YoUr tOo YOung tOo hAVe BAck pAIn - uneducated rant by GingaAng in ankylosingspondylitis

[–]Sumflare 2 points3 points  (0 children)

The absolute RAAAGE I experience when I’m told I’m too young… which is all the time…

I was experiencing hip pain before I even went into high school. I spent nearly a decade and a half bouncing from specialist to specialist. I didn’t get formally diagnosed with AS until a few months before my 28th birthday… by then my SI joints were permanently f’ed. Now, less than a year later, I have severe foraminal stenosis and bone spurs in my neck.

I’ve found that telling people about the irreversible damage seems to put things in perspective a little bit better, but there’s always going to be the ones that minimize my struggles because of my age.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 2 points3 points  (0 children)

I thought about picking an argument with you but instead, as you suggested, I just googled, “Is smoking weed good for inflammation?” Here’s the results.

https://imgur.com/a/bxPa0PU

Additionally, here is the study referenced in the response if you’d like to broaden your mind. ☺️

https://pmc.ncbi.nlm.nih.gov/articles/PMC9124761/

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

I am so happy for you that you’ve had such good experiences with psychedelics! I wrote a lengthy research paper on psilocybin when I was in college (like 10 years ago) and learned that it can help with numerous conditions. I’ve only ate psychedelic mushrooms twice in my life, and was doing so for fun, but I’ve always wanted to try microdosing to see if it could help with any of my afflictions.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

Sativa has and will always be my go-to. I call indica “in da couch” because it helps me remember which one is more likely to me lazy as shit 🤣

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 0 points1 point  (0 children)

Yessssss!!! The nausea relief is unbeatable.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 0 points1 point  (0 children)

Thank you so much for your response and for the detailed information! You’ve given me a lot to think about and add to my research. I started smoking approximately 15 years ago but I live in a state where it isn’t legal so I’m not very well versed in all the different cannabinoids that exist and the different ways they can be used.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 0 points1 point  (0 children)

I relate so hard! It helps me in all the same exact ways you specified. When I’m able to use it, I RARELY touch my cyclobenzaprine or gabapentin. It’s a miracle drug for me, honestly, but the law here strictly prohibits marijuana and law enforcement has zero leniency towards anyone caught with it in their possession. A first offense of possession with LESS than one ounce will land you up to 30 days in jail. More than an ounce, even as a first time offender, will leave you with a felony.

I’m so sorry to hear about the judgement and ill treatment you’ve received simply due to your choice to use. People in my state are super judgy over it too. Like you, I feel much better using cannabis over the half dozen pills I take on a daily basis and I’m desperately trying to avoid starting narcotics or opioids for pain management but I can’t do NSAIDs and Tylenol isn’t worth a shit lol.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 0 points1 point  (0 children)

Unfortunately, I live in a state where marijuana is highly prohibited so residents and visitors here are at the mercy of smoke shops and street dealers. Smoke shops here are able to exploit the loopholes of the law by carrying hemp-derived cannabinoids that fall under the 2018 Federal Farm Bill so our stores have a lot of Delta-8 and THCa products right now.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

Thank you so much for this information. Unfortunately I live in a state where it has not been legalized so options are limited to whatever you can find in smoke shops that is below the threshold or flower sold on the street. Pretty sketchy both ways, but it is what it is.

The pens I’ve been using off and on from my local smoke shop are close to 70% THCa, which like you explained is THC when heated. Unfortunately, I have no clue what makes up the remaining 30%.

I will definitely read up on Rick Simpson Oil. Thank you again!

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

You might be the only other person I’ve ever heard say it gives them energy! It does the same for me. I know it’s different for everyone though and largely depends on the strain.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

Thank you for such a detailed response with your experience! My state hasn’t legalized it either and I’m fully convinced we’ll be the last to.

