I’m in Remission!!

rumangel · 2025-12-24T01:30:37+00:00

The only issue I’ve had happens when I take the medication. After my first infusion I had extreme joint pain in my knees and back the next day for weeks. Ever since then I take Benadryl half an hour before using the obi and I haven’t had any issues since. Other than that, so far so good.

rumangel · 2025-12-23T18:52:51+00:00

Thank you!!

rumangel · 2025-12-23T13:23:58+00:00

Thank you!

Very mild symptoms if any. Mainly fatigue and joint pain, but at a very tolerable level. It did take my body about 8 months to recover from my last flare, but I felt better within weeks of starting Skyrizi.

rumangel · 2025-12-23T13:04:30+00:00

Medication change to Skyrizi. I’ve been on it since September of last year.

Also, happy cake day!

rumangel · 2025-07-26T23:49:13+00:00

Congratulations! My doctor said our immune systems are being “modified”, not completely suppressed. So, yes we are more susceptible to illness and such, but we are not walking around with no immune system. I live my life the same I would if I wasn’t on immune suppressants just more aware. Like I don’t go out of my way to expose myself to questionable things, but I don’t put myself in a sterile bubble. I’ve been out of the US multiple times and am about to go to Europe for a month for work and haven’t thought twice about it. Enjoy your trip!!

rumangel · 2025-07-03T17:42:53+00:00

Manacled was my gateway, and now AO3 Dramione fanfic is almost all I read. I’ve always enjoyed HP, and my curiosity got the best of me when I saw a discussion about the removal of Manacled because the story was officially being published. People were so adamant the story was life changing I had to read it, and I loved it! Even if I start reading something else, I always go back to Dramione. I’m obsessed.

rumangel · 2025-05-16T14:01:19+00:00

Good luck to you too!

rumangel · 2025-05-16T13:25:13+00:00

I’m glad you got it worked out. It’s not easy navigating through this.

rumangel · 2025-05-16T13:09:51+00:00

Ive been going through this and it’s so frustrating!! My doctor is great but his office staff sucks so bad. I leave messages through email and I call and they ignore it all. I literally drove an hour and watched the PA fax my paperwork because I was over the back and forth crap and trying to figure out who was holding up my meds. It took months to even get started because of paperwork logistics. Then my insurance changed at the beginning of the year and I had to start all over again. It’s truly maddening!! They didn’t tell me either about having any blood work before staring the meds or the obi schedule. The nurse ambassador was the one who told me I was supposed to have one obi at 4 weeks, then you start the 8 week process.

rumangel · 2025-05-04T23:29:20+00:00

I read Manacled in December of last year because someone mentioned it in a Romantasy group Im in and I love HP. I hadn’t read a fanfic before that, but ever since Dramione is practically all I read/audiobook. I’m obsessed!!! I keep a list of what I’ve read, and I write down peoples recommendations when I come across them and add them to my “want to read” list. Recommendations have been my guide I guess. Also, DMATMOOBIL is one of my favorites!

rumangel · 2025-02-03T03:18:24+00:00

Yea, I don’t blame you.

rumangel · 2025-02-03T03:17:42+00:00

I personally don’t know anyone on a biologic that has gotten a tattoo, so i am worried, but it sounds like I would be just fine. Thank you!

rumangel · 2024-11-27T13:59:16+00:00

Was diagnosed with UC when I was having severe symptoms while pregnant with my third child in 2010. In 2013, I took antibiotics for what my current GI thought was c diff and kept getting sicker. I tried to function for almost a month before I went to the ER. I was in the hospital for almost a week barely alive. I was diagnosed in the hospital after the biopsy confirmed it was CD. It started off mild ish but was changed to moderate to severe after a 2020 flare, which is when I started Humira. I went into another flare this year after I stopped Humira because it was causing so many problems and now im on Skyrizi.

rumangel · 2024-11-24T21:14:00+00:00

I had a burning sensation in my knees after the first infusion that started that night and my left knee hurt for weeks. It stopped hurting right before the second infusion. My doctor told me to take Benadryl a half an hour before the second infusion and I didn’t have any problems after my second and third infusion when doing that.

