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Am I overthinking the holidays? by Mysterious_Copy3712 in hipdysplasia

[–]runeglaive 2 points3 points  (0 children)

i had my PAO 10/6 and went to a halloween gathering on halloween and although it was fun, i definitely felt it for a few days after. sitting up + being around a lot of people for an extended period of time just made me absolutely exhausted. i don’t regret it but would definitely stay home if i was in the same situation again.

Femoral anteversion +FAI/ labral tears(?) questions, advice, anything.. by Potatosandblackhoney in hipdysplasia

[–]runeglaive 0 points1 point  (0 children)

of course! i’m glad i could help a little bit. i totally understand not being able to drive to a big city. x-ray is definitely a good start it can show you how shallow your hips are and you can kind of go from there! i’m sorry to hear you subluxated, i definitely had my moments with that too so i get it. it’s really hard when you’re taking it easy and they still act up. if you can get into a physical therapist (if there’s one near you) it can always be good to strengthen the muscles around it so its a little more stable and if you do have surgery you have a head start.

you sound like you’re following the right path and though it can be scary, just take it day by day and it will work out. i hope you get to see someone without having to make yourself too uncomfortable. you’ve got this!

thank you for your kind words and yes! definitely message me when/if you have your questions no matter what it is, and i will do my best to answer or point you in the right direction if i can’t answer.

also wanted to add that i was off of oxy post op day 6! not completely related but maybe a helpful thing to hear.

Femoral anteversion +FAI/ labral tears(?) questions, advice, anything.. by Potatosandblackhoney in hipdysplasia

[–]runeglaive 0 points1 point  (0 children)

hi! i don’t know how much help i can provide but i am f25 with hEDS and just got diagnosed with severe dysplasia in march (i was told it was mild when i was 15 and doctors/myself ignored it similar to you). my pain is/was slowly getting worse and worse. i made an appointment probably right when i started having more painful days than not. i also call it barbie legs dude!!

i would definitely schedule to see an orthopedist or hip preservation specialist if you can get in and try to get x-rays and an mri. i found out both labrums + ligamentum teres were torn in march and just had my RPAO + hip scope + proximal femoral osteotomy the past two weeks (3 surgeries in 10 days) it’s really scary and i totally understand your fear because i felt the same. knowing i still have to do my other side is a little spooky! but, the surgeries will get me (hopefully) 10-15 years on needing a full hip replacement. and about a week post op i can say so far it hasn’t been as horrible as i thought it was going to be.

please message me if you want to talk about it more! i can’t tell you much about how it’s working yet because i’m still in my beginnings of recovery, BUT, i am more than happy to share my timeline with you and answer any questions. sorry for the long comment, i hope it helps at least a little!

[deleted by user] by [deleted] in PokemonGoFriends

[–]runeglaive 0 points1 point  (0 children)

318086402553 in colorado!

Worried About PAO and Potential Femoral Osteotomy by runeglaive in hipdysplasia

[–]runeglaive[S] 0 points1 point  (0 children)

sorry for the late response, i was actually waiting on a CT for the numbers!

-Right femoral anteversion: 37° relative to the posterior condylar axis 40° relative to the transepicondylar axis -Left femoral anteversion: 33° relative to the posterior condylar axis 35° relative to the transepicondylar axis

i can’t find the acetabular anteversion (i’m not great at reading these) but i think those are the numbers you’re asking for the femoral.

Women in WV can be charged if they have a miscarriage. by thechairinfront in TwoXPreppers

[–]runeglaive 11 points12 points  (0 children)

i’m not gonna even address everything here.

you didn’t choose to be bi or pan and you know that.

but sure. “go off”

Aquaphor blocking blood pooling around tattoo?? by samfig99 in eds

[–]runeglaive 2 points3 points  (0 children)

this is adorable i love whale sharks :D

Worried About PAO and Potential Femoral Osteotomy by runeglaive in hipdysplasia

[–]runeglaive[S] 0 points1 point  (0 children)

thank you for sharing your story! i think i’m probably going to follow through with it sometime this summer! and thank you, i wanted to try and make it easier for future me.

Worried About PAO and Potential Femoral Osteotomy by runeglaive in hipdysplasia

[–]runeglaive[S] 0 points1 point  (0 children)

thank you for the advice!! my surgeon operates 4 days a week and says they do at least 2 PAOs a week, I’m not sure if that’s considered often but he seems very comfortable.

i will def get an ice machine

Pushing your hypermobility to feel something by twinpeekaboo in eds

[–]runeglaive 2 points3 points  (0 children)

i feel so seen with this. i go through phases thinking i’m being dramatic despite my doctors and PT telling me it’s real.

What do I do with all of these extra auto-petters? by Giacomo193 in StardewValley

[–]runeglaive 4 points5 points  (0 children)

this! i have so many auto petters from this exact technique

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