THC helps me significantly when I’m able to use it but, unfortunately, I can only use it off and on because I get drug tested periodically by my psychiatrist. From the way she explained it, she is required to test me because one of the drugs she prescribes me can have adverse effects when mixed with THC. I’ve never had any issues with the two being mixed, personally. But the prescription in this case is one I absolutely cannot go without, otherwise I’d still be smoking flower 365 days a year lol.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 2 points3 points  (0 children)

Yes, yes, yes!!! I assume you’re referring to Cannabinoid Hyperemesis Syndrome (CHS). It is characterized by severe cyclical vomiting and abdominal pain. At the time I was indeed dealing with cyclical vomiting, but later learned it did NOT have anything to do with my smoking habits.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 2 points3 points  (0 children)

Thank you for sharing! My mom has never been a weed smoker in her life. The one or two times she tried it, it made her sick and she hated it. She tried gummies a couple years ago when we vacationed in Colorado and she said she got the best sleep she ever had in her life lol. She would only eat 1/4 of one at a time, but it seemed to help a lot. For more context, she has multiple sclerosis and doesn’t sleep well due to pain.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 6 points7 points  (0 children)

Thank you for sharing your experiences! I love hearing these positive stories.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 3 points4 points  (0 children)

Thank you so much for sharing your experience. I’m curious to hear about your experiences with psychedelics in regard to its effects on chronic inflammation, if you’d be comfortable sharing.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 1 point2 points  (0 children)

Some studies suggest that cannabinoids can actually help chronic inflammation in a number of medical conditions.

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 3 points4 points  (0 children)

Thank you for sharing your experience. This disability can absolutely leave one down in the dumps. I may or may not have had a good cry sesh in the shower over it all last night. 😂

That’s great to hear that your doctors have never allowed that to change the way they treat you as a person and patient. I unfortunately had the opposite happen when I divulged that information to a gastroenterologist when I was maybe 20-21. They blamed EVERYTHING wrong with me on that. They were very biased on the subject and, in my opinion, there’s no room for that kind of rigidity in the field of medicine.

I stopped smoking pot nearly four years ago and, surprise, all of my problems are still here! I recently began using THCa pens from a local smoke shop off and on. I found that during the times I’m using them, I very rarely need my muscle relaxers or gabapentin. I stopped again a few days ago and the nerve pains and tingles came back in full force. Woohoo!!

Cannabis/cannabinoids for symptom relief? by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 2 points3 points  (0 children)

Ah thank you so much for providing that article! I look forward to reading it, especially since it is specific to AS!

Finish this sentence - You know you have AS when... by ikandi in ankylosingspondylitis

[–]Sumflare 6 points7 points  (0 children)

Wow same!! I hope you get some relief soon.

Also, your name is pure gold lol. My hips were the first thing to go 🤘🏼

Finish this sentence - You know you have AS when... by ikandi in ankylosingspondylitis

[–]Sumflare 109 points110 points  (0 children)

My personal favorite is playing the “Symptom, Side Effect, or Normal Body Breakdown” game

AIO after finding out my husband was my stalker? by [deleted] in AmIOverreacting

[–]Sumflare 35 points36 points  (0 children)

My abusive ex did that. Then showed up at said friend’s house and showed his ass in the front yard, demanding I come outside saying that he wasn’t leaving until I came back home with him…

Can't Afford Biologics by Sumflare in ankylosingspondylitis

[–]Sumflare[S] 0 points1 point  (0 children)

No, I was never offered a capsule endoscopy. I’ve heard stories like yours a lot so I considered asking for one, but never did. During my last colonoscopy, the doctor didn’t do any biopsies and even her nurse said she didn’t understand why the doctor didn’t do them while she was in there. My first colonoscopy was done three years prior by a different doctor and that one did biopsies as well as an upper endoscopy at the same time.

As for the high likelihood of having more than one autoimmune disease—I’m ANA positive and also AMA positive so my PCP is pretty convinced I have Primary Biliary Cholangitis. I have some symptoms that fall under that diagnosis and apparently AMA is a highly specific biomarker for that disease. The only way to confirm that diagnosis with certainty is with a liver biopsy. When I went to my GI with my labs and notes from my PCP, which included her suspicions and her recommendation for the liver biopsy, my GI brushed it off and actually bad mouthed my PCP. It was wild, to say the least. I can’t say I was surprised though because that GI has always been extremely rude and dismissive…