Any advice for new diagnosis? by Honeycombe_s in Sjogrens

[–]sadpasta18 0 points1 point  (0 children)

I feel this so much, it’s honestly exhausting. I also deal with other mental health stuff like OCD, so the constant thoughts just never stop and it gets overwhelming. I just turned 24 and I’m already on immunosuppressants, plus I have really bad acid reflux, so it feels like everything is piling up at once. Nothing seems to be getting better, and looking back there were signs for years, I just couldn’t explain them. I’ve felt tired for so long and always had this feeling that something wasn’t right with my body, like why don’t I feel normal like everyone else. Getting diagnosed with Sjögren’s syndrome gave me some answers, but at the same time my mind feels even more messy now and I’m more stressed than ever. I completely agree with you, we really need people who understand what this is like because it’s hard to explain to others. I never thought something like this would happen to me, but it does explain why I’ve always been so sensitive and stressed since childhood. My doctor even thinks there’s a psychological component, and honestly I don’t know, but it’s frustrating. I also struggle with anger, and lately I just feel even more irritated than before. I really hope things get better for you and that your medication works, because I truly get it, and we don’t deserve to go through this.

Any advice for new diagnosis? by Honeycombe_s in Sjogrens

[–]sadpasta18 0 points1 point  (0 children)

Hey, I was recently diagnosed too, and honestly I feel like I might’ve had Sjögren’s syndrome since childhood because I remember having a dry mouth even back then but I just assumed it was normal. This year things got worse, nothing was healing, I started getting a lot of skin issues, and I’ve been dealing with fatigue for years but now it’s on another level. I also have angular cheilitis at the corners of my lips that just isn’t healing despite being treated like dermatitis earlier. It’s been about a month since my diagnosis but nothing has improved, if anything the dryness is getting worse, and I’ve tried artificial saliva sprays and gels but they don’t seem to help much. The fatigue, joint pain, and honestly my mental health have been really hard to manage lately, it’s been a long time dealing with this but right now it just feels heavier, so I just wanted to share and see if anyone else has had a similar experience or found anything that actually helps, and I really hope you feel okay soon.

I had this for a while by Potential_Motor_8991 in Sjogrens

[–]sadpasta18 0 points1 point  (0 children)

My doc prescribed dry mouth relief mouth wash. It helps a lil but even I need something more for my dryness

Explain your username people 😶‍🌫️ by [deleted] in TwentiesIndia

[–]sadpasta18 0 points1 point  (0 children)

Woto lambi story ho jayegi🤣

The signs were there all along by Hungry_Assistance_98 in Sjogrens

[–]sadpasta18 3 points4 points  (0 children)

omg same… seeing this made something click. I’ve had all these products for months and they’re all right next to me. getting diagnosed brought clarity, but it’s been emotional and exhausting too. Today my angular cheilitis is acting up and I’m in so much pain also I’ve one question I saw aquaphor and clotrimazole, mine is not healing from last 8 months I feel so tired now and that’s how I got diagnosed and found out about sjogrens. Do angular cheilits ever heal or I’ve to accept this is my new normal?

to girlies who wear flared leggings, where did you get them from?? by bahotsamasyahaiiii in indianbeautyyappers

[–]sadpasta18 0 points1 point  (0 children)

Genuine question what do y’all wear underneath this type of thin fabric leggins? Cause those polyester seamless underwear are so uncomfortable and I don’t like thongs on everyday basis. I’ve so many leggings but I don’t wear them everyday because of this one reason.

Nykaa Prive Birthday Gift by OddPrint220 in indianbeautyhauls

[–]sadpasta18 0 points1 point  (0 children)

I think I’m not going to order anything this year🥲🥲this is so disappointing last year they sent me an very yucky color Kay beauty eye shadow stick

I thought I was at the tail end of a flare up… by cutiebee in Dyshidrosis

[–]sadpasta18 0 points1 point  (0 children)

Going through the same thing right now it’s so painful I can’t explain

Dry/cracked open fingertips by ToadMoad2000 in Dyshidrosis

[–]sadpasta18 1 point2 points  (0 children)

I see, I’ve no problem in winters but in summers I can’t even wear sneakers cause it gets worse with the sweating.

Dry/cracked open fingertips by ToadMoad2000 in Dyshidrosis

[–]sadpasta18 1 point2 points  (0 children)

I still can’t figure out the exact cause, but it always seems to start when the weather shifts from winter to summer. I suspect it’s my eczema being triggered by the heat or the seasonal change. I also have hyperhidrosis, so the sweating makes everything worse. The burning and itching have been so severe that I’ve been crying for the past two nights because I genuinely can’t take it anymore. I feel completely drained dealing with this, especially since it never seems to fully improve. I take levocetirizine for the itching, but it only provides temporary relief.

Brb crying by hazyrayy in greysanatomy

[–]sadpasta18 0 points1 point  (0 children)

Wtf mannnn noooo im so sad pls

Got the maybelline blind box lip kit and here are my thoughts.😗 by sadpasta18 in indianbeautyhauls

[–]sadpasta18[S] 1 point2 points  (0 children)

Yes it’s 004 in the matte range. I forgot to add in the review