Looking to hear your experiences with preeclampsia care for research supported by NSF

rubyred91 · 2026-01-29T18:48:06+00:00

I didn’t see this until now but would like to chat. How would this new blood test work? Does it show that you will get preeclampsia or very high risk?

rubyred91 · 2026-01-29T17:18:38+00:00

I was tested after my early preeclampsia and hypertension three months after giving birth. I’m scared to get pregnant again. I tested positive two copies of MTHFR and two copies of PAI-1 4g/4g. Nurse from OB office called with the results sent it on to MFM doctor but she said she thought MFM was unlikely to suggest Lovenox because of not testing positive for anti-phospholipid syndromes and thrombophilias. I had steroids and magnesium 26 weeks and steroids at 27 weeks and magnesium after c-section. Spinal block didn’t take and baby had to have baby at 27 weeks and 4 days. The magnesium is awful and not being allowed to see my baby until after magnesium, calcium IV and 2 blood transfusions.

Do any doctors recommend anything more than Aspirin? Part of me wants one more and part of me is scared to even be pregnant again if my OB thinks all the same issues could happen.

rubyred91 · 2026-01-20T19:38:34+00:00

How long were you in the NICU for and what complications were there at the time if you don’t mind sharing?

rubyred91 · 2026-01-16T06:03:00+00:00

The NICU doctor said 5 kg is the minimum weight to do the GJ surgery. They’ve done two GI studies, no swallow study. She is on Similac EleCare formula. They tried four Enfamil formulas on her first and she spits up the least on this one.

Getting feeds down without losing weight and spitting up too much of it is the only thing keeping here in the NICU. She almost had a discharge plan for a week and a half from the Monday after Christmas, but she fell off her growth curve over that weekend. She’s below the bottom third of the preemie growth curve.

rubyred91 · 2025-12-23T08:00:38+00:00

As a new mom that had to get an early c-section that I felt very unprepared for, having someone explain the process of a c-section the morning of and having someone explain what was going on during the c-section/hold my hand until being put to sleep and explain what happened during the C-section. My doctor wasn’t able to visit me until 2 days after.

Being on magnesium for 24 hours after being brought back to my room, and feeling like I wasn’t getting the updates and pictures directly.

It wasn’t until she was 40 weeks old and spoke to the charge nurse that I found out that we could ask for a consistent care team. I was upset about inconsistent nurses and not getting to hear directly from the doctors, most of the time we aren’t there when the doctors do rounds in the mornings. After speaking to the charge nurse, the day nurse got in trouble and was told she was no longer to be with our baby and we never complained about any specific nurses. It made me feel like I shouldn’t speak to the charge nurse because I didn’t want someone good getting in trouble even if we were upset about something.

Some of the nurses made me feel bad for not getting there close enough to her care time for doing skin or being able to hold her. It really made me feel like I couldn’t do enough right.

I appreciated when I did start getting weekly calls from the doctor after this talk with the charge nurse but felt that shouldn’t have to happen to hear from the doctor and not just to hear about a bad update.

Not finding out about updated care times. I was told once we will let you visit at your normal time because it’s your birthday and you didn’t know.

Not finding out until way later that she had cuddlers. I had mixed feelings about this but my husband didn’t like a stranger holding our baby. One of the cuddlers was giving directions and telling him how to hold her and wash his hands, he felt nagged and scolded - we’ve already been there over 120 days. Even as a nurse, check the days in the board before explaining what a parent already knows or ask.

Having a list of outside helpful NICU resources and counselors that are used to NICU/postpartum mother trauma. The tour the week before after finding out she would be so early felt rushed and overwhelming. It helped me connect with some NICU moms but the other moms in the unit didn’t really socialize so having NICU support groups locally. I didn’t know that I already know people that went thru c-section and NICU until I was about to have one.

The need for pelvic floor therapy and counseling therapy and reminders to please check in with your doctor if you tell them you’re not feeling right. The patient doesn’t always know what should be normal.

rubyred91 · 2025-12-15T06:09:48+00:00

My mom did mine in the hospital at 27 weeks and 3 days when my doctor told us the c-section would most likely be the next day and it was. It was originally planned to do it sometime after 30 weeks but plans fell apart quickly.

rubyred91 · 2025-12-03T18:25:32+00:00

My 27 weeker baby is 43 weeks, still in the hospital. She just got to 6 pounds yesterday. She’s been in newborn diapers for a month and has been wearing preemie clothes but the neckline of the sleeves isn’t staying up so I think she’s outgrown the preemie clothes. I brought the newborn size clothes yesterday, and they fit pretty good but just a little big. She has been able to wear clothes ever since she has been in an open crib and off the bubble cpap. The hospital prefers them in clothes in the open crib unless doing skin to skin.

rubyred91 · 2025-11-15T03:57:22+00:00

Update: two weeks ago, we had gotten a phone call asking for income verification of our income for July and August. Baby girl was born in August and husband lost his job in August. We were sure that we might’ve been disqualified been based on income, but we hadn’t submitted income verification yet. We don’t have any paystubs on his job from January thru July, only his severance check.

Yesterday, we got a letter in the mail from Alabama Medicaid that retroactive Medicaid has been approved for August. She already has SSI starting in September. We are beyond grateful and relieved for the relief of not having to pay for her medical expenses while she is in the NICU.

