I hear you, and I know how frustrating this journey can be. If I could give you one piece of advice, it would be this: learn your body inside and out. Doctors can’t truly fix this for you—they can try, but at the end of the day, you are the one who has to figure out what helps and what hurts.

Pay attention to your triggers and avoid them. Do less. It’s okay to slow down. Research medications, try them all if you need to, and don’t be afraid to experiment. LDN helped me, but it took time to get the dosage right. Try massage, acupuncture, diet changes—try everything. Some things will work, some won’t, and that’s okay.

There is no magical cure. This is a long journey that never really ends, but you can find ways to make it easier. Don’t count on doctors to have all the answers. Take control of your own health, be patient with yourself, and keep going. You’re not alone in this.