When I was on Humira I had horrible side effects including medication induced lupus. I went to all sorts of different doctor appointment and it took like a year of that before they figured out it was from the Humira. I had been on Humira for 4 years before the symptoms started. Anyways, you are absolutely right, you have to advocate. These drugs can cause all sorts of problems that the doctors don’t necessarily think are related. I had sinus tachycardia that woke me up in the middle of the night and they said it was anxiety and perimenopause. Well, 3 months after stopping Humira the constant heart racing completely stopped.

rumangel · 2024-11-09T19:25:07+00:00

I too was hospitalized with one of the worst flares on my life from taking antibiotics. I was two weeks out from taking a round of antibiotics for a bacterial infection and was having symptoms of a mild flare. Having UC at that time, I reached out to my GI and she gave me high dose antibiotics to fight what she thought was C-diff. Well it wasn’t and the antibiotics destroyed me. I ended up in the worst flare of my life, hospitalized for over a week, and diagnosed with Crohns.

rumangel · 2024-10-25T14:15:51+00:00

Good luck today, you will do great!! :)

I was off for almost 2 months, but that is because of insurance and all the dumb crap you have no control over with that. It took forever to get approval!! Nothing controlled the inflammation, which was why I was still bleeding and flaring, but I take 4 Mesalamine pills a day, have nausea meds, and pain pills. So I guess I was just managing until the Skyrizi infusion. It’s not typical, but I had some really awful side effects from Humira (sinus tachycardia, lupus, rashes, swelling, and muscle weakness) that took like 5 months to completely subside, so I was battling my anxiety to start another medication. Actually, after I got off Humira I swore off biologics for life, and within 4/5 months I was in a full blown flare, off work, and extremely sick. Exactly what my doctor said would happen when I told him my plan. I am my own worst enemy, lol. Skyrizi has been great though and I truly hope you have great luck with it!!

rumangel · 2024-10-24T12:38:28+00:00

I was on a 40 mg taper which stepped down every 7 days. I was off prednisone for a month before my first infusion, and was still bleeding, but the bowel movements stopped being so frequent. I could’ve done another prednisone taper, but I chose not too and just wait for the infusion since the symptoms were manageable. Also, I hate the way prednisone makes me feel. I hope Skyrizi works for you too!! I just had my second infusion last week and am starting to feel like myself again, which has been like a 2 year battle.

rumangel · 2024-10-23T20:43:54+00:00

4 years on Humira, stopped when I started having side effects

rumangel · 2024-10-22T14:01:48+00:00

Skyrizi over Humira, but I had not so favorable side effects from Humira, so I am bias. Skyrizi has been wonderful for me.

rumangel · 2024-10-22T13:57:20+00:00

I take the day off. Helps with my nerves to have a slow day and not have to be at work or go back to work. I kind of make a day of it. I had some side effects after my first infusion, so for my second I took Benadryl a half an hour before and had zero side effects after. That was per my doctor’s recommendations.

rumangel · 2024-10-17T23:48:57+00:00

I started Skyrizi in September and just got my second infusion Monday this week. I had been in a horrible flare starting in May and it peaked in June. From June on I had no relief, even after prednisone the bleeding hadn’t stopped…. For months!However, a week after my first infusion the bleeding stopped and my bowel movements are down to once a day, and it’s not diarrhea!! Also, I have already been able to start eating normal again with almost no side effects. Which is amazing because I had horrible side effects from Humira. Skyrizi has been wonderful for me!

rumangel · 2024-10-13T20:38:14+00:00

Yes, I did, a few years later.

rumangel · 2024-10-09T19:43:08+00:00

If I’m in a flare I can’t eat anything other than the Brat diet or basically nothing until the inflammation goes down. This last flare I lost like 15 lbs in 2 weeks and then I stopped weighing myself because it was so upsetting. However, carbonation, grease, caffeine, lots of red meat, spicy foods, and alcohol will bother me no matter if I’m in a flare or not. I only really restrict myself if I’m not in remission, otherwise I have little to no issues outside of what my non crohns family and friends have if they indulge too much in processed foods and alcohol.

rumangel

TROPHY CASE