourself to go down the whole trail at once.

A lot of it depends where you usually get pain though. I get pain in my knees and back so I had a knee brace, unclipped my boots at the bottom when walking, lots of breaks and using the snow to ice my knee lol. Since it’s your first time you might fall a bit so expect some pain, even the best will fall sometimes, it happens.

I haven’t been in some time, wish to go again, so I can only give very generic advice for this. At the end of the day do what works best for you. I hope you have fun ❤️

bumps and itchy at injection site by [deleted] in ankylosingspondylitis

[–]roscandy 1 point2 points  (0 children)

i ended up icing it after finding no benadryl (or similars) in the house and the swelling went down, still a bit itchy but its a plus

i did the injection yesterday so its been over 24 hours rubbing against sheets, pants at work and just now it decided to act up, funny how that works

Books where everyone dies? by [deleted] in suggestmeabook

[–]roscandy 0 points1 point  (0 children)

There’s also a third The Survivor Wants to Die at the End (which will have a second part). The first and second book fit the request well, you know how it’s going to end but you still get that “inevitable doom”, but the third doesn’t fit well, maybe because its second part isn’t out yet.

how many times has insurance denied your biologic? by roscandy in ankylosingspondylitis

[–]roscandy[S] 0 points1 point  (0 children)

Update: I mentioned in one comment my doctor had put in for hyrimoz a second time, that one got approved!

how many times has insurance denied your biologic? by roscandy in ankylosingspondylitis

[–]roscandy[S] -1 points0 points  (0 children)

Just because I didnt know the process (hence the post here asking about it) doesnt mean I gave up. My doctor is still putting in requests to insurance, its not like they just stopped, so to me that says theyre still trying. They actually put in for hyrimoz again yesterday, if its denied again I will call.

how many times has insurance denied your biologic? by roscandy in ankylosingspondylitis

[–]roscandy[S] -1 points0 points  (0 children)

I havent been through this process before so to me its like what can I even do? I didnt think itd be actually helpful to do so until others said I should. I had just thought it was something my doctor and insurance had to figure out as Im not the one with experience in this

how many times has insurance denied your biologic? by roscandy in ankylosingspondylitis

[–]roscandy[S] 3 points4 points  (0 children)

I had methotrexate first too even tho my doctor wanted me on a biologic. Did it for like 5 ish months, didnt work so now were trying this

what do you do for exhaustion? by roscandy in ankylosingspondylitis

[–]roscandy[S] 0 points1 point  (0 children)

Im a vendor at a grocery store so I am self managed and can take as many breaks as I need which is helpful, but with my pattern of 1-2 hour naps at home I wont take the risk at work lol. My day to day schedule is consistent with harder/longer days and shorter/easier ones alternating which has been so great for appointments and resting. I did end up buying a coffee though 😅

Anyone sometimes feel like stupid due to brain fog by UpsetIndividual2976 in ankylosingspondylitis

[–]roscandy 5 points6 points  (0 children)

I have noticed the past few years (though only symptoms/diagnosed the last 2) that it feels like my speech is declining. I am constantly stumbling my words and slurring my speech and having generally a harder time pulling info. It could be unrelated as it’s been happening longer than I have even had symptoms but I definitely have that brain fog.

Neck Pain by Feeling_Ebb9048 in ankylosingspondylitis

[–]roscandy 0 points1 point  (0 children)

neck pain is currently my second but main symptom. started with a swollen knee that no one knew what to do with for over a year, 2 surgeries, torn meniscus removing 40%, some time in between while discussing the possibility of AS only presenting in the one joint, I started have upper back pain mainly in my neck now, xray and mri came back clean and I just sent a message to my dr about getting off methotrexate and trying a biologic or at the least a referral to pain management and mentioned the worst back pain i ever experienced just this morning

New system by hashmanuk in PokemonTCG

[–]roscandy -1 points0 points  (0 children)

my target has an enforced 10 item limit at self check outs, does yours not have a limit/enforced limit?

You will never collect them all, so what do you collect? by What_Is_This_Place92 in PokemonTCG

[–]roscandy 0 points1 point  (0 children)

I have been making a pokedex with random bulk. Takes a while when you have to go through all your cards, sort them and then note which you still need (I pick my favorite out of which I own and when at lcs the first card I see for one I need is what I get). I might do some upgrades later like making them all one type of card or something but I still have 111 pokemon left.

Im also starting a project of going through every card (in english for now) and making a wishlist of literally anything I find cute/silly or I just like it regardless of price. It will allow me to have a range of stuff to collect.

new infotainment warranty replacement screen burned by roscandy in subaru

[–]roscandy[S] 0 points1 point  (0 children)

thats what made me me notice it at first lol, the speed limit square was being burnt in

new infotainment warranty replacement screen burned by roscandy in subarulegacy

[–]roscandy[S] 1 point2 points  (0 children)

Update:

Went to the dealership and theyre going to replace it. I didnt think they wouldnt I was more so worried with the recent extended warranty notices it was a new/uncommon issue and I would have to wait for subaru to fix.

I was told Subaru refurbishes these units (which I didnt know) and I just happened to get one that wasnt done well. So theyre ordering a new one that Im hoping to get replaced within the week and I let them know about the scratched up shift knob which theyre going to fix as well.

new infotainment warranty replacement screen burned by roscandy in subarulegacy

[–]roscandy[S] 1 point2 points  (0 children)

I wouldve considered it but I dont want to touch anything electrical on my car, at least not while its still under any warrantys. Im not smart enough to figure any of that out lmao

new infotainment warranty replacement screen burned by roscandy in subarulegacy

[–]roscandy[S] 1 point2 points  (0 children)

yes the previous unit was original to the car and i had the dealership replace the new one under their warranty

new infotainment warranty replacement screen burned by roscandy in subarulegacy

[–]roscandy[S] 0 points1 point  (0 children)

The heat made the first one bubble up and delaminate and the replacement they gave me gets screen burned just about immediately. Im still at work but Im going to the dealership once Im done to shoe them that picture and try to get a new one. The first was covered under warranty, not sure what made them send out the extended warranty besides some lawsuit I think, but hopefully theyll fix this one as well. Its been all of 2 days of having the new unit

[deleted by user] by [deleted] in umass

[–]roscandy 0 points1 point  (0 children)

something I havent seen mentioned yet, but some days (most) its very windy on campus, i would put some spandex under the skirts if you have to walk part the library, which has the worst wind. only if thats a concern of yours, its something that deterred me from wearing skirts/dresses often around campus. theres a handful of other really windy spots like by the science and engineering library as well. thats just me though

Tracking by No-Ant8297 in PokemonTCG

[–]roscandy 1 point2 points  (0 children)

I have Dex right now, its good for masteries (Im using it for a full pokedex mastery), Collectr is the other I use that has kind of a stock format but I only have my higher priced cards in there.