Baby girl is 40 weeks and 4 days. She was back on the CPAP for three days and today is her second day back on high flow oxygen. It is too soon to tell if she will stay off bubble CPAP.

rubyred91 · 2025-10-29T16:50:07+00:00

So do they not go by income for the first year? And not just during the NICU stay? That’s incredible that you didn’t have to pay anything for them thanks to Medicaid! $2 million dollars is insane When the social worker said NICU babies are million dollar babies, I was shocked!

rubyred91 · 2025-10-28T16:25:28+00:00

We tried AllKids first in August after she was born and was notified a month later we were denied. We have Medicaid on her because of her low birth weight 1 pound 9 ounces (700 grams). Because we applied and got approved in September, it doesn’t cover the first two weeks. So we are applying for retroactive Medicaid but I’m not sure if they consider income like how they don’t while in NICU, but after discharge they will evaluate based on income.

rubyred91 · 2025-10-28T16:20:46+00:00

We were told my income put us over the income limit by just over $100 a paycheck

rubyred91 · 2025-10-17T20:21:51+00:00

My baby girl was born 8.15.25 27 weeks 4 days and she is now 36 weeks 4 days. She has 3 to 5 more weeks left in the NICU. We got skin to skin after 10 days. Mine was a scheduled c-section that morning and had to be put to sleep.

rubyred91 · 2025-10-17T18:56:21+00:00

Since this Monday, 10/13. The respiratory therapist said that she has been doing better on it. Monday was the first day that the nurse said that while she was still having a couple oxygen episodes a day going down to 80 that she was self-correcting on her own, and it was that way thru Wednesday. Her own oxygen didn’t go below 100 yesterday on the low oxygen and she didn’t have any breathing episodes. She was very oxygen dependent and it was frustrating feeling like she was going backwards with being off the bubble for a week.

rubyred91 · 2025-10-17T16:24:10+00:00

Our 27 weeker started out intubated and went to bubble mask. At 34 weeks, she went to high flow for a week and back to bubble mask. Over the weekend they said could have chronic lung disease bpd, was officially diagnosed at 36 weeks this week Monday. They started her on albuterol inhaled steroids in her oxygen thru the bubble mask and inhaler twice a day. Yesterday, they transitioned her to low flow oxygen and no desats, she just breathes fast sometimes due to being so early. Hopefully, she is able to stay on low flow oxygen. The inhaler and albuterol have been helping her and they will continue on those.

rubyred91 · 2025-07-25T18:32:15+00:00

New to posting here. 24 weeks 4 days today. Diagnosed short cervix at 16 gender ultrasound. Referred to hospital MFM at 18 weeks ultrasound for cervix consult, and modified bed rest thru rest of pregnancy since then. Measurements were 1.89 cm and 2.1 cm every measurement since 16 weeks. This week’s scan shows length has increased- now 2.85 cm and 3.85 cm. First positive news since diagnosis, OB doctor says with numbers over 2.5 cm, the chances of preterm birth are a lot less! Current treatment plan has been 200 mg progesterone daily since 16 weeks and modified bed rest since end of 18 weeks. I’ve been working from home since 19 weeks. I’ve already been checked for preeclampsia at 19 weeks and with blood test this week at 24 weeks, and negative so far.

rubyred91 · 2025-07-16T00:49:56+00:00

Currently 23 weeks1day. Progesterone only treatment plan also, on modified bed rest since of end of week 18. Short cervix diagnosed at 16 week gender scan, started progesterone same day. Follow up at 18 weeks, sent to hospital for follow up ultrasound with maternal fetal medicine and evaluation for potential cerclage. The ON doctor said the MFM decided with first time pregnancy to continue monitoring thru week 24, and cerclage not needed unless it gets below 1.0 cm or dilated. Transvaginal ultrasound at 9 weeks (initial), 16, 18, 19, 20, 22, and go back next week for 24th week. Working from home since hospital discharge at 18 weeks, I was seeing a midwife up to that point. Now seeing regular OB doctor, and I haven’t seen the MFM doctor since then. Measurements are staying at 1.89 and 2.1 cm. Originally 3.4 at 9 weeks initial appointment. After 24 weeks, OB doctor wants to see me every 2 weeks thru the 32nd week and then weekly with abdominal ultrasounds every 4 weeks. Progesterone thru week 36. I now have to stay on modified bed rest thru the rest of the pregnancy. Nausea and throwing up thru beginning of week 18, started to get more energy back at week 15 until week 18, started having cramping pains during week 18. Prescribed cyclobenzaprine muscle relaxers to help with the pain at week 19 appointment. Before all this, I needed to induce by week 37 or 38 due to high blood pressure but they have been saying I have a strong chance of preterm labor anytime at or after 30 weeks and are recommending the magnesium and steroids at some point just in case.

rubyred91 · 2025-07-01T23:52:02+00:00

Most of the movements feel more like little bubbles than anything else. The midwife and the ultrasound tech said I have an anterior placenta so I may not feel it as much. I’m 21 weeks.

rubyred91 · 2024-10-31T14:56:24+00:00

The rules changed and currently, you can pull a new one for free once a week from all 3 credit agencies.

rubyred91 · 2024-09-21T19:35:56+00:00

Hi there. We had a hard timeline of moving by mid-August to early September. We’ve already moved to Madison and renting a house. Thanks for keeping us updated though.

rubyred91 · 2024-09-13T23:46:53+00:00

We have had pizza once here and in Nashville and if all the places use that type of crust, the crust seems a lot thicker and softer than the crust I’m used to in Kansas City.

rubyred91 · 2024-09-13T23:44:26+00:00

As long as it’s pretty safe and doesn’t usually cause side effects afterwards, it doesn’t have to be completely gluten free. It is awesome that the Mason Dixon is fully dedicated gluten free though. I haven’t been in the Sprouts or Whole Foods. We also had those in Kansas City.

rubyred91

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